Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Uncertainty and opportunities in patients with established eystemic Lupus Erythematosus: A qualitative study
Luleå University of Technology, Department of Health Sciences, Health and Rehab.
Department of Rheumatology, Sunderby Hospital.
Division of Rheumatology, Department of Internal Medicine III Medical University of Vienna and Division of Occupational Therapy, Department of Health, University of Applied Sciences - FH Campus Wien.
Luleå University of Technology, Department of Health Sciences, Health and Rehab.ORCID iD: 0000-0001-6975-8344
Show others and affiliations
2012 (Swedish)In: Musculoskeletal Care, ISSN 1478-2189, E-ISSN 1557-0681, Vol. 10, no 1, p. 1-12Article in journal (Refereed) Published
Abstract [en]

Systemic lupus erythematosus (SLE) is a chronic disease which can affect any organ, and the impact of the condition will affect each person differently. There are few qualitative studies including the experiences of both women and men with a diagnosis of SLE corresponding to the American College of Rheumatology (ACR) criteria where both negative and positive impacts of the disease have been presented. Purpose: The aim was to describe how patients with established SLE experience their illness in everyday life, including both negative and positive aspects. Method: Four focus group interviews were conducted with 16 women and three men with SLE according to ACR criteria, with varied disease activity and no or little organ damage. The interviews were tape recorded, transcribed verbatim and analysed using qualitative content analysis. Results: Two themes emerged: multifaceted uncertainty contained the categories 'an unreliable body', 'obtrusive pain and incomprehensible fatigue', 'mood changes and worries', 'reliance on medication and health care'; Focus on health and opportunities included 'learning process implying personal strength', 'limitations and possibilities in activities and work', 'a challenge to explain and receive support' and 'living an ordinary life incorporating meaningful occupations'. Conclusions: While we expected to find a mainly negative impact, positive aspects were also described. Our findings were complex and showed that patients with established SLE can experience both uncertainty and opportunities. This highlights the importance for healthcare professionals of gaining a better understanding of patients' uncertainty, to enable them to support patients, allowing them to focus on health and opportunities. Measurement instruments that capture different aspects of uncertainty and opportunities needs to be developed.

Place, publisher, year, edition, pages
2012. Vol. 10, no 1, p. 1-12
National Category
Physiotherapy
Research subject
Physiotherapy
Identifiers
URN: urn:nbn:se:ltu:diva-6163DOI: 10.1002/msc.220PubMedID: 22009870Scopus ID: 2-s2.0-84857372763Local ID: 45e995a9-293b-4e78-b012-8b2894dc1ea6OAI: oai:DiVA.org:ltu-6163DiVA, id: diva2:979040
Note
Validerad; 2012; 20111027 (andbra)Available from: 2016-09-29 Created: 2016-09-29 Last updated: 2018-07-10Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMedScopus

Authority records BETA

Mattsson, MalinGard, Gunvor

Search in DiVA

By author/editor
Mattsson, MalinGard, Gunvor
By organisation
Health and Rehab
In the same journal
Musculoskeletal Care
Physiotherapy

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 65 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf