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  • 1. Alalehto, Anita
    et al.
    Andersson, Gabriella
    Sävenstedt, Stefan
    Yoga och massage som friskvård: en uppföljning av en försöksverksamhet bland omsorgspersonal i Kiruna kommun2005Rapport (Annet vitenskapelig)
  • 2. Axelsson, Karin
    et al.
    Harrefors, Christina
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Projekt: Forskning - Omvårdnad - Äldre2010Annet (Annet (populærvitenskap, debatt, mm))
    Abstract [sv]

    Äldre personers föreställning om vård och användning av assisterande teknologi och service i händelse av vård   Projektets övergripande syfte  Syftet med studien var att beskriva äldre personers föreställningar om god vård och om användning av assisterande teknologi och service (ATS) i händelse av vård.    Kort beskrivning av projektet  Individuella intervjuer har genomförts med 12 par, där båda är > 70 år och utan någon form av regelbunden vård eller tillsyn i hemmet. Intervjuerna utgick från en tänkt situation (scenario) som komplicerades alltmer, där deltagarna ombads berätta om sin syn på god vård och användning av ATS både för egen del och även hur de trodde att partnerns inställning var. Intervjuerna var fokuserade till scenariot och utveckling av resonemang om god vård och användning av ATS vid vård och omsorg i hemmet. Intervjuerna spelades in på band, skrevs ut ordagrant och analyserades med kvalitativ innehållsanalys. Inför införandet av teknik vid vård i hemmet är det viktigt att beskriva hur äldre personer ser på användning av teknik och hur de ser på vad som är god vård.

  • 3. Axelsson, Karin
    et al.
    Harrefors, Christina
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Projekt: Friska äldre personers resonemang om användning av Informations- och Kommunikations Teknologi, IKT, vid vård och omsorg i hemmet2010Annet (Annet (populærvitenskap, debatt, mm))
    Abstract [sv]

    Projektets övergripande syfte Syftet med studien är att beskriva friska äldre personers resonemang om användning av Informations- och Kommunikationsteknologi (IKT) vid vård och omsorg i hemmet. Kort beskrivning av projektet Individuella intervjuer har genomförts av 12 par, där båda är > 70 år och de hade inte någon form av regelbunden vård eller tillsyn i hemmet. Intervjuerna utgick från en tänkt situation som komplicerades alltmer, där försökspersonerna ombads berätta om sin syn på användning av IKT både för egen del men även hur de trodde att partnerns inställning är. Intervjuerna var fokuserade till scenariot och utveckling av resonemang om användning av IKT vid vård och omsorg i hemmet. Intervjuerna är inspelade in på band och ordagrant utskrivna. Inför införandet av teknik vid vård i hemmet är det viktigt att beskriva hur äldre personer ser på användning av teknik.

  • 4.
    Axelsson, Karin
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Harrefors, Christina
    Sävenstedt, Stefan
    Wälivaara, Britt-Marie
    E-Health in care of older persons in the future2010Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 19, nr Suppl. 1, s. 54-Artikkel i tidsskrift (Annet vitenskapelig)
    Abstract [en]

    Introduction: To achieve quality care in the person's home implies that the way we perform the care has to be developed. In this development new technology services, including mobile distance-spanning technology and information- and communication technology, has to be used. The aim of this presentation is to explore some issues important to consider before implementation of e-health services in care of older persons at home. Method: The presentation is based on studies where healthy older persons (n=23), older persons who had experience of being cared for with mobile distance-spanning technology (n=9) and general practitioners (n=17) were interviewed about their perceptions, views and experiences concerning the use of technology in care at home and quality care. The interviews were analysed by qualitative content analysis. Results: In the results from the different studies there were some common results. One was the importance of human meetings; another was that the person in need of care and the health professional need to know each other if virtual meetings should be possible. Other issues brought up in the different studies were trust, quality care, the need of combining home care services with visits at health care centres and hospitals, different technical equipment are only useful in specific circumstances, and mobile distance-spanning technology should not be looked at separately but as one part of a complex chain of health care services where all parts of the chain are needed. Conclusion: E-health including mobile distance-spanning technology and information- and communication technology is on its way to be accepted and used in home care for older persons. It is important that nurses as professionals actively take part in the development, designing and testing of the technical devices.

