Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Concepts of functioning and health important to people with systemic sclerosis: a qualitative study in four European countries
Department of Internal Medicine III, Division of Rheumatology, Medical University of Vienna.
Luleå University of Technology, Department of Health Sciences, Health and Rehab.
Internal Medicine and Rheumatology Department, Carol Davila University of Medicine and Pharmacy, Cantacuzino Hospital, Bucharest.
Department of Rheumatology and Institute for Physical Medicine, University Hospital Zurich.
Show others and affiliations
2011 (English)In: Annals of the Rheumatic Diseases, ISSN 0003-4967, E-ISSN 1468-2060, Vol. 70, no 6, p. 1074-1079Article in journal (Refereed) Published
Abstract [en]

Objective To describe the experiences of people with systemic sclerosis (SSc) in different European countries of functioning and health and to link these experiences to the WHO International Classification of Functioning, Disability and Health (ICF) to develop a common understanding from a bio-psycho-social perspective. Method A qualitative multicentre study with focus-group interviews was performed in four European countries: Austria, Romania, Sweden and Switzerland. The qualitative data analysis followed a modified form of 'meaning condensation' and the concepts that emerged in the analysis were linked to the ICF. Results 63 people with SSc participated in 13 focus groups. In total, 86 concepts were identified. 32 (37%) of these were linked to the ICF component body functions and structures, 21 (24%) to activities and participation, 26 (30%) to environmental factors, 6 (7%) to personal factors and 1 (1%) to the health condition itself. 19 concepts (22%) were identified in all four countries and included impaired hand function, household activities, paid work, drugs, climate and coldness, support from others and experiences with healthcare institutions, non-pharmacological treatment, social security and benefits. Conclusion Concepts identified in all four countries could be used for guiding clinical assessment, as well as interdisciplinary team care and rheumatological rehabilitation for patients with SSc. For a full understanding of the aspects of the disease that were most relevant to people with SSc, people with SSc from multiple countries needed to be involved.

Place, publisher, year, edition, pages
2011. Vol. 70, no 6, p. 1074-1079
National Category
Physiotherapy
Research subject
Physiotherapy
Identifiers
URN: urn:nbn:se:ltu:diva-13517DOI: 10.1136/ard.2010.148767ISI: 000290149900031Scopus ID: 2-s2.0-79955795750Local ID: cbe4cd68-9433-4daa-974f-5ef9b563886bOAI: oai:DiVA.org:ltu-13517DiVA, id: diva2:986470
Note
Validerad; 2011; 20110520 (andbra)Available from: 2016-09-29 Created: 2016-09-29 Last updated: 2018-07-10Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textScopus

Authority records BETA

Mattsson, MalinGard, Gunvor

Search in DiVA

By author/editor
Mattsson, MalinGard, Gunvor
By organisation
Health and Rehab
In the same journal
Annals of the Rheumatic Diseases
Physiotherapy

Search outside of DiVA

GoogleGoogle Scholar

doi
urn-nbn

Altmetric score

doi
urn-nbn
Total: 179 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf