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Participation in activities and secondary health complications among persons aging with traumatic spinal cord injury
Luleå University of Technology, Department of Health Sciences, Health and Rehab.
Division of Physiotherapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet.
Division of Neurodegeneration, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet.
Disability and Community Participation Research Office (DACPRO), Department of Neurology, Washington University School of Medicine, St Louis, MO.
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Number of Authors: 6
2016 (English)In: Spinal Cord, ISSN 1362-4393, E-ISSN 1476-5624Article in journal (Refereed) Epub ahead of print
Abstract [en]


Cross-sectional study.


To describe participation in activities and explore the relationship with secondary complications among persons aging with a traumatic spinal cord injury (SCI).


A regional SCI outpatient center in Sweden.


Data were collected through a phone survey, which included 10 activities from the instrument PARTS/M-v3 (PARTicipation Survey/Mobility version-3) together with data from the participants' medical records. Cross-tabulation and χ2 were used for data analysis.


In this study, 121 persons matched the inclusion criteria and the final study sample comprised 73 participants (60% response rate): 55 men and 18 women. Mean age was 63.7±9.4 years, and mean time since injury was 36.3±9.2 years. Regardless of duration of SCI, all 73 participated in dressing, bathing and leisure activities. Women reported better health than men. Particularly for those who lived 36-55 years after injury; increasing pain, fatigue, spasticity and decreased muscle strength were negatively affecting participation in activities, especially exercise and active recreation. Additionally, a need to save strength/energy was also a reason for not participating in the activities. Perceived future support and concerns in relation to personal assistance, assistive devices and rehabilitation was also reported.


Increasing secondary health complications and a need to save strength/energy influenced participation in activities. Laws and/or governmental policies regarding personal assistance and assistive devices did not always support participation in activities. Interventions should aim to create a balance among activities in everyday life

Place, publisher, year, edition, pages
National Category
Occupational Therapy
Research subject
Occupational therapy
URN: urn:nbn:se:ltu:diva-60564DOI: 10.1038/sc.2016.153PubMedID: 27845357ScopusID: 2-s2.0-84995513649OAI: diva2:1048054
Available from: 2016-11-20 Created: 2016-11-20 Last updated: 2016-12-04

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Lundström, UlricaIsaksson, GunillaLilja, Margareta
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