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Jobe, I., Engström, Å. & Lindberg, B. (2019). Knowledge and views about coordinated individual planning from the perspective of active older adults. Clinical Journal of Nursing Care and Practice, 3, 17-26
Open this publication in new window or tab >>Knowledge and views about coordinated individual planning from the perspective of active older adults
2019 (English)In: Clinical Journal of Nursing Care and Practice, ISSN 2639-9911, Vol. 3, p. 17-26Article in journal (Refereed) Published
Abstract [en]

Background Today’s older adults are often well informed and want to participate in decision-making processes. The coordinated individual planning process offers them active involvement in deciding and owning how their care will be managed.

Aim

The aim of the study was to explore active older adults’ knowledge and views regarding coordinated individual planning.

MethodsThe study has an exploratory inductive approach. Five focus-group discussions were conducted with 40 participants from different organizations and associations. A qualitative interpretive description framework was used, and the analysis resulted in four unique themes.

ResultsThe four themes resulting from the analysis are collaboration and continuity, participation and involvement in decision, individual need for support, and access to information and service. Collaboration between different levels of the healthcare system and between professionals is crucial. Older adults wanted to be participating actors in their healthcare. They worried about the lack of continuity and thought that services were not responsive or did not meet individuals’ needs.

ConclusionsOlder adults want their views and preferences to be taken into consideration, and they want to be actively engaged in the decision-making process regarding their care.

Place, publisher, year, edition, pages
Heighten Science, 2019
Keywords
older adults, care planning, coordinated individual planning, integrated care, interpretive description, qualitative research
National Category
Nursing
Research subject
Nursing
Identifiers
urn:nbn:se:ltu:diva-74238 (URN)10.29328/journal.cjncp.1001012 (DOI)
Available from: 2019-06-07 Created: 2019-06-07 Last updated: 2019-06-17Bibliographically approved
Jobe, I., Lindberg, B. & Engström, Å. (2019). Perceptions of healthcare services and preference of factors related to care planning among active older persons. In: : . Paper presented at ICIC 19- 19th International Conference on Integrated Care.
Open this publication in new window or tab >>Perceptions of healthcare services and preference of factors related to care planning among active older persons
2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Introduction

The care-planning process offers people active involvement in deciding, agreeing and owning how their care will be managed. It is intended to be a process of collaboration supported by the principles of person-centredness, partnership and empowerment. According to Swedish legislation, coordinated individual planning must occur for patients transferring to another level of care or when an individual, living in their own home, has the need of efforts from different welfare actors. Awareness of older peoples’ preferences regarding different factors related to the care-planning process may generate knowledge that can facilitate bridging the gaps between care recipients’ preferences and caregivers’ decisions during the care-planning process. The aim of the study was to explore active older persons’ perceptions of healthcare services and preferences of factors related to care planning.

Methods

A qualitative interpretive description framework was chosen for the study. Five focus-group were conducted with 40 members, aged between 70 to 88 years, from six different organizations and associations. Participants represent the growing older population in society that remains active for many years after retirement. The general principles of interpretative descriptions were used in the analysis.

Results

The results showed that the participants thought that many organizational changes that had been made had not improved healthcare services. The participants wanted more flexibility regarding decisions and the possibility to change them. Personal freedom and making choices independently were momentous. They worried about the lack of continuity and perceived that no one assumed overall responsibility. Overall, participants cared more about the quality of the interactions with personnel than about how services were organized. The majority of participants were not aware of the development of a coordinated individual plan. A new service of being able to access the coordinated individual plan on the Internet is offered. A majority of the participants did not have Internet access; they saw themselves as the generation between the old and new systems. They did not resist the new technology but stressed the importance of not excluding anyone.

Discussions

Older persons want their views and preferences to be taken into consideration, and they want to be actively engaged in the decision-making process and make decisions themselves. Older people’s lives have become more individualized with the rest of society, and this requires healthcare service solutions that are more tailored and include different options.

Conclusions

Older persons’ want to be active partners in healthcare and social services and they value a personal relation with the professional actor, easy access and well-coordinated and more personalized and flexible services. They value their independency and want to stay active as long as possible.

Lessons learned

Older persons value their independency and want to remain active and maintain functioning. Views of older people must be considered on different levels, from planning healthcare and social services to individualized care-planning processes.