  • 5. Axelsson, Karin
    et al.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Häggström, Terttu
    Iranmanesh, Sedigheh
    Project: Caring for dying and meeting death. The views of Iranian and Swedish nurses and nurse students2010Annet (Annet (populærvitenskap, debatt, mm))
  • 6.
    Ejneborn-Looi, Git-Marie
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Engström, Åsa
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    A self-destructive care: Self-reports of people who experienced coercive measures and their suggestions for alternatives2015Inngår i: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 36, nr 2, s. 96-103Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Coercive measures are commonly used as a method of intervention, despite insufficient evidence for their effectiveness and benefits. The aim of this study was to describe how people who self-harm perceive alternatives to coercive measures in relation to actual experiences of psychiatric care. A total of 19 self-reports have been analysed with qualitative content analysis, resulting in three categories: a wish for understanding instead of neglect; a wish for mutual relation instead of distrust; a wish for professionalism instead of a counterproductive care. In conclusion, if the caregivers can understand and collaborate with the patient, there is seldom any need for coercive measures

  • 7.
    Ejneborn-Looi, Git-Marie
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Gabrielsson, Sebastian
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Zingmark, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Solving the Staff's Problem or Meeting the Patients’ Needs: Staff Members’ Reasoning about Choice of Action in Challenging Situations in Psychiatric Inpatient Care2014Inngår i: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 35, nr 6, s. 470-479Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Coercion in challenging situations is often seen as a necessary component of psychiatric care. This study aims to describe staff members’ reasoning about their choice of action in challenging situations in inpatient psychiatric care. Focus group interviews with 26 staff members were analyzed using qualitative content analysis. The results provide an overview of the integrated structure of participants’ reasoning and suggest that staff members’ reasoning about choice of action can be described as a matter of either solving the staff's problems or meeting the patients’ needs. These results can be of use in further research, educational interventions, and staff development activities.

  • 8.
    Ejneborn-Looi, Git-Marie
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Engström, Åsa
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Easy but not simple: Nursing students’ descriptions of the process of care in a psychiatric context2016Inngår i: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 37, nr 1, s. 34-42Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The nurse-patient interaction is the cornerstone of psychiatric care, yet the concept “mental health nursing” is difficult to describe. This article aims to address this problem through the experiences of nursing students. Online journals from 14 nursing students were analyzed using qualitative content analysis, resulting in three categories: Trusting the Trusting Relationship, Voicing the Unspoken Needs, and Balancing the Dynamics of Doing and Being. This study demonstrates that providing nursing care based on trusting relationships is not a demanding task, but it takes place in a complex environment that has a tendency to make easy things complicated.

  • 9.
    Gabrielsson, Sebastian
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Ejneborn-Looi, Git-Marie
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Zingmark, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Knowledge of the patient as decision-making power: staff members’ perceptions of interprofessional collaboration in challenging situations in psychiatric inpatient care2014Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 28, nr 4, s. 784-792Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Challenging situations in psychiatric inpatient settings call for interprofessional collaboration, but the roles and responsibilities held by members of different professions is unclear. The aim of this study was to describe staff members' perceptions of interprofessional collaboration in the context of challenging situations in psychiatric inpatient care. Prior to the study taking place, ethical approval was granted. Focus group interviews were conducted with 26 physicians, ward managers, psychiatric nurses, and nursing assistants. These interviews were then transcribed and analysed using qualitative content analysis. Results described participants' perceptions of shared responsibilities, profession-specific responsibilities and professional approaches. In this, recognising knowledge of the patient as decision-making power was understood to be a recurring theme. This is a delimited qualitative study that reflects the specific working conditions of the participants at the time the study was conducted. The findings suggest that nursing assistants are the most influential professionals due to their closeness to and first-hand knowledge of patients. The results also point to the possibility of other professionals gaining influence by getting closer to patients and utilising their professional knowledge, thus contributing to a more person-centred care.

