Developing and using a structured, conversation-based intervention for clarifying values and preferences for end-of-life in the advance care planning-naïve Swedish context: Action research within the DöBra research program
2022 (English)In: Death Studies, ISSN 0748-1187, E-ISSN 1091-7683, Vol. 46, no 4, p. 803-815Article in journal (Refereed) Published
Abstract [en]
Sweden has no systematic advance care planning (ACP), nor legal recognition of end-of-life proxies. We describe our experiences and reflections from a participatory action research process, aiming at developing and initially using a conversation-based, structured ACP approach among community-dwelling, older adults in Sweden. Eco-mapping and DöBra cards were used with 65 people to catalyze discussions on preferences for the end-of-life. We found great individual variation in both Eco-map depictions of social networks and prioritization of the 37 DöBra card items. The DöBra cards were concluded to be a viable tool for stimulating person-centered conversations on preferences for future end-of-life care.
Place, publisher, year, edition, pages
Taylor & Francis, 2022. Vol. 46, no 4, p. 803-815
National Category
Nursing
Research subject
Nursing
Identifiers
URN: urn:nbn:se:ltu:diva-77297DOI: 10.1080/07481187.2019.1701145ISI: 000503630200001PubMedID: 31858889Scopus ID: 2-s2.0-85076886355OAI: oai:DiVA.org:ltu-77297DiVA, id: diva2:1382920
Funder
Forte, Swedish Research Council for Health, Working Life and WelfareVårdal Foundation
Note
Validerad;2022;Nivå 2;2022-04-19 (sofila);
Funder: Doctoral School for Health Care Sciences, Karolinska Institutet; Göteborg Center for Person-Centered care (GPCC); Strategic Research Area Health Care Sciences (SFO-V), Karolinska Institutet/Umeå University
2020-01-072020-01-072022-04-19Bibliographically approved