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Lundström, U., Wahman, K., Seiger, Å., Grey, D., Isaksson, G. & Lilja, M. (2017). Participation in activities and secondary health complications among persons aging with traumatic spinal cord injury. Spinal Cord, 55(4), 367-372
Open this publication in new window or tab >>Participation in activities and secondary health complications among persons aging with traumatic spinal cord injury
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2017 (English)In: Spinal Cord, ISSN 1362-4393, E-ISSN 1476-5624, Vol. 55, no 4, p. 367-372Article in journal (Refereed) Published
Abstract [en]

STUDY DESIGN:

Cross-sectional study.

OBJECTIVES:

To describe participation in activities and explore the relationship with secondary complications among persons aging with a traumatic spinal cord injury (SCI).

SETTING:

A regional SCI outpatient center in Sweden.

METHODS:

Data were collected through a phone survey, which included 10 activities from the instrument PARTS/M-v3 (PARTicipation Survey/Mobility version-3) together with data from the participants' medical records. Cross-tabulation and χ2 were used for data analysis.

RESULTS:

In this study, 121 persons matched the inclusion criteria and the final study sample comprised 73 participants (60% response rate): 55 men and 18 women. Mean age was 63.7±9.4 years, and mean time since injury was 36.3±9.2 years. Regardless of duration of SCI, all 73 participated in dressing, bathing and leisure activities. Women reported better health than men. Particularly for those who lived 36-55 years after injury; increasing pain, fatigue, spasticity and decreased muscle strength were negatively affecting participation in activities, especially exercise and active recreation. Additionally, a need to save strength/energy was also a reason for not participating in the activities. Perceived future support and concerns in relation to personal assistance, assistive devices and rehabilitation was also reported.

CONCLUSION:

Increasing secondary health complications and a need to save strength/energy influenced participation in activities. Laws and/or governmental policies regarding personal assistance and assistive devices did not always support participation in activities. Interventions should aim to create a balance among activities in everyday life

Place, publisher, year, edition, pages
Nature Publishing Group, 2017
National Category
Occupational Therapy
Research subject
Occupational therapy
Identifiers
urn:nbn:se:ltu:diva-60564 (URN)10.1038/sc.2016.153 (DOI)000399431800007 ()27845357 (PubMedID)2-s2.0-84995513649 (Scopus ID)
Note

Validerad; 2017; Nivå 2; 2017-04-12 (andbra)

Available from: 2016-11-20 Created: 2016-11-20 Last updated: 2018-11-19Bibliographically approved
Lundström, U., Lilja, M. & Isaksson, G. (2017). "To Work Just Like Anyone Else": a narrative from a man aging with spinal cord injury. Healthcare, 5(4), Article ID 87.
Open this publication in new window or tab >>"To Work Just Like Anyone Else": a narrative from a man aging with spinal cord injury
2017 (English)In: Healthcare, E-ISSN 2227-9032, Vol. 5, no 4, article id 87Article in journal (Refereed) Published
Abstract [en]

People aging with spinal cord injury (SCI) develop medical problems commonly associated with the aging process at a younger age than the general population. However, research about how the life story changes and how meaning will be experienced in occupations is lacking. The aim was to describe and offer an explanation of how a man experienced meaning in everyday occupations while aging with an SCI. Four narrative interviews were performed over a four-year period, with a man in his fifties, who lived with SCI for 39 years. The narrative analysis generated an overall plot, named "To Work Just Like Anyone Else," and gives a picture of his experiences, thoughts, and reflections about meaning in occupations, from when he became injured to the present, and in relation to his future. His life story is characterized by secondary health complications, and his experiences of negotiating with the aging body and making choices to continue working. Further, how occupational risk factors, e.g., imbalance, alienation, and deprivation, occur as a result of lack of rehabilitation and support from social systems is addressed. Future research should explore how rehabilitation and social systems can support people aging with SCI to experience meaning in everyday occupations and to have balance in everyday life.