  • 10.
    Gabrielsson, Sebastian
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Olsson, Malin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Taking personal responsibility: Nurses’ and assistant nurses’ experiences of good nursing practice in psychiatric inpatient care2016Inngår i: International Journal of Mental Health Nursing, ISSN 1445-8330, E-ISSN 1447-0349, Vol. 25, nr 5, s. 434-443Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Therapeutic nurse–patient relationships are considered essential for good nursing practice in psychiatric inpatient care. Previous research suggests that inpatient care fails to fulfil patients' expectations in this regard, and that nurses might experience the reality of inpatient care as an obstruction. The aim of the present study was to explore nurses' and assistant nurses' experiences of good nursing practice in the specific context of psychiatric inpatient care. Qualitative interviews were conducted with 12 skilled, relationship-oriented nurses and assistant nurses in order to explore their experiences with nursing practice related to psychiatric inpatient care. Interviews were transcribed and analysed using an interpretive descriptive approach. Findings describe good nursing practice as a matter of nurses and assistant nurses taking personal responsibility for their actions and for the individual patient as a person. Difficulties in providing dignified nursing care and taking personal responsibility cause them to experience feelings of distress and frustration. Shared values and nursing leadership supports being moral and treating patients with respect, having enough time supports being present and connecting with patients, and working as a part of a competent team with critical daily discussions and diversity supports being confident and building trust. The findings suggest that taking personal responsibility is integral to good nursing practice. If unable to improve poor circumstances, nurses might be forced to promote their own survival by refuting or redefining their responsibility. Nurses need to prioritize being with patients and gain support in shaping their own nursing practice. Nursing leadership should provide moral direction and defend humanistic values.

  • 11.
    Gabrielsson, Sebastian
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Zingmark, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Person-centred care: Clarifying the concept in the context of inpatient psychiatry2015Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 29, nr 3, s. 555-562Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This paper reports an analysis of the concept of person-centred care in the context of inpatient psychiatry. It has been suggested that person-centred care in inpatient psychiatry might differ from person-centred care in other contexts, indicating a need to clarify the concept in this specific context. Scholarly papers from health-related disciplines were identified following a systematic search of the electronic databases CINAHL, PUBMED and PsycINFO, covering records indexed up until March 2014. An evolutionary approach to concept analysis was applied, integrating principles for data extraction and analysis in integrative reviews. The concept of person-centred care was defined as cultural, relational and recovery-oriented. It aspires to improve care and calls for a transformation of inpatient psychiatry. The concept is closely related to the concepts of recovery and interpersonal nursing. The result is described in terms of attributes, antecedents, consequences and related concepts. It is concluded that the further development of the concept needs to consider the contexts of the concept at both conceptual and praxis levels. Further research should explore the nature of and relationships between context, culture, care practice and outcomes in inpatient psychiatry from a perspective of person-centred care. The results of this analysis can provide a framework for such research

  • 12.
    Gustafsson, Silje
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Martinsson, Jesper
    Luleå tekniska universitet, Institutionen för teknikvetenskap och matematik, Matematiska vetenskaper.
    Välivaara, Britt-Marie
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Vikman, Irene
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Hälsa och rehabilitering.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Influence of self-care advice on patient satisfaction and healthcare utilization2016Inngår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 72, nr 8, s. 1789-1799Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    AimThe aim of this study is to explore the influence of nurse-led self-care advice on healthcare utilization and patients' satisfaction with telephone nursing.BackgroundMany consultations in high-cost settings are for conditions that are manageable through self-care and callers with greater satisfaction with the nurse interaction are nearly four times more likely to engage in self-care.DesignCross-sectional study.MethodsQuestionnaires were sent out to 500 randomly selected callers to the Swedish Healthcare Direct in Northern Sweden during March 2014. Callers were asked about their satisfaction with the consultation, their intended actions prior to consultation, the recommendation given by the nurse and the action undertaken after the call.ResultsYoung callers and persons recommended watchful waiting or recurrence if no improvements were significantly less satisfied with their care. When calling on their own behalf, both men and women rated the severity of their symptoms equally and were advised to self-care to the same extent. Self-care advice had a constricting influence on self-reported healthcare utilization, with 66·1% of cases resulting in a lower level of care than first intended. Feeling reassured after the call was the aspect of nursing care that influenced satisfaction the most.ConclusionReceiving self-care advice rather than referral to a general practitioner influences patient satisfaction negatively. Feeling reassured after consultation is strongly related to satisfaction, which in turn has been found to increase the likelihood of engaging in self-care behaviour.

