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Spousal caregivers’ experiences of participation in everyday life when living in shifting contexts
Luleå University of Technology, Department of Health Sciences, Health and Rehabilitation.ORCID iD: 0000-0001-5523-104X
Luleå University of Technology, Department of Health Sciences, Health and Rehabilitation.ORCID iD: 0000-0001-9376-6053
Luleå University of Technology, Department of Health Sciences, Health and Rehabilitation.ORCID iD: 0000-0003-1026-5419
Luleå University of Technology, Department of Health Sciences, Health and Rehabilitation.ORCID iD: 0000-0001-9143-9235
2019 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 25, no 6, p. 457-465Article in journal (Refereed) Published
Abstract [en]

Background: To promote health and well-being, and to meet the desires of the growing elderly population to age in place, elderly spousal caregivers need adequate support such as respite care services. More knowledge is needed about elderly spousal caregivers’ experiences in relation to participation, which is an aspect of health that remains relatively unexplored for this group.

Aim: To explore and describe how elderly spousal caregivers experience and discuss participation in everyday life when living in shifting contexts due to the use of respite care.

Method: A grounded theory approach was used during data generation and analysis, which involved repeated focus group interviews with 12 spousal caregivers.

Results: Complexity and ambiguity was understood to imbue participation in everyday life. Being in charge of everyday life was challenging for spousal caregivers, and created a need for personal time. Respite care and home care service gave them time, although when interacting with social contexts other issues arose that influenced their own recovery.

Conclusions: A holistic ‘situation centered’ approach that focuses on the elderly couple’s life story and needs might capture a wider perspective and enable adequate support that influences their health, well-being, and participation in everyday life.

Place, publisher, year, edition, pages
Taylor & Francis, 2019. Vol. 25, no 6, p. 457-465
Keywords [en]
Aged, grounded theory, health, occupational therapy, rehabilitation, respite care
National Category
Occupational Therapy Physiotherapy
Research subject
Occupational therapy; Physiotherapy
Identifiers
URN: urn:nbn:se:ltu:diva-63988DOI: 10.1080/11038128.2017.1337810ISI: 000458235400006PubMedID: 28602117Scopus ID: 2-s2.0-85020672590OAI: oai:DiVA.org:ltu-63988DiVA, id: diva2:1109448
Note

Validerad;2019;Nivå 2;2019-03-11 (johcin)

Available from: 2017-06-14 Created: 2017-06-14 Last updated: 2019-04-16Bibliographically approved
In thesis
1. Older couples' participation in everyday life - when living in changing and shifting contexts
Open this publication in new window or tab >>Older couples' participation in everyday life - when living in changing and shifting contexts
2019 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of this thesis was to explore and develop an understanding about older couples’ participation in everyday life when living in shifting contexts. To achieve the aim, multiple perspectives were sought and a variety of qualitative methods were applied. Data were generated through interviews and observations with older couples and through focus groups with spousal caregivers, healthcare professionals, and other stakeholders and those data were analyzed through a constant comparative method, content analysis, and narrative analysis.

From the perspective of spousal caregivers, the findings in study I revealed the complexity and ambiguity that influences participation in everyday life. Being in charge of everyday life was described as challenging in many ways and produced a need for recovery and own time. Interacting with social contexts and being confident with the provided social services, such as respite care, was described as complex. The partner’s wellbeing and participation had an impact on the spousal caregiver’s own participation when living in shifting contexts. The perspective of healthcare professionals related to residential respite care was captured in study II. They described a broad and multifaceted picture of participation in everyday life and how promoting participation for older couples involved building trustworthy relationships, enabling meaningful activities, and arranging a comfortable shared environment. Both of the partners in the older couples needed to be considered by the professionals. In study III, the perspectives of the older couples were explored. In order to understand how meaning and togetherness is created in older couples’ everyday life, the focus has to be on the couples’ whole situation, including their relationship. The results showed that the couples strived to continue living their lives in togetherness. Strategies used by the couples were shifting responsibilities, doing more things together than before, using residential respite care, and rearranging social interactions with family and friends. Study IV offered the perspectives of multiple stakeholders. The findings suggested that the focus has to be on older couples through maintaining abilities and creating comfort. Support is also required from both an engaged civil society and healthcare professionals that are motivated and have both competence and time. Further, social services need to work together to ensure that resources are properly available.

Overall, this thesis contributes to a deeper understanding about older couples’ participation in everyday life when living in shifting contexts. The findings showed that acknowledging the couples’ relationship, seeing beyond the client and the spousal caregiver, was vital for supporting their participation. Furthermore, living in shifting contexts was multifaceted and the couples strived to continue living their lives in togetherness. The meaning that the change of life situation and context has on a couple’s participation in everyday life is important to consider when supporting aging in place. In light of demographic changes and challenges, bringing together the interests of older couples, professionals, systems of services, and civil society is vital for a sustainable future. Systems and situations that are both closely and remotely related to the older couples’ daily life need to be addressed in an ideal situation of aging in place. Knowledge from this thesis could be valuable for occupational therapists and other healthcare professionals, as well as social services that are supporting older couples to age in place. Consequently, this knowledge could be used to benefit the situations of older couples and their health and wellbeing when aging in place.

Place, publisher, year, edition, pages
Luleå: Luleå University of Technology, 2019
Series
Doctoral thesis / Luleå University of Technology 1 jan 1997 → …, ISSN 1402-1544
Keywords
aging in place, older adults, older couples, occupational therapy, participation, respite care, shifting contexts, togetherness, qualitative methodology
National Category
Occupational Therapy
Research subject
Occupational therapy
Identifiers
urn:nbn:se:ltu:diva-73420 (URN)978-91-7790-358-1 (ISBN)978-91-7790-359-8 (ISBN)
Public defence
2019-06-18, E632, Luleå, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2019-04-16 Created: 2019-04-16 Last updated: 2019-06-05Bibliographically approved

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Riekkola Carabante, JenniRutberg, StinaLilja, MargaretaIsaksson, Gunilla

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