Planned maintenance
A system upgrade is planned for 10/12-2024, at 12:00-13:00. During this time DiVA will be unavailable.
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Delaktighet i det dagliga livet för pojkar med Duchennes Muskeldystrofi: En litteraturstudie
2014 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
Abstract [en]

The purpose of this study was to describe the experience of participation in everyday life for boys with the muscle disease Duchenne Muscular Dystrophy.Onset symptoms of the disease include difficulty in walking which means that boys become wheelchair bound before the age of ten and the need for different habilitation will be considerable throughout the subject´s life. The study included eight boys between 7- 32 of age.The data consisted of blogs and biographies and was analysed using a qualitative analysis. The results were presented in three main categories: The Importance of Meaningful Activities, The Importance of Environment, and The Positive setting's importanceThe results showed that having meaningful activities were significant, the school and Internet/computer usage were activities that constituted the majority of their activities in daily lives. Participation in daily life was affected by the environment in which the result showed that there were both barriers and resources in the physical and social environment. The boys' positive attitude to have future dreams, motivation and experience of independence were important aspects that the boys had in common. The course of the disease meant that the boys at an early age became dependent on others and autonomy was restricted and increases with age. Occupational interventions increased the boys' independence. The study contributes to increasing knowledge and understanding of how the environment to enable the boys' participation in activities. The authors believe that more knowledge is needed to increase understanding of the boys´ participation and further research is needed.

Place, publisher, year, edition, pages
2014.
Keywords [en]
Medicine
Keywords [sv]
Medicin, duchennes, blogg, delaktighet
Identifiers
URN: urn:nbn:se:ltu:diva-42775Local ID: 0c08fcd6-5956-416c-83ae-40a05c423dddOAI: oai:DiVA.org:ltu-42775DiVA, id: diva2:1016001
Subject / course
Student thesis, at least 15 credits
Educational program
Occupational Therapist, bachelor’s level
Supervisors
Examiners
Note
Validerat; 20140617 (global_studentproject_submitter)Available from: 2016-10-04 Created: 2016-10-04Bibliographically approved

Open Access in DiVA

fulltext(241 kB)437 downloads
File information
File name FULLTEXT02.pdfFile size 241 kBChecksum SHA-512
7015c560cd2d2a7fa8a21a59dd9b74a68618e9d9c9ce4271bddc6f5d3816811d5906b4293fed1eb5dce3b303496433f80eb92ec52839b528276c10cccc01710b
Type fulltextMimetype application/pdf

Search outside of DiVA

GoogleGoogle Scholar
Total: 437 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

urn-nbn

Altmetric score

urn-nbn
Total: 126 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf