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  • 1.
    Andersson, Lena
    et al.
    Department of Geriatrics, Piteå Älvdal Hospital.
    Burman, Marie
    Department of Orthopaedics, Piteå älvdal Hospital.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Experiences of caretime during hospitalization in a medical ward: older patients' perspective2011In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 25, no 4, 646-652 p.Article in journal (Refereed)
    Abstract [en]

    he population is ageing the world over, and there is an increasing prevalence of chronic illness and complex conditions. Older people are at greater risk of having several complications than the general population, leading to more time spent in hospital and an increased risk of readmission. The most specific need of older patients is often the multiple need of care. The aim of this study was to describe older patients’ experiences of caretime during a hospitalization in a medical ward. Data were collected with semi-structured interviews with nine older patients, and analysed using qualitative thematic content analysis. The analysis resulted in two themes and five categories. The results show that caretime during hospitalization includes a lot of waiting and that patients manage the waiting in different ways. The results also point out the importance of patients developing good relationships with professionals since good relations creates feelings of security and can reduce anxiety and fear during a hospital stay. The patients pointed out the importance of being more involved in their own care and asked for more detailed information about the hospital stay. The results revealed that information makes patients’ more secure and safe during a hospitalization and makes them participate and affect their own care and treatment more.

  • 2.
    Gyllensten, Amanda Lundvik
    et al.
    Lund University, Department of Physical Therapy.
    Skär, Lisa
    Miller, Michael
    Department of Clinical Sciences, Division of Rehabilitation Medicine, Lund university.
    Gard, Gunvor
    Luleå University of Technology, Department of Health Sciences, Health and Rehab.
    Embodied identity: a deeper understanding of body awareness2010In: Physiotherapy Theory and Practice, ISSN 0959-3985, E-ISSN 1532-5040, Vol. 26, no 7, 439-446 p.Article in journal (Refereed)
    Abstract [en]

    The aims of this study were to explore and generate an understanding of the meaning of body awareness through explanations of the experience of body awareness given by professionals and patients in psychiatric rehabilitation. A total of 20 strategically selected healthy informants were interviewed individually and in groups. Thirteen previous interviews with physiotherapists and 11 previous interviews with patients in psychiatric rehabilitation, describing their experiences of body awareness therapy and its effects were reanalyzed and included in the data for this study; in all 44 informants were included. Grounded theory methods guided the data construction and analysis. A theoretical understanding was conceptualised from which a core category of body awareness emerged: the embodied identity. This core category was related to two categories: living in the body and living in relation to others and in society. The subcategory "living in the body" was conceived as an important aspect to become more aware of the body and to experience oneself fromwithin in order to recognize one's needs. A key point was the fact that bodily experiences always exists in the present moment. The experience of the body, the balance, and stability of the physical self were basic experiences that were connected to the conception of well-being and control. To understand one's emotions and needs through the awareness of the body were understood as the base for self-confidence, trust in one-self, and the ability to take care of oneself and one's needs physically and mentally. The subcategory "living in relation to others and in society" was conceived as an important aspect for the embodied self to interact with others and for societal participation. Working with the body in physiotherapy practice should include an understanding that body awareness is inseparable from the identity and may have an impact on the health of the individual. This implies that interventions to address problems in body awareness should be integrated into physiotherapy practice.

  • 3.
    Isaksson, Gunilla
    et al.
    Luleå University of Technology, Department of Health Sciences, Health and Rehab.
    Josefsson, Staffan
    Neurotec Department, Division of Occupational Therapy, Karolinska Institute, Huddinge.
    Lexell, Jan
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    To regain participation in occupations through human encounters: narratives from women with spinal cord injury2007In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 29, no 22, 1679-1688 p.Article in journal (Refereed)
    Abstract [en]

    Purpose. To gain an understanding of how women with spinal cord injury (SCI) experienced human encounters in occupations and how these influenced their participation. Method. The data were collected through two or three in-depth interviews with 13 women (age 25 - 61 years) with SCI. Data analysis was carried out by using a paradigmatic analysis of narrative data, followed by an interpretation based on a narrative theory. Results. The results showed a complexity where the women's experiences and acting in human encounters changed over time. In these human encounters the women struggled with conflicts, supported other persons that were insecure and revaluated their apprehension about persons in their social network. These multidimensional human encounters thereby enabled them to regain participation in occupations. Conclusions. This shows that human encounters are important for persons with disabilities so they can restructure their occupational identity and their needs for participation in occupations. The study also showed that the use of narratives as a tool within rehabilitation could lead to an increased understanding of the subjective changes that occur over time for a person with a disability

  • 4.
    Isaksson, Gunilla
    et al.
    Luleå University of Technology, Department of Health Sciences, Health and Rehab.
    Josephsson, Staffan
    Karolinska institute, Neurobiology Care Sciences and Society, Division of Occupational Therapy.
    Lexell, Jan
    Luleå University of Technology, Department of Health Sciences, Medical Science.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Men's experiences of giving and taking social support after their wife's spinal cord injury2008In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 15, no 4, 236-246 p.Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to gain an understanding of how men living with women with spinal cord injury (SCI) experienced and acted when they were giving and taking social support to and from their wives and other persons in their social network. Another aim was to give some possible explanations of the complex process of change that they went through. Data were collected through in-depth interviews with four men and field notes. To describe the men's subjective experiences and the process of change, a narrative approach inspired by Polkinghorne was used. The analyses resulted in one story that included the four men's experiences and action. The story showed that when the men went through a process of change, they used and needed both emotional and practical support to handle their new life situation. Furthermore, the men's experiences and action against social support changed over time. This indicated that, through narratives from spouses, professionals within rehabilitation could understand the process of change they went through after their partner's sudden injury, and support them to find strategies to handle their changed life situation. To give some possible explanations for the men's experiences and action during the process of change, the findings are discussed in relation to theories concerning adaptation and coping

  • 5.
    Isaksson, Gunilla
    et al.
    Luleå University of Technology, Department of Health Sciences, Health and Rehab.
    Josephsson, Staffan
    Karolinska institutet, Sektionen för arbetsterapi.
    Lexell, Jan
    Luleå University of Technology, Department of Health Sciences.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    To regain participation in occupations through human encounters: narratives from women with spinal cord injury2008Conference paper (Other academic)
  • 6.
    Isaksson, Gunilla
    et al.
    Luleå University of Technology, Department of Health Sciences, Health and Rehab.
    Lexell, Jan
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Social support provides motivation and ability to participate in occupation2007In: OTJR (Thorofare, N.J.), ISSN 1539-4492, E-ISSN 1938-2383, Vol. 27, no 1, 23-30 p.Article in journal (Refereed)
    Abstract [en]

    In this study, a qualitative perspective of how 13 women (aged 25 to 61 years) with spinal cord injury perceive the importance of social support for their participation in occupation is presented. The data were collected through repeated in-depth interviews and field notes, and the analysis used a grounded theory approach. The women needed both emotional and practical support, which was important in a time perspective and motivated them to participate in occupation. The women needed to receive support soon after the injury, but after a period of time they needed to give and receive support in a reciprocal fashion. Social support is therefore an effective rehabilitation strategy that can motivate people with disabilities to participate in meaningful occupation. The importance of social support for a person's motivation and ability to participate in occupation expands our knowledge of the relationship between individuals, their social environment, and occupation.

  • 7.
    Isaksson, Gunilla
    et al.
    Luleå University of Technology, Department of Health Sciences, Health and Rehab.
    Lexell, Jan
    Luleå University of Technology, Department of Health Sciences, Health and Rehab.
    Skär, Lisa
    Josephsson, Staffan
    Institutionen Neurotec, Sektionen för arbetsterapi, Karolinska institutet.
    Projekt: Det sociala nätverkets betydelse för delaktighet i dagliga aktiviteter - Erfarenheter från kvinnor med ryggmärgsskada och deras män2010Other (Other (popular science, discussion, etc.))
    Abstract [sv]

    Projektets övergripande syfte  Syftet med detta projekt var att få en fördjupad kunskap om och förståelse för upplevelsen av den sociala miljöns betydelse för delaktighet i dagliga aktiviteter hos kvinnor med en ryggmärgsskada och deras män samt om upplevelsen förändrades över tid.   Kort beskrivning av projektet  Projektet fokuserar på betydelsen av det sociala nätverket och dess relation till aktivitet och hälsa inom rehabilitering och arbetsterapi. Utgångspunkten var att det behövs en ökad kunskap om hur personer med funktionshinder upplever betydelsen av socialt stöd från det sociala nätverket eftersom en framgångsrik rehabilitering förutsätter att en person med funktionshinder upplever socialt stöd från det sociala nätverket. Målgruppen för att belysa detta har i projektet varit kvinnor som drabbats av en ryggmärgsskada, då de ofta får omfattande funktionshinder med förändrade vanor vid aktivitetsutförande samt förändrade relationer i deras sociala nätverk. Vidare för att kunskap om kvinnor med ryggmärgsskada är begränsad. I projektet har även män som var sammanboende med kvinnor med en ryggmärgsskada ingått. Metodologiskt har projektet en kvalitativ inriktning där deltagarna intervjuats om deras upplevelser av det sociala nätverkets betydelse för delaktighet i vardagen från strax före skadan fram till idag. Resultaten visar att över tid utvecklades ett förändrat samspel mellan kvinnorna och deras sociala nätverk som influerade deras delaktighet i dagliga aktiviteter. Resultatet påvisade även betydelsen av berättelser för att fånga dynamiken och komplexiteten i den förändringsprocess som både kvinnorna och männen som var sammanboende med dem gick igenom. Vidare hur klient-centrerad praxis som inkluderar även anhöriga kan utveckla en djupare förståelse för dynamiken och samspelet mellan personen, aktiviteter och socialt samspel.  Detta forskningsprojekt kan därför tillföra arbetsterapeuter, men även annan personal inom rehabilitering, en ökad kunskap om den sociala miljöns betydelse för utförandet av aktiviteter i det dagliga livet. 