  • 13.
    Gustafsson, Silje
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Martinsson, Jesper
    Luleå tekniska universitet, Institutionen för teknikvetenskap och matematik, Matematiska vetenskaper.
    Välivaara, Britt-Marie
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Need for reassurance in self-care of minor illnesses2018Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 27, nr 5-6, s. 1183-1191Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    AIMS AND OBJECTIVES:

    This study describes people's need for reassurance in self-care of minor illnesses.

    BACKGROUND:

    Self-care and active surveillance are advocated as important strategies to manage minor illnesses. Reassurance influences patient satisfaction and confidence in the practicing of self-care.

    DESIGN:

    This study is a descriptive and interpretive qualitative study.

    METHODS:

    Twelve persons with experience in self-care and receiving self-care advice were recruited, and data were collected using semi-structured interviews between September and December 2014. Data were analyzed using qualitative content analyses.

    RESULTS:

    Having previous experience and the ability to actively manage symptoms using self-care interventions was described as reassuring. Participants became stressed and concerned when the symptoms persisted and interventions lacked the desired effect, which often resulted in a decision to consult. Participants wanted to feel that the nurse was an actual person, who was sympathetic, present and understanding, when they received self-care advice. The nurse's assessment and reasoning of the symptoms facilitated care-seekers' assessments of risk, and clear and concrete advice on how to manage the symptoms exerted a calming effect. Patients needed to trust that the nurse understood their situation to embrace the advice, and being invited to return created a feeling that the nurse had listened and taken them seriously.

    CONCLUSION:

    Reassurance has the potential to allay doubts and fears to build confidence, which influences self-care and consultation behavior. Personal presence in the encounter, receiving an assessment and an explanation of the symptoms and precise advice are reassuring. This article is protected by copyright. All rights reserved.

  • 14.
    Gustafsson, Silje
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Vikman, Irene
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Hälsa och rehabilitering.
    Psychometric evaluation of a Swedish self-efficacy scale and recovery locus of control scale in the context of minor illness2013Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 27, nr 3, s. 765-772Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Reliable and valid instruments are essential when examining the role of self-efficacy and locus of control in the self-care context. The aim of this study was to test the validity and reliability of the Self-Efficacy Scale in Self-Care (SESSC) and the Swedish version of the Recovery Locus of Control scale (RLoC) in the context of minor illness. A descriptive correlational design was used to assess the psychometric characteristics of the scales. The study population was 317 randomly selected Swedish inhabitants aged 18–80. The results from this study showed that the RLoC has limitations in reliability and validity and should not be applied in the context of self-care of minor illness. The SESSC proved to be a reliable and valid instrument in assessing self-efficacy in self-care for minor illness.

  • 15.
    Gustafsson, Silje
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Vikman, Irene
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Hälsa och rehabilitering.
    Axelsson, Karin
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Self-care for minor illness2015Inngår i: Primary Health Care Research and Development, ISSN 1463-4236, E-ISSN 1477-1128, Vol. 16, nr 1, s. 71-78Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Aim: To describe experiences with and knowledge of minor illness, self-care interventions used in minor illness and channels of information used when providing self-care for minor illness.Background: Although minor illness is self-limiting, symptoms can be substantial and have a great impact on the affected person’s wellbeing. Possibilities to seek and find information about health and self-care have significantly increased through internet-based communities, forums, and websites. Still, a considerable number of consultations with general practitioners are for conditions that are potentially self-treatable. Seeking advanced care for minor illnesses is costly for society and can create discomfort for patients as they are down-prioritized at emergency departments.Methods: Study participants were recruited randomly from the Swedish Adress Register. A questionnaire was sent out, and the final sample included 317 randomly selected persons aged 18–80 and living in Sweden.Findings: Having experienced a specific illness correlated with self-reported knowledge. Preferred self-care interventions differed between different conditions, but resting and self-medicating were commonly used, along with consulting health care facilities. Compliance to advice was the highest for official information channels, and family members were a popular source of advice.