Limitations

It is important to remember that older people are not a homogeneous group. The participants in this study are active in society and chose to participate. Majority of the participants had no previous experiences of the coordinated individual planning however, they can still have other experiences of healthcare and social services that influence their preferences, and made them participate in the study. Their views do not necessarily correspond with older persons’ views in general.

Suggestions for future research

More knowledge is needed about how individuals and their relatives experiences the Coordinated individual planning process.

National Category
Nursing
Identifiers
urn:nbn:se:ltu:diva-73468 (URN)
Conference
ICIC 19- 19th International Conference on Integrated Care
Available from: 2019-04-05 Created: 2019-04-05 Last updated: 2019-04-05
Fisher, D., Khashu, M., Adama, E. A., Feeley, N., Garfield, C. F., Ireland, J., . . . van Teijlingen, E. (2018). Fathers in neonatal units: Improving infant health by supporting the baby-father bond and mother-father coparenting. Journal of Neonatal Nursing, 24(6), 306-312
Open this publication in new window or tab >>Fathers in neonatal units: Improving infant health by supporting the baby-father bond and mother-father coparenting
Show others...
2018 (English)In: Journal of Neonatal Nursing, ISSN 1355-1841, E-ISSN 1878-089X, Vol. 24, no 6, p. 306-312Article in journal (Refereed) Published
Abstract [en]

The Family Initiative's International Neonatal Fathers Working Group, whose members are the authors of this paper, has reviewed the literature on engaging fathers in neonatal units, with the aim of making recommendations for improving experience of fathers as well as health outcomes in neonatal practice. We believe that supporting the father-baby bond and supporting co-parenting between the mother and the father benefits the health of the baby, for example, through improved weight gain and oxygen saturation and enhanced rates of breastfeeding. We find, however, that despite much interest in engaging with parents as full partners in the care of their baby, engaging fathers remains sub-optimal. Fathers typically describe the opportunity to bond with their babies, particularly skin-to-skin care, in glowing terms of gratitude, happiness and love. These sensations are underpinned by hormonal and neurobiological changes that take place in fathers when they care for their babies, as also happens with mothers. Fathers, however, are subject to different social expectations from mothers and this shapes how they respond to the situation and how neonatal staff treats them. Fathers are more likely to be considered responsible for earning, they are often considered to be less competent at caring than mothers and they are expected to be “the strong one”, providing support to mothers but not expecting it in return. Our review ends with 12 practical recommendations for neonatal teams to focus on: (1) assess the needs of mother and father individually, (2) consider individual needs and wants in family care plans, (3) ensure complete flexibility of access to the neonatal unit for fathers, (4) gear parenting education towards co-parenting, (5) actively promote father-baby bonding, (6) be attentive to fathers hiding their stress, (7) inform fathers directly not just via the mother, (8) facilitate peer-to-peer communication for fathers, (9) differentiate and analyse by gender in service evaluations, (10) train staff to work with fathers and to support co-parenting, (11) develop a father-friendly audit tool for neonatal units, and (12) organise an international consultation to update guidelines for neonatal care, including those of UNICEF.

Place, publisher, year, edition, pages
Elsevier, 2018
Keywords
Neonatal care, Fathers, Co-parenting, Bonding, Skin-to-skin, Dads
National Category
Nursing
Research subject
Nursing
Identifiers
urn:nbn:se:ltu:diva-71037 (URN)10.1016/j.jnn.2018.08.007 (DOI)2-s2.0-85052955914 (Scopus ID)
Note

Validerad;2018;Nivå 1;2018-12-06 (johcin)

Available from: 2018-09-30 Created: 2018-09-30 Last updated: 2019-03-27Bibliographically approved
Nilsson, Å., Lindberg, B., Söderberg, S. & Olsson, M. (2018). Meanings of participation in hospital care: as narrated by patients. European Journal for Person Centered Healthcare, 6(3), 431-437
Open this publication in new window or tab >>Meanings of participation in hospital care: as narrated by patients
2018 (English)In: European Journal for Person Centered Healthcare, ISSN 2052-5648, E-ISSN 2052-5656, Vol. 6, no 3, p. 431-437Article in journal (Refereed) Published
Abstract [en]

Objective: Patient participation is said to be an important factor for patients to experience satisfaction and quality with hospital care. Still, little is known about what participation actually means for patients in the specific context of hospital settings. Therefore, the aim of this study was to elucidate meanings of participation as narrated by patients.

