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Developing and using a structured, conversation-based intervention for clarifying values and preferences for end-of-life in the advance care planning-naïve Swedish context: Action research within the DöBra research program
Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden; Center for Rural Medicine (GMC), Storuman, Sweden; Stockholm Health Care Services (SLSO), Stockholm country council (SLL), Stockholm, Sweden; School of Health Sciences, University of Southampton, Southampton, UK.
Luleå University of Technology, Department of Health Sciences, Nursing Care. Luleå University of Technology, Department of Health, Learning and Technology, Nursing and Medical Technology. Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden.ORCID iD: 0000-0002-0050-4853
Institute for Palliative Medicine, San Diego Hospice, San Diego, California, USA.
Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden; Department of Nursing, Umeå University, Umeå, Sweden.
2022 (English)In: Death Studies, ISSN 0748-1187, E-ISSN 1091-7683, Vol. 46, no 4, p. 803-815Article in journal (Refereed) Published
Abstract [en]

Sweden has no systematic advance care planning (ACP), nor legal recognition of end-of-life proxies. We describe our experiences and reflections from a participatory action research process, aiming at developing and initially using a conversation-based, structured ACP approach among community-dwelling, older adults in Sweden. Eco-mapping and DöBra cards were used with 65 people to catalyze discussions on preferences for the end-of-life. We found great individual variation in both Eco-map depictions of social networks and prioritization of the 37 DöBra card items. The DöBra cards were concluded to be a viable tool for stimulating person-centered conversations on preferences for future end-of-life care.

Place, publisher, year, edition, pages
Taylor & Francis, 2022. Vol. 46, no 4, p. 803-815
National Category
Nursing
Research subject
Nursing
Identifiers
URN: urn:nbn:se:ltu:diva-77297DOI: 10.1080/07481187.2019.1701145ISI: 000503630200001PubMedID: 31858889Scopus ID: 2-s2.0-85076886355OAI: oai:DiVA.org:ltu-77297DiVA, id: diva2:1382920
Funder
Forte, Swedish Research Council for Health, Working Life and WelfareVårdal Foundation
Note

Validerad;2022;Nivå 2;2022-04-19 (sofila);

Funder: Doctoral School for Health Care Sciences, Karolinska Institutet; Göteborg Center for Person-Centered care (GPCC); Strategic Research Area Health Care Sciences (SFO-V), Karolinska Institutet/Umeå University

Available from: 2020-01-07 Created: 2020-01-07 Last updated: 2022-04-19Bibliographically approved

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Eneslätt, Malin

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