  • 16.
    Gustafsson, Silje
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Vikman, Irene
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Hälsa och rehabilitering.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Martinsson, Jesper
    Luleå tekniska universitet, Institutionen för teknikvetenskap och matematik, Matematiska vetenskaper.
    Perceptions of needs related to the practice of self-care for minor illness2015Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 24, nr 21-22, s. 3255-3265Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Aims and objectivesThe aim of this study was to describe people's perceptions of needs to feel confident in self-care for minor illnesses as well as their perceptions about supporting and obstructing factors in the practice of self-care.BackgroundMinor illness constitutes a large part of primary care, and patients' attendance to doctors' appointments for minor illness has been seen to increase future attendance for the same condition. Almost half of the consultations with telenurses result in the provision of self-care advice.DesignA cross-sectional survey.MethodPrimary data were collected using a questionnaire, and the study participants (n = 315) were randomly selected from the national Swedish address register.ResultsHaving knowledge and receiving health care advice and reliable information were perceived to be needs in order for participants to feel confident in self-care. Having family or friends to consult with was perceived to be a positive factor influencing confidence in self-care, especially for persons under the age of 35. Health care services were perceived to support self-care practice by offering easy access to care, giving information about self-care, and offering increased follow-up after consultations. Lack of knowledge, along with difficulties being away from work, were obstructing factors in the practice of self-care.ConclusionsYoung age was the factor influencing people's perceptions of needs and supporting factors the most. Young age and low knowledge scores about minor illnesses were the two factors that had the most influence on perceived obstructing factors.Relevance to clinical practiceNurses play a major role in the promotion of self-care and in the dissemination of self-care advice. If health care services fail to meet the needs of care-seekers with minor illnesses, patients might turn to out-of-hours clinics and emergency departments for help.

  • 17.
    Hallberg, Josef
    et al.
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, Signaler och system.
    Kikhia, Basel
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, Datavetenskap.
    Bengtsson, Johan
    InterNIT.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Synnes, Kåre
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, Datavetenskap.
    Reminiscence processes using life-log entities for persons with mild dementia2009Inngår i: Proceedings of the First International Workshop on Reminiscence Systems (RSW-2009): Cambridge, UK, 5 September, 2009, 2009, s. 16-21Konferansepaper (Fagfellevurdert)
    Abstract [en]

    In this paper we present the reminiscence process in a prototype memory support tool for persons with mild dementia. The purpose is to promote autonomy for persons with mild dementia by supporting actualization and maintenance of episodic memories, and real-time access to a context-annotated life log.  The main research challenges are defined with a user scenario, Suitable reminiscence methods and memory entitities to reperesent life logs are described, and a preliminary architecture is presented. Finally an early design of a concrete ReviewClient is shown, to solicit feedback on the reminiscence methods, entitites chosen, architecture and the usability of the proposed interface.

  • 18.
    Harrefors, Christina
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Lundquist, Anders
    Department of Statistics, Umeå University.
    Lundquist, Bengt
    Department of Statistics, Umeå University.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Professional caregivers’ perceptions on the prerequisites for and consequences of people with mild dementia using a digital photo diary2013Inngår i: Open Journal of Nursing, ISSN 2162-5336, E-ISSN 2162-5344, Vol. 3, nr 1, s. 42-54Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Research is currently ongoing to investigate the use of assistive technology by people with mild dementia to support independent living at home. The aim of this study was to describe professional caregivers’ perceptions on the prerequisites for and consequences of people with mild dementia using a digital photo diary to facilitate their talks about daily events with their family members. A questionnaire was sent out to 582 participants (response rate 70.1%) to elucidate the professional caregivers’ perceptions on the use of the digital photo diary. The questionnaire contained both quantitative and qualitative data and was analyzed with descriptive statistics, factor analysis, multivariate analysis of covariance and qualitative content analysis. This study reports the results related to prerequisites and consequences of using the photo diary. The results from the factor analysis revealed four factors: Trust, Vulnerability, Dependency/Independency and Control. The qualitative content analysis resulted in five categories: Immediate implementation after receiving a diagnose is required, Relatives’ participation is a necessity, Strengthened self-esteem and meaningful everyday life, Increased alienation and a feeling of isolation and Assistive digital devices provide opportunities. The theme was interpreted as: Personalization and the preservation of dignity. The conclusion that can be drawn from this study is that the participants had an overall positive view of the usage of this specific digital photo diary for people suffering from dementia, but rigorous considerations needs before implementation of the device and regularly follow ups if dignity is to be maintained for people with dementia.