Place, publisher, year, edition, pages
MDPI, 2017
National Category
Occupational Therapy
Research subject
Occupational therapy
Identifiers
urn:nbn:se:ltu:diva-66568 (URN)10.3390/healthcare5040087 (DOI)29120355 (PubMedID)
Note

Validerad;2017;Nivå 2;2017-11-13 (svasva)

Available from: 2017-11-13 Created: 2017-11-13 Last updated: 2017-12-08Bibliographically approved
Lundström, U. (2015). Everday life while aging with a traumatic spinal cord injury (ed.). (Doctoral dissertation). Paper presented at . Luleå tekniska universitet
Open this publication in new window or tab >>Everday life while aging with a traumatic spinal cord injury
2015 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of this thesis was to develop knowledge of participation ineveryday life while aging with a traumatic spinal cord injury [SCI]. This thesis hadan explorative approach, with a mixed method design: two with a quantitativemethod and two with a qualitative method.In study 1, via a two-part postal survey, 97 participants with a traumatic SCIexplored and described their leisure repertoire and how it was related to theirinterests, performance, and well-being. The results showed that participants were mostly interested in, performed, and experienced well-being from, social and cultural activities. Gender, age, and time since injury were more closely related than the level of injury to interest, performance, well-being, and changed performance in the participants’ leisure repertoire.Study 2 was performed by narrative interviews with eight participants to gain anunderstanding of participation in occupations from persons aging with a traumatic SCI. The narrative analysis resulted in a description of how they acted to participate in occupations from soon after the injury until several decades later. The results showed that their ability to act and participate in occupations changed over time due to both personal and environmental factors, and that they were concerned about their future.Study 3 described and offered an explanation for how one man viewed meaning in his everyday life while aging with a traumatic SCI. A story emerged from thenarrative analysis, which illustrated the importance for the man to be a worker and how experiences of his aging body and secondary health complications [SHC] shattered the story. Our findings show how aging with a SCI influences a person’s experiences of different dimensions of meaning in occupations.Study 4 explored and described participation in activities and the frequency ofSHC when aging with a traumatic SCI. Register data were used for the 121 eligible participants, and 73 participants answered a phone survey. The distribution between men and women was 4:1, consistent with the overall prevalence for persons with SCI. The findings show that participation in activities e.g. exercise and active recreation changed in relation to time since injury. Women reported better general health than men; still SHC increased over time, and thereby negatively affected participation in activities.To conclude, this thesis contributes with knowledge of how aging with a traumatic SCI can be a complex daily struggle in order to know how to act and continue to participate in everyday life, especially when SHC increase over time. In addition, experiences of meaning in occupations changed and occupational risk factors such as imbalance, alienation and deprivation occurred as a result of, for example not receiving sufficient and appropriate support from the society. The findings have implications for lifelong rehabilitation and provide knowledge that can guide occupational therapists in their work in enabling possibilities to participate in occupations when aging with a SCI.

Place, publisher, year, edition, pages
Luleå tekniska universitet, 2015
Series
Doctoral thesis / Luleå University of Technology 1 jan 1997 → …, ISSN 1402-1544
National Category
Occupational Therapy
Research subject
Occupational therapy
Identifiers
urn:nbn:se:ltu:diva-17944 (URN)5f955975-f4a7-4566-85ff-4283a5ce5300 (Local ID)978-91-7583-282-1 (ISBN)978-91-7583-283-8 (ISBN)5f955975-f4a7-4566-85ff-4283a5ce5300 (Archive number)5f955975-f4a7-4566-85ff-4283a5ce5300 (OAI)
Note

Godkänd; 2015; 20150331 (ulrlun)

Available from: 2016-09-29 Created: 2016-09-29 Last updated: 2018-05-18Bibliographically approved
Lundström, U., Lilja, M., Gray, D. & Isaksson, G. (2015). Experiences of participation in everyday occupations among persons aging with a tetraplegia (ed.). Paper presented at . Disability and Rehabilitation, 37(11), 951-957
Open this publication in new window or tab >>Experiences of participation in everyday occupations among persons aging with a tetraplegia
2015 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 37, no 11, p. 951-957Article in journal (Refereed) Published
Abstract [en]