  • 8.
    Isaksson, Gunilla
    et al.
    Luleå University of Technology, Department of Health Sciences, Health and Rehab.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Social support provides motivation and ability to participate in occupation2008Conference paper (Other academic)
  • 9.
    Isaksson, Gunilla
    et al.
    Luleå University of Technology, Department of Health Sciences, Health and Rehab.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Lexell, Jan
    Women's perception of changes in the social network after a spinal cord injury2005In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 27, no 17, 1013-1021 p.Article in journal (Refereed)
    Abstract [en]

    PURPOSE: To describe how women with a spinal cord injury (SCI) perceived changes in the social network, and how these changes affected their ability to participate in occupation. METHOD: Thirteen women, aged 25 to 61 years, with a SCI were interviewed twice. The interviews focused on their ability to participate in occupation, their relations with individuals within the social network, and changes in the social network following the SCI. The analysis was carried out using qualitative content analysis. RESULTS: The women described an emotional need for social support after the SCI to participate in occupation. This was a new experience that required time to adapt to. The women also described a need for practical social support from the social network members to manage meaningful occupation. After the SCI, the women had developed new habits through close cooperation with members in the social network. The women felt that they had become more responsible for the development of their relations. Many relations had improved after the SCI, while some had decreased. The women had also developed new relations with other persons with disabilities. CONCLUSIONS: The women perceived substantial changes in the social network following the SCI, which in several ways affected their ability to participate in occupation. To adapt to their new life situation, the women gradually developed different strategies. The results point out the need to identify persons in the social network that women with SCI develop relations with, and integrate them in the rehabilitation process.

  • 10.
    Juuso, Päivi
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Olsson, Malin
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Living with a double burden: Meanings of pain for women with fibromyalgia2011In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 6, no 3Article in journal (Refereed)
    Abstract [en]

    Living with fibromyalgia (FM) means living with a chronic pain condition that greatly influences daily life. The majority of people with FM are middle-aged women. The aim of this study was to elucidate meanings of pain for women with FM. Fifteen women with FM were interviewed about their pain experiences and a phenomenological hermeneutic interpretation was used to analyse the interview texts. The findings show that meanings of pain for women with FM can be understood as living with a double burden; living with an aggressive, unpredictable pain and being doubted by others in relation to the invisible pain. The ever-present pain was described as unbearable, overwhelming, and dominated the women’s whole existence. Nevertheless, all the women tried to normalize life by doing daily chores in an attempt to alleviate the pain. In order to support the women’s needs and help them to feel well despite their pain, it is important that nurses and health care personnel acknowledge and understand women with FM and their pain experiences.

  • 11.
    Juuso, Päivi
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Olsson, Malin
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Meanings of being received and met by others as experienced by women with fibromyalgia2014In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 24, no 10, 1381-1390 p.Article in journal (Refereed)
    Abstract [en]

    Fibromyalgia (FM) is a common chronic pain syndrome that mostly affects middle-aged women. Our aim with this study was to elucidate meanings of being received and met by others as experienced by women with FM. Interviews with a narrative approach were conducted with 9 women. We analyzed the transcribed interviews with a phenomenological hermeneutical interpretation. The findings revealed two themes: being seen as a malingerer and being acknowledged. Meanings of being received and met by others, as experienced by women with FM, can be understood as a movement between the two perspectives. When they were acknowledged, their feelings of security and trust increased, but the women could not rely on this because others received and met them in such an unpredictable manner.

  • 12.
    Juuso, Päivi
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Olsson, Malin
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Meanings of feeling well for women with fibromyalgia2013In: Health Care for Women International, ISSN 0739-9332, E-ISSN 1096-4665, Vol. 34, no 8, 694-706 p.Article in journal (Refereed)
    Abstract [en]

    The researchers focus in this study was to elucidate meanings of feeling well for women with fibromyalgia (FM). We obtained narrative interviews with thirteen women with FM and used a phenomenological-hermeneutic interpretation to analyse the interview texts. Our interpretation of the findings show that for women with FM meanings of feeling well can be understood as having strength to be involved. The women's experiences of feeling well meant being in control, having power, finding one's own pace and feelings of belonging.

  • 13.
    Juuso, Päivi
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Olsson, Malin
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    The significance of Associations for women with FM2014In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 36, no 21, 1755-1761 p.Article in journal (Refereed)
    Abstract [en]

    Purpose: Living with fibromyalgia (FM) means living with a long-term pain syndrome that is invisible to others. Support and understanding from others seem to be important to managing the affected daily life. The aim of this study was to describe the significance of FM associations for women with FM. Methods: Data collection was carried out through focus group discussions with seventeen women with FM. Data were analyzed through thematic content analysis. Results: The findings show that women experienced associations for people with FM as important as they gave access to contacts with others with similar experiences. Their need of togetherness was fulfilled at the association and they described being strengthened by the support received. Because of the lack of information and knowledge about FM, the association was described as an important venue for getting and mediating information about the illness. Conclusions: At the association the women seem to be empowered, which increases their ability to manage their daily lives despite the limitations imposed by FM. Healthcare personnel could not satisfy the women’s needs and to manage to support women with FM. There is a need for communication based on a shared understanding between the women and healthcare personnel.Implications for Rehabilitation Read More: http://informahealthcare.com/eprint/hxrQu88eIVBPKf48aBpd/full

