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Work and everyday life in a digitalized time: Experiences of people with subjective cognitive difficulties related to neurological disorders
Luleå University of Technology, Department of Health, Learning and Technology, Health, Medicine and Rehabilitation.ORCID iD: 0000-0001-5242-0099
Luleå University of Technology, Department of Health, Learning and Technology, Health, Medicine and Rehabilitation.ORCID iD: 0000-0003-0746-9365
Department of Health Sciences, Lund University, Lund, Sweden; Department of Neurology and Rehabilitation Medicine, Skåne University Hospital, Lund-Malmö, Sweden.
Luleå University of Technology, Department of Health, Learning and Technology, Health, Medicine and Rehabilitation.ORCID iD: 0000-0002-1127-1178
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2021 (English)In: PLOS ONE, E-ISSN 1932-6203, Vol. 16, no 11, article id e0260013Article in journal (Refereed) Published
Abstract [en]

Introduction: Digitalization has changed working life and increased cognitive demands on employees in general. Nevertheless, the consequences for employees with cognitive impairments and subjective cognitive difficulties are to a large extent unexplored. The aim of this study was to explore and describe how employees with subjective cognitive difficulties who are performing digital work tasks experience their vocational situation and how this situation influences their everyday life.

Methods: A qualitative, descriptive, multiple-case study was designed. Self-reports, assessments and qualitative interviews were used to collect data from the seven participants with neurological disorders. The data were analysed using pattern matching.

Findings: The analysed data formed four categories conceptualized as "Working to my full potential", "Working, but it is largely up to me", "Working at the expense of everyday life" and "Working without known difficulties", and these categories included one to four subcategories.

Conclusion: Managing subjective cognitive difficulties in vocational situations and everyday life was challenging in a digitalized working life for participants with neurological disorders. To provide equal access to preventive measures and rehabilitation and a sustainable working life, it is important to investigate the influence of subjective cognitive difficulties systematically on work, everyday life and management strategies in people with neurological disorders in digitalized work.

Place, publisher, year, edition, pages
PLOS , 2021. Vol. 16, no 11, article id e0260013
National Category
Occupational Therapy
Research subject
Occupational therapy
Identifiers
URN: urn:nbn:se:ltu:diva-87997DOI: 10.1371/journal.pone.0260013ISI: 000755305800084PubMedID: 34780560Scopus ID: 2-s2.0-85119329450OAI: oai:DiVA.org:ltu-87997DiVA, id: diva2:1613798
Note

Validerad;2021;Nivå 2;2021-11-23 (johcin)

Available from: 2021-11-23 Created: 2021-11-23 Last updated: 2024-09-10Bibliographically approved
In thesis
1. Promoting a Sustainable Digital Work Life for People with Cognitive Difficulties
Open this publication in new window or tab >>Promoting a Sustainable Digital Work Life for People with Cognitive Difficulties
2024 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The digitalization has changed the work life and created new cognitive demands that can be challenging to manage in digital work and everyday life for people with cognitive difficulties related to neurological disorders. Nevertheless, the consequences of these changes are largely unexplored. Thus, the overall aim of this thesis is to enhance knowledge of how people with cognitive difficulties experience digital work and other occupations in everyday life, and how to promote a sustainable digital work life.

The thesis comprises four qualitative studies. Study I explored and described how people with cognitive difficulties engaged in digital work, experienced their vocational situation and how it influenced their everyday life. This study was designed as a qualitative, descriptive, multiple case study. Data were collected through semi-structured interviews, self-reports and assessments from seven participants with neurological disorders and analysed using pattern matching. The findings suggest that performing digital work was cognitively demanding and influenced engagement in other valuable occupations. Work-related obligations were prioritized over other occupations in everyday life. Additionally, digital work was facilitated by support from employers and family, as well as by using self-initiated management strategies in challenging situations. 

Study II described how people with cognitive difficulties due to neurological disorders experienced their use of self-initiated strategies to manage digitalized work and other occupations in everyday life. Eleven participants participated in qualitative interviews, supported by a dialogue support tool. The findings of the qualitative content analysis imply that self-initiated management strategies were often crucial for managing challenging situations in digital work and to uphold engagement in occupations outside work. Having an ability to self-evaluate and reflect upon the use of strategies was necessary for a conscious, flexible and effective use. 

Study III described employer representatives’ experiences of work environment management focusing on employees with cognitive difficulties working in a digital environment. Focus group discussions with six employer representatives were utilised for data collection. The focus group analysis indicated that aligning the work abilities of employees with cognitive difficulties to the evolving cognitive demands of digital work, was a continuous process. Given the dynamic nature of both employee’s abilities and work demands, fostering a trustful relationship and collaboration with the employee was crucial. This ongoing process required knowledge of digital technologies, the impact of cognitive difficulties on work ability and support from and collaboration with other professionals with related expertise. 

Study IV, explored and described how an internet-based occupational therapy intervention can support self-management in people with cognitive difficulties performing digital work and other occupations in everyday life. The study was designed as a qualitative, descriptive, case study. Data were collected at three occasions from four people with neurological disorders participating in the intervention ”Strategies for Empowering activities in Everyday life” [SEE 2.0.]. Data gathered through semi-structured interviews, self-reports and assessments were analysed using pattern matching. The findings suggest that SEE 2.0 has the potential to support the development of self-management and initiate a process of change in people with cognitive difficulties, thus having the possibility to facilitate a sustainable digital work and everyday life. 

The enhanced understanding derived from this thesis can be used to develop vocational rehabilitation for people with cognitive difficulties in digital work. Taking a wider approach when evaluating and identifying cognitive difficulties and considering work and other occupations as an entirety rather than separate parts, is vital. This to facilitate sustained engagement in digital work and a balanced everyday life. It is also essential to have continuous supportive collaboration between employees and employers, as abilities and demands are in constant interaction and change in digital work. Finally, the thesis emphasizes the importance of utilising each person's own resources and strategies to empower self-management, to promote a sustainable digital work life.

Place, publisher, year, edition, pages
Luleå: Luleå University of Technology, 2024
Series
Doctoral thesis / Luleå University of Technology 1 jan 1997 → …, ISSN 1402-1544
Keywords
COVID-19, daily activities, human resources, internet-based interventions, managers, multiple sclerosis, occupations, occupational therapy, Parkinson´s disease, rehabilitation, stroke, sustainable work, vocational rehabilitation
National Category
Occupational Therapy
Research subject
Occupational Therapy
Identifiers
urn:nbn:se:ltu:diva-109796 (URN)978-91-8048-628-6 (ISBN)978-91-8048-629-3 (ISBN)
Public defence
2024-11-07, A109, Luleå University of Technology, Luleå, 09:00 (Swedish)
Opponent
Supervisors
Funder
Swedish Association of Persons with Neurological Disabilities
Available from: 2024-09-10 Created: 2024-09-10 Last updated: 2024-10-17Bibliographically approved

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Lindberg, MonikaRanner, MariaJacobsson, LarsLarsson-Lund, Maria

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