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How do community based dementia friendly initiatives work for people with dementia and their caregivers, and why?: A rapid realist review
Radboud Institute for Health Sciences, Scientific Center for Quality of Healthcare (IQ Healthcare), Radboud University Mmedical Center, Nijmegen, The Netherlands; Radboud Alzheimer Center, Radboud University Medical Center, Nijmegen, The Netherlands.
Academy of Occupational Therapy, Research Centre Assistive Technology in Care, Zuyd University of Applied Sciences, Heerlen, The Netherlands.
Academy of Occupational Therapy, Research Centre Assistive Technology in Care, Zuyd University of Applied Sciences, Heerlen, The Netherlands.
Luleå University of Technology, Department of Health, Learning and Technology, Health, Medicine and Rehabilitation. Academy of Occupational Therapy, Research Centre Assistive Technology in Care, Zuyd University of Applied Sciences, Heerlen, The Netherlands; Department of Occupational Science & Occupational Therapy, University College Cork, Cork, Ireland.
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2022 (English)In: International Journal of Geriatric Psychiatry, ISSN 0885-6230, E-ISSN 1099-1166, Vol. 37, no 2Article in journal (Refereed) Published
Abstract [en]

Objectives To describe and explain the outcomes of community dementia friendly initiatives (DFIs) for people with dementia and their caregivers to inform the development and tailoring of DFIs. Methods Literature searches on DFIs were performed through two systematic online database searches of PubMed, Embase, ASSIA, CINAHL and Google scholar. Papers were only included if they evaluated outcomes using empirical data from people with dementia or caregivers. Data collection and analysis were guided by the categorization in the DEM-FACT taxonomy and RAMESES guidelines for realist reviews. Results Of 7154 records identified, 22 papers were included with qualitative, mixed method and quantitative study designs. The synthesis led to a description of programme theories addressing caring, stimulating and activating communities. Outcomes for people with dementia and caregivers included having contact with others, enjoyment and decrease of stress and, lastly, support. This synthesis also indicated how people with dementia participated in a specific role in DFIs, such as patient, team member or active citizen. Conclusions DFIs generate different outcomes for people with dementia and caregivers, depending on the kind of initiative and the specific role for people with dementia. These findings could be a catalyst for initiation and further development of DFIs in a dementia friendly community (DFC). This draws attention to the multiple aspects of DFCs and supports reflection on their essential principles.

Place, publisher, year, edition, pages
John Wiley & Sons, 2022. Vol. 37, no 2
Keywords [en]
caregivers, dementia, dementia friendly communities, dementia friendly initiatives, outcomes, realist review, social participation
National Category
Nursing
Research subject
Occupational therapy
Identifiers
URN: urn:nbn:se:ltu:diva-88306DOI: 10.1002/gps.5662ISI: 000726775400001PubMedID: 34825742Scopus ID: 2-s2.0-85120536955OAI: oai:DiVA.org:ltu-88306DiVA, id: diva2:1619202
Note

Validerad;2022;Nivå 2;2022-03-01 (joosat);

Funder: Netherlands Organization for Health Research and Development

Available from: 2021-12-13 Created: 2021-12-13 Last updated: 2022-03-04Bibliographically approved

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Jansens, Rianne

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