  • 19.
    Harrefors, Christina
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Sävenstedt, Stefan
    Using assistive technology services at differing levels of care: healthy older couples' perceptions2010Inngår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 66, nr 7, s. 1523-1532Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Aim.: The aim of the study was to describe healthy older couples' perceptions of using assistive technology services when needing assistance with care. Background.: The use of information technology-based assistive technology services in elder care has increased as a result of an increase of care performed in private homes. The use of assistive technology services in care of older people at home has been evaluated as something positive by patients, relatives and nursing staff, while as resistance to their increased use has also been noted. Method.: Twelve healthy couples, aged over 70 years, from northern Sweden were interviewed in 2005 about their perceptions of using assistive technology services in the case of being in need of assistance with personal care. Open, individual semi-structured interviews supported by written vignettes describing three levels of caring needs were used and the data analysed with content analysis. Findings.: The findings were interpreted as one main theme with three categories: Asset or threat depends on caring needs and abilities. Three categories were identified within the theme: Assistive technology services provide an opportunity; The consequences of using assistive technology services are hard to anticipate; and Fear of assistive technology services when completely dependent on care. Conclusion.: Trust and security in the care of older people who are severely ill, dependent on care and living at home should be a hallmark in using assistive technology services. Human presence is an important dimension and must be considered when developing concepts for use of assistive technology services.

  • 20. Harrefors, Christina
    et al.
    Sävenstedt, Stefan
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Elderly people's perceptions of how they want to be cared for: an interview study with healthy elderly couples in Northern Sweden2009Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 23, nr 2, s. 353-360Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Many countries encounter a demographic change where the number of elderly people will increase. As a result, the number of very old people needing care, services and medical assistance will increase. Care in the private home is often described as providing the best alternative for many elderly people. The aim of this study was to describe elderly people's perceptions of how they wanted to be cared for, from a perspective of becoming in need of assistance with personal care, in the future. Twelve couples of healthy elderly people living in a couple hood participated in an interview study. They were all 70 years and older and received no kind of professional care or social support. Open individual semi-structured interviews were conducted with the support of written vignettes. The vignettes were formed as scenarios that described three levels of caring needs where the elderly people would become ill. A qualitative content analysis was used to analyse the interviews. The findings were interpreted in one main theme: maintaining the self and being cared for with dignity to the end. The theme was built from three categories: at home as long as possible, professional care at nursing home when advanced care is needed and fear of being abandoned. The categories reflect the perception that when minimum help was needed, care and support by the partner and nursing staff were preferred. As the scenarios changed to being totally dependent on care, they preferred care in a nursing home. There was a pervading concern of the risk of not being seen as an individual person and becoming a nobody with no meaningful relations. Thus, there must be a singular goal to support old people, in all stages of their lives, through the recognition and affirmation of self, and providing care with dignity to the end.

  • 21.
    Harrefors, Christina
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Axelsson, Karin
    Healthy older persons perceptions about care and the use of Assistive Technology Services (ATS)2010Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 19, nr Suppl. 1, s. 54-Artikkel i tidsskrift (Annet vitenskapelig)
    Abstract [en]

    Introduction: Dignity is a basic concept for quality care regardless of how and where care is given. Researchers have described the use of Assistive Technology Services (ATS) in order to promote quality care and support of older persons. However, in perceptions of the use of ATS there are values imbedded that only to limited extent are studied. The aim of this study was therefore to describe healthy older persons' perception about care and the use of ATS.Methods and Materials: Qualitative research interviews were conducted with twelve healthy older couples living in their own homes. All participants were 70 years of age or older and received no professional care or social support. Open, individual, semi-structured interviews were conducted with the support of written vignettes where three levels of care needs were described. A qualitative content analysis was used to analyze the interviews. Results: Regardless of whether participants were discussing quality care in general or ATS supported care, they were convinced that the best place to receive care was the home. Values associated with the use of ATS in care were closely connected to the ability of being in control of the care situation. ATS as a tool to facilitate care was perceived as an asset as long as the couples were in control of their care situation. Hesitation in their abilities to use ATS increased if they lacked a partner and their cognitive impairment increased. Regardless of other factors, dignity is highly valued, and has greater importance when other values like autonomy and independence are reduced. Conclusion: These findings highlight older persons' values about quality care and the use of ATS in care and should be taken into consideration when planning care of older persons, and implementing new technology related to their care. It is necessary that politicians and care planners explore various options to deliver the best care, as perceived by older persons.