  • 14.
    Kassberg, Ann-Charlotte
    et al.
    Björkskatans vårdcentral.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Experiences of ethical dilemmas in rehabilitation: Swedish occupational therapists' perspectives2008In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 15, no 4, 204-211 p.Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to describe Swedish occupational therapists' experiences of encountering ethical dilemmas in rehabilitation and strategies they used to handle the situations. Twelve occupational therapists who work with adults with developmental disabilities were interviewed using a semi-structured interview design. Data were analysed using qualitative content analysis. The results showed that ethical dilemmas were common in the occupational therapists' daily work within rehabilitation. Many situations that created ethical dilemmas were related to occupational therapists who worked with clients and their relatives, and other healthcare providers. The results showed further that occupational therapists found it difficult to make decisions and to optimize clients' participation in decision-making, to set limits and act professionally, and to best handle the situation for the client and avoid ethical dilemmas. This study indicates the importance of illustrating experiences of ethical dilemmas within occupational therapy praxis and the meaning of discussing ethical dilemmas with different healthcare providers to reach a divided view of the client in order to develop successful and healthy strategies that will optimize the rehabilitation of clients with developmental disabilities.

  • 15.
    Lind, Leili
    et al.
    institutionen för medicinsk teknik, Linköpings universitet.
    Kovordanyi, Rita
    Linköpings universitet, Institutionen för data-vetenskap.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Åhlfeldt, Rose-Mharie
    Högskolan i Skövde.
    Svensson, Anders
    Högskolan för lärande och kommunikation i Jönköping.
    Att fånga nyttan av IT-investeringar inom vård och omsorg: En analysmodell för planering och uppföljning av IT-investeringar2011Report (Other academic)
  • 16.
    Lindberg, Birgitta
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Nilsson, Carina
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Wahlberg, Daniel Zotterman
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Using information and communication technology in home care for communication between patients, family members, and healthcare professionals: A systematic review2013In: International Journal of Telemedicine and Applications, ISSN 1687-6415, E-ISSN 1687-6423Article in journal (Refereed)
    Abstract [en]

    Introduction. Information and communication technology (ICT) are becoming a natural part in healthcare both for delivering and giving accessibility to healthcare for people with chronic illness living at home. Aim. The aim was to review existing studies describing the use of ICT in home care for communication between patients, family members, and healthcare professionals. Methods. A review of studies was conducted that identified 1,276 studies. A selection process and quality appraisal were conducted, which finally resulted in 107 studies. Results. The general results offer an overview of characteristics of studies describing the use of ICT applications in home care and are summarized in areas including study approach, quality appraisal, publications data, terminology used for defining the technology, and disease diagnosis. The specific results describe how communication with ICT was performed in home care and the benefits and drawbacks with the use of ICT. Results were predominated by positive responses in the use of ICT. Conclusion. The use of ICT applications in home care is an expanding research area, with a variety of ICT tools used that could increase accessibility to home care. Using ICT can lead to people living with chronic illnesses gaining control of their illness that promotes self-care.

  • 17.
    Lindgren, Eva
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Managing transition with support: Experiences of transition from child and adolescent psychiatry to general adult psychiatry narrated by young adults and relatives2014In: Psychiatry Journal, ISSN 2314-4327, E-ISSN 2314-4335, 457160Article in journal (Refereed)
    Abstract [en]

    Young adults with mental illness who need continuing care when they turn 18 are referred from child and adolescent psychiatry to general adult psychiatry. During this process, young adults are undergoing multiple transitions as they come of age while they transfer to another unit in healthcare. The aim of this study was to explore expectations and experiences of transition from child and adolescent psychiatry to general adult psychiatry as narrated by young adults and relatives. Individual interviews were conducted with three young adults and six relatives and analysed according to grounded theory. The analysis resulted in a core category: managing transition with support, and three categories: being of age but not mature, walking out of security and into uncertainty, and feeling omitted and handling concerns. The young adults’ and relatives' main concerns were that they might be left out and feel uncertainty about the new situation during the transition process. To facilitate the transition process, individual care planning is needed. It is essential that young adults and relatives are participating in the process to be prepared for the changes and achieve a successful transition. Knowledge about the simultaneous processes seems to be an important issue for facilitating transition.

  • 18.
    Lindgren, Eva
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Swedish young adults’ experiences of psychiatric care during transition to adulthood2015In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 36, no 3, 182-189 p.Article in journal (Refereed)
    Abstract [en]

    The number of young adults with mental illness and the need of psychiatric care has increased during the last decades. The aim of the study was to explore young adults’ experiences of psychiatric care during transition to adulthood. Individual interviews were conducted with 11 young adults and analysed according to Grounded Theory. The analyses results showed that support was a prerequisite for transition to adulthood and striving to reach recovery. By being encountered as a person and with a supportive environment, young adults can be motivated to continue care and be encouraged to express feelings.

  • 19.
    Lindgren, Eva
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    The gap in transition between child and adolescent psychiatry and general adult psychiatry2013In: Journal of Child and Adolescent Psychiatric Nursing, ISSN 1073-6077, E-ISSN 1744-6171, Vol. 26, no 2, 103-9 p.Article in journal (Refereed)
    Abstract [en]

    BackgroundDuring transition from child and adolescent psychiatry (CAP) to general adult psychiatry (GenP) young adults with mental illness face multilevel transitions along with a risk for disruption in continuity of care. The aim of this study was to describe professionals' experiences and views of the transition process from CAP to GenP. MethodData were collected through six focus group discussions with professionals from both CAP and GenP and analyzed by content analysis. ResultsThe results showed a gap in transition between CAP and GenP when different perspectives and care cultures meet in a complex process. ConclusionsCooperation, transition planning, and a mutual understanding of care can support young adults in transition from CAP to GenP.