Method: Narrative interviews were conducted during the Autumn of 2013 until the Spring of 2014 and then phenomenological hermeneutically interpreted. In this study, we suggest that the phenomenon of participation in hospital care is experienced by the patient when being a co-creator and seen as an important person in a trustful context.

Results: The results illustrate that an experience of an open, cooperative and coherent environment invites and contributes to participate despite being in a vulnerable situation. The study highlights the importance of responding to each patient as a person, who sometimes has a need to participate actively and sometimes wants to hand over and assume the role of patient in the hospital care setting.

Discussion: Meanings of participation among patients in hospital care can be understood as a phenomenon experienced when being an involved co-creator and seen as an important person in a trustful context. In this study, as well as in previous research it is obvious that participation in hospital care concerns more than being involved in decision-making and receiving information.

Place, publisher, year, edition, pages
The University of Buckingham Press Ltd, 2018
Keywords
Clinical communication, dignity, hospital care, lived experiences, narratives, nursing, patients, patient-clinician relationship, patient participation, patient satisfaction, person-centered healthcare, phenomenological hermeneutic interpretation, qualitative
National Category
Nursing
Research subject
Nursing
Identifiers
urn:nbn:se:ltu:diva-71036 (URN)10.5750/ejpch.v6i3.1521 (DOI)
Note

Validerad;2018;Nivå 1;2018-10-03 (marisr)

Available from: 2018-09-30 Created: 2018-09-30 Last updated: 2018-10-03Bibliographically approved
Nilsson, C., Lindberg, B., Skär, L. & Söderberg, S. (2016). Meanings of balance for people with long-term illnesses. British Journal of Community Nursing, 21(11), 563-567
Open this publication in new window or tab >>Meanings of balance for people with long-term illnesses
2016 (English)In: British Journal of Community Nursing, ISSN 1462-4753, E-ISSN 2052-2215, Vol. 21, no 11, p. 563-567Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to elucidate meanings of balance in everyday life for people with long-term illnesses living at home. People living with long-term illnesses are in need of help and support to manage their daily lives. Twelve adults with extensive needs for help and support were interviewed. A phenomenological hermeneutic interpretation was used to analyse the interview texts. The findings show that balance in everyday life for people with long-term illnesses means striving for independence through care and support in their surroundings. It was also important to be able to choose how their lives would be and to be with others who listened and understood them for who they are. By building a relationship with patients at an early stage of their illnesses, nursing staff have an opportunity to understand what people who are living at home with long-term illnesses need in order to achieve balance in their everyday lives.

National Category
Nursing
Research subject
Nursing
Identifiers
urn:nbn:se:ltu:diva-60192 (URN)10.12968/bjcn.2016.21.11.563 (DOI)27809585 (PubMedID)2-s2.0-84994689515 (Scopus ID)
Note

Validerad; 2016; Nivå 2; 2016-11-08 (andbra)

Available from: 2016-11-08 Created: 2016-11-08 Last updated: 2017-11-24Bibliographically approved
Andersson Grenholm, E., Söderström, P. & Lindberg, B. (2016). Providing Breastfeeding Support: Experiences from Child-HealthNurses. International Journal of Child Health and Nutrition, 5(4), 126-134
Open this publication in new window or tab >>Providing Breastfeeding Support: Experiences from Child-HealthNurses
2016 (English)In: International Journal of Child Health and Nutrition, ISSN 1929-4247, Vol. 5, no 4, p. 126-134Article in journal (Refereed) Published
Abstract [en]