  • 22.
    Harrefors, Christina
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Lundquist, Anders
    Department of Statistics, Umeå University.
    Lundquist, Bengt
    Department of Statistics, Umeå University.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Professional caregivers' perceptions on how persons with mild dementia might experience the usage of a digital photo diary2012Inngår i: Open Nursing Journal, ISSN 1874-4346, E-ISSN 1874-4346, Vol. 6, nr 1, s. 20-29Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Cognitive impairments influence the possibility of persons with dementia to remember daily events and maintain a sense of self. In order to address these problems a digital photo diary was developed to capture information about events in daily life. The device consisted of a wearable digital camera, smart phone with Global Positioning System (GPS) and a home memory station with computer for uploading the photographs and touch screen. The aim of this study was to describe professional caregiver's perceptions on how persons with mild dementia might experience the usage of this digital photo diary from both a situation when wearing the camera and a situation when viewing the uploaded photos, through a questionnaire with 408 respondents. In order to catch the professional caregivers' perceptions a questionnaire with the semantic differential technique was used and the main question was "How do you think Hilda (the fictive person in the questionnaire) feels when she is using the digital photo diary?". The factor analysis revealed three factors; Sense of autonomy, Sense of self-esteem and Sense of trust. An interesting conclusion that can be drawn is that professional caregivers had an overall positive view of the usage of digital photo diary as supporting autonomy for persons with mild dementia. The meaningfulness of each situation when wearing the camera and viewing the uploaded pictures to be used in two different situations and a part of an integrated assistive device has to be considered separately. Individual needs and desires of the person who is living with dementia and the context of each individual has to be reflected on and taken into account before implementing assistive digital devices as a tool in care.

  • 23.
    Holmdahl, Solveig
    et al.
    Norrbotten County Council, Luleå.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Imoni, RoseMarie
    Norrbotten County Council, Luleå.
    Parenteral nutrition in home-based palliative care: Swedish district nurses experiences2014Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 28, nr 1, s. 89-96Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    AimThe aim of this study was to describe the experiences of district nurses in caring for patients with home-parenteral nutrition (HPN) in palliative care.MethodA qualitative approach was adopted using thematic content analysis of semi-structured interviews. Twelve district nurses working with primary health care in Sweden participated in the study that was conducted during 2011.FindingsThe analysis resulted in one overarching theme: The agony of terminating hope and three categories: all focus is on the infusion, alone without support, confidence in the relationship. HPN seemed to have a symbolic meaning when patients and family members connected the infusion with hope and life. District nurses expressed that they felt alone with the responsibility for the HPN due to the lack of a structured plan. Difficult discussions around termination of the infusion seemed to be connected to a feeling of agony of terminating hope among the district nurses. All district nurses expressed a need for support in their work, and factors like experience and the development of a good relationship with the patient and the family, could decrease the agony.ConclusionThe draw up of a plan when starting HPN, could be a support for the district nurse and make the aim, follow-up and future termination clearer. The establishment of a plan could make the work easier and reduce the feeling of agony of terminating hope among the district nurses.