  • 20.
    Lindgren, Eva
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    The gap in transition between child and adolescent psychiatry and general psychiatry2013Conference paper (Refereed)
    Abstract [en]

    BACKGROUND: During transition between Child and adolescent psychiatry (CAP) and General adult psychiatry (GenP) young adults with mental illness face multilevel transitions along with a risk for disruption in continuity of care. Rigid boundaries between the disciplines can be a disadvantage and to decrease the risk transition planning and cooperation are needed.AIM: The aim of this study was to describe professionals’ experiences and views of the transition process from CAP to GenP. METHOD: Data were collected through six focus group discussions with professionals from both CAP and GenP. RESULTS: Data were analysed by content analysis with an deductive approach based on Meleis' middle-range theory of transition. The results showed that young adults were undergoing developmental transitions simultaneous with situational transitions, and they were expected to take responsibility despite they still were in need of support. A gap in transition between CAP and GenP arises when different perspectives, i.e. family and individual perspective, and care cultures meet in a complex process. Lack of knowledge, a mutual understanding and cooperation could also increase the gap. To be able to support the young adult the professionals suggested an individual approach in the transition process.CONCLUSIONS: It is important that professionals at both CAP and GenP focus on transition issues to support young adults to reach a successful transition and adjust to the new situation as adults and user of health care at GenP. Cooperation, transition planning, and a mutual understanding of care can support young adults in transition from CAP to GenP.

  • 21.
    Nilsson, Carina
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Swedish district nurses' attitudes to implement information and communication technology in home nursing2008In: Open Nursing Journal, ISSN 1874-4346, E-ISSN 1874-4346, Vol. 2, 68-72 p.Article in journal (Refereed)
    Abstract [en]

    The use of information and communication technology has increased in the society, and can be useful in nursing care. The aim of this study was to describe district nurses' attitudes regarding the implementation of information and communication technology in home nursing. The first and third authors performed five focus group discussions with 19 district nurses' from five primary healthcare centres in northern Sweden. During the focus group discussions, the following topics were discussed: the current and future use of information and communication technology in home nursing; expectations, advantages, disadvantages and hindrances in the use of information and communication technology in home nursing; and the use of information and communication technology from an ethical perspective. The transcribed focus group discussions were analysed using qualitative content analysis. The results showed that district nurses' attitudes were positive regarding the use of information and communication technology in their work. They also asked for possibilities to influence the design and its introduction. However, the use of information and communication technology in home nursing can be described as a complement to communication that could not replace human physical encounters. Improvements and risks, as well as the importance of physical presence in home nursing were considered vital. The results revealed that the use of information and communication technology requires changes in the district nurses' work situation.

  • 22. Nilsson, Carina
    et al.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Swedish district nurses' experiences on the use of information and communication technology for supporting people with serious chronic illness living at home: a case study2010In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 24, no 2, 259-265 p.Article in journal (Refereed)
    Abstract [en]

    The aim of this case study was to describe two District Nurses' (DN) experiences of using information and communication technology (ICT) to communicate with chronically ill people in their homes. An electronic messaging program via computers and mobile phones with an Internet connection was used, enabling DNs and the ill people to exchange messages to and from anywhere. The program comprised different virtual rooms, and communication was via text messages. The DNs in this study used the program two to four times each week from November 2003 to March 2004. Semi-structured interviews were performed before, during and after the implementation of the new technology and were analysed using thematic content analysis. The results showed that the DNs felt that the technology increased accessibility to nursing care through a more direct communication with the ill person meaning that a more trusting relationship could be created. The DNs also experienced that the use of ICT saved working time. This study indicates that the use of ICT for communication allowed the DN to better support a chronically ill person at home leading to improved home nursing care. This method of communication cannot replace physical presence, but can be seen as a complement to nursing care at home.

  • 23.
    Nilsson, Åsa
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Nurses' views of shortcomings in patent care encounters in one hospital in Sweden2015In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 24, no 19-20, 2807-2814 p.Article in journal (Refereed)
    Abstract [en]

    Aim and objectiveTo describe nurses' views of shortcomings in patient care encounters in one hospital in Sweden.BackgroundShortcomings in encounters in healthcare have increased during recent years. Dissatisfaction with encounters in healthcare can affect patients' experiences of dignity, health and well-being.DesignA qualitative design was used in the study.MethodsThree focus group discussions with 15 nurses were conducted. The nurses worked in five different wards. The focus group discussions were subjected to a thematic content analysis.ResultsThe results are presented in two themes. The first theme, ‘Disregard for the patient's unique nursing needs’, describes that information without consideration of the patient's needs, and nurses not being completely present in the meeting with the patient affected healthcare encounters and experiences of quality of care. In the second theme, ‘Difficulty managing obstacles’, nurses described care situations over which they could not always prevail due to lack of time and/or lack of awareness of the patient's vulnerability.ConclusionThe findings illustrate the importance of nurses and their approaches to patients. The nurse's attitude is important for the patient's experiences of participation, security, dignity, and well-being. The findings also illustrate the importance of routines in the healthcare organisation that support and facilitate positive encounters between patients, their close relatives and the healthcare staff.Relevance to clinical practiceNurses require understanding, presence and commitment in their relationships to every unique patient, and their goal should be to adopt interventions with regard to positive healthcare encounters based on each patient's experiences of good nursing care.