Background: Breastfeeding problems are common during the early period but can often be prevented or overcome with adequate support. Child-health nurses meet almost all children during their first weeks of life and play an important role in promoting breastfeeding and in strengthening parents’ confidence and their belief in their own ability. It is, therefore, important to gain more knowledge about child-health nurses’ experiences. Objective: To describe child-health nurses’ experiences of providing breastfeeding support. Methods: This qualitative study is descriptive with an inductive approach. A purposive sample of eight child-health nurses recruited from district health care centers participated. Data were collected through focus group interviews and analyzed with content analysis. Results: Child-health nurses consider it to be important to provide early breastfeeding support and that early hospital discharge following birth can complicate breastfeeding. Furthermore, the introduction of infant formula and tiny tastes given to the baby can be a barrier to breastfeeding. Parents’ confidence had an effect on breastfeeding, and breastfeeding is promoted by confident parents. Trends and cultural differences have an influence on parents’ attitudes toward breastfeeding. Child-health nurses stated the importance of having a consensus breastfeeding policy. Conclusion and Recommendation: A number of factors affect breastfeeding, and breastfeeding support from child-health nurses is important in the early stages after birth. To conclude, the support must be individually tailored with a focus on the parents’ needs. There is a need for greater cooperation between the maternal care and child-health care staff in order to provide adequate and continuous breastfeeding support throughout the care chain.

Keywords
Breastfeeding, child-health nurse, child-health service, focus group interview, qualitative content analysis
National Category
Health Sciences Nursing
Research subject
Nursing
Identifiers
urn:nbn:se:ltu:diva-63319 (URN)10.6000/1929-4247.2016.05.04.1 (DOI)
Available from: 2017-05-11 Created: 2017-05-11 Last updated: 2017-11-24Bibliographically approved
Lindberg, B. & Söderberg, S. (2016). Standing on their own feet: Experiences of young people living with Type 1 diabetes when entering adulthood — A qualitative study (ed.). International Diabetes Nursing, 12(3), 79-85
Open this publication in new window or tab >>Standing on their own feet: Experiences of young people living with Type 1 diabetes when entering adulthood — A qualitative study
2016 (English)In: International Diabetes Nursing, ISSN 2057-3316, Vol. 12, no 3, p. 79-85Article in journal (Refereed) Published
Abstract [en]

Type 1 diabetes can complicate the lives of young people. The aim was to describe the experiences of young people living with Type 1 diabetes when entering adulthood. Nine young people were interviewed. The general principles of interpretative descriptions were used in the analysis. Results showed that young people with Type 1 diabetes lived a life like other young people, but they often had to face a lack of knowledge and understanding. Although they knew how to live, it was not easy to be in control. Even if they took responsibility for their illness, support was critically important. They did not think so much about how their illness might impact their future life. Overall, young people described their life situation positively and dealt with their diabetes naturally. To better support and facilitate the transition to adulthood, health care professionals who are engaged with young people living with Type 1 diabetes need to have better insight into how they experience their life.

National Category
Nursing
Research subject
Nursing
Identifiers
urn:nbn:se:ltu:diva-11942 (URN)10.1080/20573316.2016.1170406 (DOI)afc23ed1-a374-4a62-aaa6-6302294852de (Local ID)afc23ed1-a374-4a62-aaa6-6302294852de (Archive number)afc23ed1-a374-4a62-aaa6-6302294852de (OAI)
Note

Validerad; 2016; Nivå 1; 20160531 (andbra)

Available from: 2016-09-29 Created: 2016-09-29 Last updated: 2017-11-24Bibliographically approved
Lindberg, B. (2013). Access to videoconferencing in providing support to parents of preterm infants: Ascertaining parental views (ed.). Paper presented at . Journal of Neonatal Nursing, 19(5), 259-265
Open this publication in new window or tab >>Access to videoconferencing in providing support to parents of preterm infants: Ascertaining parental views
2013 (English)In: Journal of Neonatal Nursing, ISSN 1355-1841, E-ISSN 1878-089X, Vol. 19, no 5, p. 259-265Article in journal (Refereed) Published
Abstract [en]

Having continued hospital support, even after returning home, in the form of videoconferencing between their home and neonatal intensive care unit (NICU), is of great importance for parents of preterm born infants. It is essential to elicit parents' views before providing videoconferencing access to parents. Therefore, the aim of this study was to ascertain the views of parents of preterm infants toward the use of real-time videoconferencing between their home and the NICU. Twelve parents, who participated in the study, were interviewed. Thematic content analysis of their interview texts was carried out. The analysis revealed three categories: willing to try; addition to the conventional care; might facilitate taking the step to go home. The theme identified from content analysis was ‘grabbing the chance to get extra support’. Parents view videoconferencing facility as a possible chance to get extra support. It appears to be one among several other ways to support families after returning home with their preterm infants.