This study aimed to gain understanding of participation in everyday occupations through life stories of persons aging with a traumatic spinal cord injury (SCI). Method: A narrative method was used for data collection and a paradigmatic analysis was used to analyze data. Results: The analysis resulted in three themes that illustrate how the participants acted to participate in everyday occupations, how that changed over time, and some concerns about their future. The first theme illustrates how participants following SCI acted to become agents of their lives and participate in everyday occupations. The second theme illustrates how participants had to prioritize participation in meaningful occupations due to personal and environmental factors. The third theme shows how they had to try new strategies to continue participation in occupations, due to secondary health complications related to aging. Conclusions: This study captures how persons aging with tetraplegia acted to participate in everyday occupations from soon after the injury until several decades later. In addition, their ability to act and participate changed over time. Our findings provide knowledge that can guide clinicians in their work within this complex area of rehabilitation. Besides, it can also guide the work with policy recommendations for healthcare and social service systems.Implications for Rehabilitation

National Category
Other Health Sciences Occupational Therapy
Research subject
Health Science; Occupational therapy
Identifiers
urn:nbn:se:ltu:diva-11958 (URN)10.3109/09638288.2014.948139 (DOI)000353124600005 ()25098593 (PubMedID)2-s2.0-84928128455 (Scopus ID)b025764f-9440-4aa0-997a-37007bf8979f (Local ID)b025764f-9440-4aa0-997a-37007bf8979f (Archive number)b025764f-9440-4aa0-997a-37007bf8979f (OAI)
Note
Validerad; 2015; Nivå 2; 20140811 (andbra)Available from: 2016-09-29 Created: 2016-09-29 Last updated: 2018-07-10Bibliographically approved
Lundström, U., Lilja, M., Petersson, I., Lexell, J. & Isaksson, G. (2014). Leisure repertoire among persons with a spinal cord injury: Interests, performance, and well-being (ed.). Paper presented at . Journal of Spinal Cord Medicine (JSCM), 37(2), 186-192
Open this publication in new window or tab >>Leisure repertoire among persons with a spinal cord injury: Interests, performance, and well-being
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2014 (English)In: Journal of Spinal Cord Medicine (JSCM), ISSN 1079-0268, E-ISSN 2045-7723, Vol. 37, no 2, p. 186-192Article in journal (Refereed) Published
Abstract [en]

Objective: To explore and describe the leisure repertoire of persons with traumatic spinal cord injury (SCI) and how the repertoire is related to interest, performance, and well-being.Design: Cross-sectional study.Setting: A total of 97 persons with traumatic SCI were recruited from the non-profit national organization, RG Active Rehabilitation in Sweden.Outcome measure: Data were collected through a two-part postal survey. The first comprised of questions investigating socio-demographic variables and injury characteristics; the second part included an interest checklist with 20 areas of leisure activities.Results: The participants were mostly interested in, performed, and experienced well-being from social and culture activities and TV/DVD/movies. The areas of leisure activities in which they had most likely experienced changes after the SCI were outdoor activities, exercise, and gardening. Gender, age, and to some extent, time since injury were related to interest, performance, well-being, and changed performance.Conclusions: The results provided an explanation and limited description of a changed leisure repertoire among persons after a traumatic SCI. The study showed that gender, age, and time since injury were more closely related to the choice of leisure activities to include in the leisure repertoire than the level of injury. This knowledge can be of importance when professionals in the field of rehabilitation are planning and implementing interventions concerning leisure activities for persons with SCI.