  • 24.
    Niva, Bernt
    et al.
    Luleå tekniska universitet.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    A pilot study of the activity patterns of five elderly persons after a housing adaptation2006In: Occupational Therapy International, ISSN 0966-7903, E-ISSN 1557-0703, Vol. 13, no 1, 21-34 p.Article in journal (Refereed)
    Abstract [en]

    The importance of an accessible home environment for occupational performance has been emphasized in occupational therapy, but knowledge about how accessibility can affect a person's activity patterns is limited. The purpose of this study was to describe the activity patterns of five elderly persons aged between 70 and 84 years and their views about accessibility and usability of their homes before and after a housing adaptation. Two different questionnaires, 'Accessibility in My Home' and the 'Occupational Questionnaire' were used for data collection. Adaptations in the home included: removing thresholds, installing new taps in the bathroom and kitchen and broadening doorways. After the adaptations the five participants reported that they increased their outside activities, reduced naps during the day and slept better at night. The results showed that the participants performed more and new activities when their home environment had become accessible. Activities performed were also perceived as more important after the housing adaptation. There is a need to replicate the study with a larger sample. Further research is needed on the impact of home adaptations on the activity patterns of elderly people.

  • 25.
    Nordmark, Sofi
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Information exchange between registered nurses and district nurses during the discharge planning process: Cross- sectional analysis of survey data2015In: Informatics for Health and Social Care, ISSN 1753-8157, E-ISSN 1753-8165, Vol. 40, no 1, 23-44 p.Article in journal (Refereed)
    Abstract [en]

    Objectives: Discharge planning is an important care process for managing transitions from the hospital to the community. It has been studied for >20 years, but few studies clarify the information exchanged between healthcare providers. This study aimed to describe nurses’ experiences and perceptions of information exchange during the discharge planning process, focused on what, when and how information is exchanged between the hospital and primary healthcare. Method: A web-based census survey was used to collect data; the data were analyzed using descriptive statistics and chi-squared test. A questionnaire was distributed to 194 registered nurses (129 respondents) from a central county hospital and 67 district nurses (42 respondents) working in 13 primary healthcare centres. Results: The results show a significant difference between given and received information between the two groups. Both groups thought the information exchange worked best when all participants met at the discharge planning conference and that the electronic information system was difficult to use. Conclusion: This study shows difficulties knowing what patient-related information needs to give and not receiving the expected information. These results can be used to develop knowledge about roles, work tasks and needs to enhance the outcome of the process and the information exchanged.

  • 26.
    Olsson, Malin
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Meanings of being received and met by others as experienced by women with MS2011In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 6, no 1, 57-69 p.Article in journal (Refereed)
  • 27.
    Olsson, Malin
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Meanings of feeling well for women with multiple sclerosis2010In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 20, no 9, 1254-1261 p.Article in journal (Refereed)
    Abstract [en]

    In research concerning multiple sclerosis (MS), the factors that impact on people's well-being and quality of life have been studied, but little has been written about what it means to feel well for women with MS. Therefore, in this study our aim was to describe meanings of feeling well for women with MS. We interviewed 15 women with MS, and a phenomenological hermeneutic interpretation was utilized to analyze the interviews. Through this study it can be understood that finding a pace where daily life goes on means that women with MS feel well when the illness is kept in check and is not the dominant experience. The findings of this study can be used to confirm women's experiences of feeling well, despite living with the consequences of MS. Health care professionals will find the results of this study useful when they reflect on and formulate the care of women with MS when attempting to support the latter's desire to feel well in their daily lives.

  • 28.
    Prellwitz, Maria
    et al.
    Luleå University of Technology, Department of Health Sciences, Health and Rehab.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    How children with restricted mobility perceive the accessibility and usability of their home environment2006In: Occupational Therapy International, ISSN 0966-7903, E-ISSN 1557-0703, Vol. 14, no 3, 193-206 p.Article in journal (Refereed)
    Abstract [en]

    The purpose of this study was to describe how children with restricted mobility perceive accessibility and usability of their home environment. The investigation was carried through a descriptive questionnaire, mailed to children in northern Sweden with the diagnoses of cerebral palsy, spina bifida and muscular diseases. Eighty-two children completed the questionnaire. The results showed that the children perceived the accessibility of the physical environment in their homes as relatively good while outside the home the environment was less accessible. In the social environment, frequency of peer contacts varied. The present study underscores the challenges of ensuring that children with restricted mobility living in the parental home are able to have an accessible and usable environment in order to perform activities. Limitations of this study included the questionnaire design. Further research should be carried out with children with restricted mobility to obtain a better understanding of how to improve their mobility in their home environment

