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Stories about life narrated by people with Alzheimer's disease
Luleå University of Technology, Department of Health Sciences, Nursing Care.
Luleå University of Technology, Department of Health Sciences, Nursing Care.ORCID iD: 0000-0001-7830-8791
County Council of Norrbotten, Department of Research and Development.ORCID iD: 0000-0001-5953-8970
2014 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 70, no 12, p. 2791-2799Article in journal (Refereed) Published
Abstract [en]

AimTo explore how people with Alzheimer's disease present their life story.BackgroundLife story work is a key concept in a person-centred care. An important aspect in understanding the subjective experience and supporting the identity of people with dementia is to listen to their life stories.DesignA narrative design with interviews was used.MethodNine participants with Alzheimer's disease were encouraged to tell about their lives from childhood, adult life, to present life and about their thoughts on the future. The interviews were conducted between September 2010–March 2011 in the participants' homes, with their spouses present and were analysed with a method for analysis of narratives.FindingsContentment, Connectedness, Self-reliance and Personal growth were identified as core dimensions in the participants' life stories and shown like threads throughout life, from childhood, adult life to present life. All participants expressed an overall contentment with life, and connectedness was related to their relation with significant persons and to be included in the local community. Self-reliance was expressed as a strong confidence in the own ability and an overall curiosity throughout life as a sustained quest for personal growth.ConclusionsIt is important for healthcare professionals, who work with people with dementia, to understand that people with Alzheimer's disease can maintain an overall trusting and hopeful approach to life. It is also important to use life story work to enhance feelings of being connected to the world and thereby support their identity and sense of self.

Place, publisher, year, edition, pages
2014. Vol. 70, no 12, p. 2791-2799
National Category
Nursing
Research subject
Nursing
Identifiers
URN: urn:nbn:se:ltu:diva-8084DOI: 10.1111/jan.12429ISI: 000344851300010PubMedID: 24766325Scopus ID: 2-s2.0-84909644410Local ID: 6862ae57-3691-4a4c-ad83-fed3cd4366c7OAI: oai:DiVA.org:ltu-8084DiVA, id: diva2:980974
Note
Validerad; 2014; 20140502 (andbra)Available from: 2016-09-29 Created: 2016-09-29 Last updated: 2018-07-10Bibliographically approved

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Karlsson, EvaSävenstedt, StefanAxelsson, KarinZingmark, Karin

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