National Category
Occupational Therapy
Research subject
Occupational therapy
Identifiers
urn:nbn:se:ltu:diva-16119 (URN)10.1179/2045772313Y.0000000103 (DOI)000337132700009 ()2-s2.0-84895541573 (Scopus ID)fb2b9e43-cdcb-45cc-8f55-dcbda3a4039f (Local ID)fb2b9e43-cdcb-45cc-8f55-dcbda3a4039f (Archive number)fb2b9e43-cdcb-45cc-8f55-dcbda3a4039f (OAI)
Note
Validerad; 2014; 20130709 (ulrlun)Available from: 2016-09-29 Created: 2016-09-29 Last updated: 2018-07-10Bibliographically approved
Lundström, U. (2005). Aktivitet: En beskrivning av hur vårdpersonal inom särskilt boende resonerar kring äldre personer och aktivitet utifrån ett rehabiliteringsperspektiv (ed.). Paper presented at Regional forskningskonferens : 21/09/2005 - 22/09/2005. Paper presented at Regional forskningskonferens : 21/09/2005 - 22/09/2005.
Open this publication in new window or tab >>Aktivitet: En beskrivning av hur vårdpersonal inom särskilt boende resonerar kring äldre personer och aktivitet utifrån ett rehabiliteringsperspektiv
2005 (Swedish)Conference paper, Published paper (Other (popular science, discussion, etc.))
National Category
Occupational Therapy
Research subject
Occupational therapy
Identifiers
urn:nbn:se:ltu:diva-41416 (URN)386d08b0-b183-4d69-9365-295c1969dd49 (Local ID)386d08b0-b183-4d69-9365-295c1969dd49 (Archive number)386d08b0-b183-4d69-9365-295c1969dd49 (OAI)
Conference
Regional forskningskonferens : 21/09/2005 - 22/09/2005
Note
Startdatum: 21/09/2005; Slutdatum: 22/09/2005; Roll: Föreläsare; Typ: Föreläsning / muntligt bidragAvailable from: 2016-10-03 Created: 2016-10-03 Last updated: 2018-05-18Bibliographically approved
Lundström, U. (2005). Aktivitet: Vårdbiträden resonerar kring äldre personer och aktivitet utifrån ett rehabiliteringsperspektiv (ed.). Paper presented at AT-forum 2005 : 21/04/2005 - 22/04/2005. Paper presented at AT-forum 2005 : 21/04/2005 - 22/04/2005.
Open this publication in new window or tab >>Aktivitet: Vårdbiträden resonerar kring äldre personer och aktivitet utifrån ett rehabiliteringsperspektiv
2005 (Swedish)Conference paper, Published paper (Other (popular science, discussion, etc.))
National Category
Occupational Therapy
Research subject
Occupational therapy
Identifiers
urn:nbn:se:ltu:diva-41808 (URN)e3ad9124-4456-4a0a-b99c-b322e51d2b73 (Local ID)e3ad9124-4456-4a0a-b99c-b322e51d2b73 (Archive number)e3ad9124-4456-4a0a-b99c-b322e51d2b73 (OAI)
Conference
AT-forum 2005 : 21/04/2005 - 22/04/2005
Note
Startdatum: 21/04/2005; Slutdatum: 22/04/2005; Roll: Föreläsare; Typ: Föreläsning / muntligt bidragAvailable from: 2016-10-03 Created: 2016-10-03 Last updated: 2018-05-18Bibliographically approved
Lundström, U. & Lilja, M. (2003). Äldres rehabilitering i särskilt boende: allt faller om den sista länken brister (ed.). Paper presented at . Stockholm: Socialstyrelsen
Open this publication in new window or tab >>Äldres rehabilitering i särskilt boende: allt faller om den sista länken brister
2003 (Swedish)Report (Other academic)
Place, publisher, year, edition, pages
Stockholm: Socialstyrelsen, 2003. p. 30
National Category
Occupational Therapy
Research subject
Occupational therapy
Identifiers
urn:nbn:se:ltu:diva-23925 (URN)8f191fd0-6020-11db-8cbe-000ea68e967b (Local ID)8f191fd0-6020-11db-8cbe-000ea68e967b (Archive number)8f191fd0-6020-11db-8cbe-000ea68e967b (OAI)
Note
Godkänd; 2003; 20061011 (andbra)Available from: 2016-09-29 Created: 2016-09-29 Last updated: 2018-05-18Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-0403-7463

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