  • 29.
    Prellwitz, Maria
    et al.
    Luleå University of Technology, Department of Health Sciences, Health and Rehab.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Usability of playgrounds for children with different abilities2007In: Occupational Therapy International, ISSN 0966-7903, E-ISSN 1557-0703, Vol. 14, no 3, 144-155 p.Article in journal (Refereed)
    Abstract [en]

    The aim of the present study was to better understand how children with different abilities use playgrounds to engage in creative play and interact socially with their peers. Twenty children aged between 7 and 12 years, with different abilities, participated in interviews. The findings showed that playgrounds served as a reference point for all the children, they challenged a child's physical abilities and provided opportunities for role-playing and social interactions. However, for children with disabilities, playgrounds had limited accessibility, usability and did not support interaction with peers. A methodological limitation of the study was that the interviewer only met the children once. Further research should be carried out to investigate if creating playgrounds according to universal design principles and adapting them to the needs of children with disabilities would improve social interactions and provide more opportunities for play.

  • 30. Skär, Lisa
    Activity: Fatigue in COPD: A qualitative study of peoples experiences2012Conference paper (Other (popular science, discussion, etc.))
  • 31. Skär, Lisa
    Activity: Fatigue in COPD and the impact of heart disease comorbidity: a population based study2011Conference paper (Other (popular science, discussion, etc.))
  • 32. Skär, Lisa
    Activity: Living with a never ending pain: Meanings of pain for women with fibromyalgia2012Conference paper (Other (popular science, discussion, etc.))
  • 33. Skär, Lisa
    Activity: Men's dissatisfaction with encounters in healthcare2011Conference paper (Other (popular science, discussion, etc.))
  • 34. Skär, Lisa
    Activity: Scandinavian rehabilitation researchers1998Conference paper (Other (popular science, discussion, etc.))
  • 35. Skär, Lisa
    Aktivitet: Att leva med fetma: kvinnor och mäns upplevelser2007Conference paper (Other (popular science, discussion, etc.))
  • 36. Skär, Lisa
    Aktivitet: Dåligt bemötta patienter får sällan någon ursäkt2006Other (Other (popular science, discussion, etc.))
  • 37. Skär, Lisa
    Aktivitet: Fatigue vid KOL samt påverkan av luftvägssymtom och hjärtsjukdom: : en rapport från OLIN-studierna2011Conference paper (Other (popular science, discussion, etc.))
  • 38. Skär, Lisa
    Aktivitet: Hur jag leker: roller och relationer i olika leksituationer för barn med funktionshinder2001Conference paper (Other (popular science, discussion, etc.))
  • 39. Skär, Lisa
    Aktivitet: Rehabiliteringsforum Norr: utgångspunkter och tankar för att ytterligare utveckla verksamheten inför 2000-talet1998Conference paper (Other (popular science, discussion, etc.))
  • 40. Skär, Lisa
    Aktivitet: Roller och relationer i rörelsehindrade barns leksituationer1999Conference paper (Other (popular science, discussion, etc.))
  • 41.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Barn med funktionshinder: vänskap och kamratrelationer2006In: Inre och yttre världar: funktionshinder i psykologisk belysning, Lund: Studentlitteratur AB, 2006, 95-105 p.Chapter in book (Other academic)
  • 42.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Barn och ungdomar med rörelsehinder: deras uppfattningar om roller, relationer och aktiviteter2002Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The general aim of this thesis was to describe how children and adolescents with restricted mobility perceived their roles, relations and activities in relation to peers and adults in different settings. The thesis includes six sub-studies, which are based on interviews, observations and field notes with children and adolescents with restricted mobility aged from 6 to 19 years. Using Bronfenbrenner’s theory “the Ecology of Human Development” as the main theoretical framework, the ambition was to understand the children and adolescents’ social world from their perspective. The principal finding was the lack of peers in the children and adolescents’ social network. Furthermore, this tendency of isolation from peers was found to increase during the transition from childhood to adolescence. Their relationships to peers were strained and activities and surroundings in which social contacts could develop were limited. The relationships with peers were also characterised by social barriers in the form of attitudes that resulted in social isolation from the group of persons the disabled children and adolescents most wished to be with. When relations to peers were limited, the disabled children’s social life was restricted to adults. The results further showed that the children and adolescents’ roles and relations often were significantly different from their peers. The children and adolescents’ arrived at a concept of themselves that differed from the way others conceptually saw them. Furthermore, the children and adolescents saw themselves as regular members of their peer group, but the other members of the peer group saw them as different from themselves. Relationships to friends of the same age either were confined or were nonexistent. Relationships to adults were often characterised as ambivalent or asymmetric, i.e. the adults were helpful and supportive while over protective and dominant at the same time. The thesis revealed that, despite the many obstacles facing them, the children and adolescents with restricted mobility had a positive view of their future.

  • 43.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Children's conception of the word 'disabled': a phenomenographic study2010In: Disability & Society, ISSN 0968-7599, E-ISSN 1360-0508, Vol. 25, no 2, 177-189 p.Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to investigate the qualitative differences in children's conceptions of the word ‘disabled'. Two hundred and thirty children, aged 7-12 years of age, were instructed to make a drawing of what came into their minds when they heard the word ‘disabled'. A brief written commentary on their drawing was also requested. The drawings and comments showed that the children had a positive attitude towards the word ‘disabled'. They drew and commented that a disability had medical causes, a technical device was a prerequisite for disabled people, a disability had social consequences and that a disabled person needed support. The children also explained that there were obstacles which impaired disabled people's performance of activities. Access to some environments and being an active part of society was limited for some disabled people.