National Category
Nursing
Research subject
Nursing
Identifiers
urn:nbn:se:ltu:diva-9213 (URN)10.1016/j.jnn.2012.10.001 (DOI)2-s2.0-84882717550 (Scopus ID)7c63c645-93f7-4296-a227-f90e2dbebb9f (Local ID)7c63c645-93f7-4296-a227-f90e2dbebb9f (Archive number)7c63c645-93f7-4296-a227-f90e2dbebb9f (OAI)
Note
Validerad; 2013; 20121008 (birlin)Available from: 2016-09-29 Created: 2016-09-29 Last updated: 2018-07-10Bibliographically approved
Lindberg, B. (2013). E-hälsa: IKT som hjälpmedel i hemmet (ed.). In: (Ed.), Karin Jackson; Helena Wigert (Ed.), Familjecentrerad neonatalvård: (pp. 179-193). Paper presented at . Lund: Studentlitteratur AB
Open this publication in new window or tab >>E-hälsa: IKT som hjälpmedel i hemmet
2013 (Swedish)In: Familjecentrerad neonatalvård, Lund: Studentlitteratur AB, 2013, p. 179-193Chapter in book (Other (popular science, discussion, etc.))
Place, publisher, year, edition, pages
Lund: Studentlitteratur AB, 2013
National Category
Nursing
Research subject
Nursing
Identifiers
urn:nbn:se:ltu:diva-20478 (URN)55b6ba68-7bbd-4524-ac4b-5cee42f56af9 (Local ID)978-91-44-07462-7 (ISBN)55b6ba68-7bbd-4524-ac4b-5cee42f56af9 (Archive number)55b6ba68-7bbd-4524-ac4b-5cee42f56af9 (OAI)
Note
Godkänd; 2013; 20130131 (birlin)Available from: 2016-09-29 Created: 2016-09-29 Last updated: 2017-11-24Bibliographically approved
Lindberg, B., Nilsson, C., Wahlberg, D. Z., Söderberg, S. & Skär, L. (2013). Using information and communication technology in home care for communication between patients, family members, and healthcare professionals: A systematic review (ed.). International Journal of Telemedicine and Applications
Open this publication in new window or tab >>Using information and communication technology in home care for communication between patients, family members, and healthcare professionals: A systematic review
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2013 (English)In: International Journal of Telemedicine and Applications, ISSN 1687-6415, E-ISSN 1687-6423Article in journal (Refereed) Published
Abstract [en]

Introduction. Information and communication technology (ICT) are becoming a natural part in healthcare both for delivering and giving accessibility to healthcare for people with chronic illness living at home. Aim. The aim was to review existing studies describing the use of ICT in home care for communication between patients, family members, and healthcare professionals. Methods. A review of studies was conducted that identified 1,276 studies. A selection process and quality appraisal were conducted, which finally resulted in 107 studies. Results. The general results offer an overview of characteristics of studies describing the use of ICT applications in home care and are summarized in areas including study approach, quality appraisal, publications data, terminology used for defining the technology, and disease diagnosis. The specific results describe how communication with ICT was performed in home care and the benefits and drawbacks with the use of ICT. Results were predominated by positive responses in the use of ICT. Conclusion. The use of ICT applications in home care is an expanding research area, with a variety of ICT tools used that could increase accessibility to home care. Using ICT can lead to people living with chronic illnesses gaining control of their illness that promotes self-care.

National Category
Nursing
Research subject
Nursing
Identifiers
urn:nbn:se:ltu:diva-9651 (URN)10.1155/2013/461829 (DOI)23690763 (PubMedID)2-s2.0-84877311623 (Scopus ID)85158191-d0c7-4bc3-b2ce-cefd5f8862ac (Local ID)85158191-d0c7-4bc3-b2ce-cefd5f8862ac (Archive number)85158191-d0c7-4bc3-b2ce-cefd5f8862ac (OAI)
Note

Validerad; 2013; Bibliografisk uppgift: Article ID 461829; 20130206 (birlin)

Available from: 2016-09-29 Created: 2016-09-29 Last updated: 2018-07-10Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-7140-625x

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