  • 44.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Disabled children's perceptions of technical aids, assistance and peers in play situations2002In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 16, no 1, 27-33 p.Article in journal (Refereed)
    Abstract [en]

    The purpose of the study was to gain a deeper understanding of how children with disabilities perceive their technical aids in play situations. Transcribed interviews with eight children with disabilities were analysed according to the constant comparative method of grounded theory described by Glaser & Strauss. Three categories were found in the data, forming a model describing the child's relations in play situations (core category): to technical aids, to assistance and to the play environment. Two of the categories included relations to adults. The children's opportunities to play required that a parent or an assistant be present. Access to the playground also required the assistance of adults. The third category, relation to technical aids, is an individual one, as the technical aids were perceived differently by all the children. The technical aids were also seen as an extension of the child. The implications for parents and service providers are discussed

  • 45.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    My assistant and I: disabled children's and adolescents roles and relationships to their assistants2002Conference paper (Other academic)
    Abstract [en]

    The purpose of this grounded theory study was to describe how children and adolescents with restricted mobility perceive their assistant with focus on their roles and relations with one another. The group investigated consisted of 13 children and adolescents with restricted mobility from northern Sweden, aged from 8 to 19 years. The analysis resulted in five categories, -1. The replaceable assistant, -2. The assistant as mother/father, -3. The professional assistant, -4. The assistant as a friend, and finally -5. My ideal assistant. In each category the child/adolescent was seen in relation to the assistant, i.e. the main story "My assistant and I" from different perspectives. The findings showed that relation towards/from the assistant were both mutual and non-mutual and that there were relations that by the children/adolescents were perceived as ambivalent and unequal. The findings are discussed on the basis of the significance of these roles and relations in the children and adolescents' development.

  • 46.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Peer and adult relationships of adolescents with disabilities2003In: Journal of Adolescence, ISSN 0140-1971, E-ISSN 1095-9254, Vol. 26, no 6, 635-649 p.Article in journal (Refereed)
    Abstract [en]

    The purpose of this study was to enhance our knowledge of what it is like to grow up with a disability, specifically, with focus on how adolescents with restricted mobility perceive social roles and relationships to peers and adults. The group investigated consisted of 12 adolescents (aged 15-19 yrs) with restricted mobility from northern Sweden. Subjects (Ss) were individually interviewed. The analysis resulted in a core category (Who am I), which describes how the Ss perceive themselves. The core category was related to 3 subcategories: Relationships to friends--describes the Ss' experiences of peer relationships; Relationships to adults--describes Ss' relationships to adults; Thoughts about relationships in the future--comprises wishes for future relationships. Results indicate that the Ss saw themselves as regular members of the adolescent peer group but that the members of the adolescent group saw them as being different. The relationships to friends of the same age were either defective or did not exist at all; relationships to adults were often characterized as ambivalent or asymmetric, i.e. the adults were helpful and supportive but over protective and dominant. The study revealed that despite the many hindrances, the Ss had a comparatively positive view of their future. (PsycINFO Database Record (c) 2006 APA, all rights reserved

  • 47.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Relationernas betydelse2009In: Att leva med sjukdom, Stockholm: Norstedts akademiska förlag , 2009, 27-40 p.Chapter in book (Other academic)
  • 48.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Relationernas betydelse2014In: Att leva med sjukdom, Lund: Studentlitteratur AB, 2014, 2, 23-34 p.Chapter in book (Other (popular science, discussion, etc.))
  • 49.
    Skär, Lisa
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Roller och relationer i leksituationer för barn med rörelsehinder2003In: Barns fritid, Stockholm: Centrum för barnkulturforskning , 2003, 123-130 p.Chapter in book (Other academic)
  • 50.
    Skär, Lisa
    et al.
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Juuso, Päivi
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Söderberg, Siv
    Luleå University of Technology, Department of Health Sciences, Nursing Care.
    Health-related quality of life and sense of coherence among people with obesity: Important factors for health management2014In: Russian Studies, ISSN 2050-3113, E-ISSN 2050-3121, Vol. 2Article in journal (Refereed)
    Abstract [en]

    Objectives: The purpose of this study was to evaluate whether health-related quality of life and levels of sense of coherence among people with obesity are correlated with body mass index, age, and gender. Methods: A cross-sectional, descriptive research design was used. Subjects (n = 157) were selected from a sample of participants in an ongoing survey and had a body mass index >30 kg/m2. Data were collected using the Short Form-36 Health Survey and the Sense of Coherence Scale. Results: The mean body mass index of women was higher than that of men. Compared to men, a greater proportion of women had a low sense of coherence. There was a significant relationship between low physical health and high body mass index. Female gender and older age correlated with a low sense of coherence and showed a significant association with high body mass index. Conclusion: To increase the health-related quality of life, people with obesity need support to help manage their life situation based on their individual needs and personal resources.

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