  • 24.
    Hopper, Louise
    et al.
    Dublin City University (DCU).
    Karakostas, Anastasios
    Centre for Research and Technology Hellas (CERTH), Thessaloniki.
    König, Alexandra
    Intelligent Assistive Technology and Systems Lab (IATSL), Toronto Rehabilitation Institute, University of Toronto.
    Sävenstedt, Stefan
    Kompatsiaris, Ioannis
    Centre for Research and Technology Hellas (CERTH), Thessaloniki.
    The personal and societal impact of the den´mentia ambient care (Dem@care) multi-sensor remot-monitoring demential care system2016Inngår i: Alzheimer's & Dementia, ISSN 1552-5260, E-ISSN 1552-5279, Vol. 12, nr 7 Suppl., s. P149-Artikkel i tidsskrift (Fagfellevurdert)
  • 25.
    Häggström, Terttu
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Guiding for re-direction of life-stories: narrated experience of female professionals working among girls living on the streets in East Africa2004Inngår i: Workgroup of European nurse researchers. Biennial conference (12 : Lisboa : 2004), WENR , 2004, s. 83-Konferansepaper (Annet vitenskapelig)
  • 26. Iranmanesh, Sedigheh
    et al.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Häggström, Terttu
    Caring for dying and meeting death: experiences of Iranian and Swedish nurses2010Inngår i: Indian Journal of Palliative Care, ISSN 0973-1075, E-ISSN 1998-3735, Vol. 16, nr 2, s. 90-96Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objective: Our world is rapidly becoming a global community, which creates a need to further understand the universal phenomena of death and professional caring for dying persons This study thus was conducted to describe the meaning of nurses' experiences of caring for dying people in the cultural contexts of Iran and Sweden. Materials and Methods: Using a phenomenological approach, phenomenon of caring for dying people was studied.Eight registered nurses who were working in oncology units in Tehran, Iran and eight registered nurses working in hospital and home care in North part of Sweden were interviewed. The interviews were analyzed using the principles of phenomenological hermeneutics. Results: The findings were formulated based on two themes included: (1) "Sharing space and time to be lost", and (2) "Caring is a learning process Conclusions: The results showed that being with dying people raise an ethical demand that calls for personal and professional response, regardless of sex, culture or context The physical and organizational context must be supportive and enable nurses to stand up to the demands of close relationships Specific units and teamwork across various personnel seem to be a solution that is missing in Iran.

  • 27.
    Iranmanesh, Sedigheh
    et al.
    Kerman University of Medical Sciences, Faculty of Nursing and Midwifery.
    Ghazanfari, Zahra
    Kerman University of Medical Sciences, Faculty of Nursing and Midwifery.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Häggström, Terttu
    Narvik University College, 8505 Narvik, Norway.
    Professional development: Iranian and Swedish nurses' experiences of caring for dying people2011Inngår i: Journal of Palliative Care, ISSN 0825-8597, Vol. 27, nr 3, s. 202-209Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Our world is rapidly becoming a global community. This creates a need for us to further understand the universal phenomena of death and professional care for dying persons. A transcultural study was undertaken using a phenomenological approach to illuminate the meaning of nurses' experiences of professional development in the contexts of Iran and Sweden. Eight registered nurses working in oncology units in Tehran, Iran, and eight working in the context of a hospital and private homes in northern Sweden were interviewed. The interviews were analyzed using the principles of phenomenological hermeneutics inspired by Paul Ricoeur. A naive reading guided a structural analysis, which yielded four main themes: coping with existential, organizational, and cultural contexts; sharing knowledge, experiences, and responsibilities; using embodied knowledge; and developing personal competence. The interpreted comprehensive understanding revealed that the meaning of professional development is that it actualizes other-oriented values and self-oriented values. Caring professionally for dying people was a learning process that could help nurses to develop their personal and professional lives when they were supported by teamwork, reflective practice, and counselling.

  • 28.
    Iranmanesh, Sedigheh
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Häggström, Terttu
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Caring for dying people: attitudes among Iranian and Swedish nursing students2010Inngår i: Indian Journal of Palliative Care, ISSN 0973-1075, E-ISSN 1998-3735, Vol. 16, nr 3, s. 147-153Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Aim: To compare the attitudes of Iranian and Swedish nursing students toward caring for dying persons. Materials and Methods: Their attitudes were measured with the Frommelt′s Attitude Toward Caring of the Dying and the Death Attitude Profile Revised. Results: The results indicated that the participating Iranian students were more afraid of death and less likely to give care to dying persons than the Swedish participants. Conclusion: It is suggested that theoretical education should be individualized and culturally sensitive in order to positively influence the students′ attitudes, and promote professional development.

  • 29. Iranmanesh, Sedigheh
    et al.
    Häggström, Terttu
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Swedish nurses' experiences of caring for dying people: a holistic approach2009Inngår i: Holistic Nursing Practice, ISSN 0887-9311, E-ISSN 1550-5138, Vol. 23, nr 4, s. 243-52Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Most people need to be cared for at the end of their lives by professionals. This study aimed to elucidate the meaning of nurses' experiences of caring for dying persons at home and in a special unit in a hospital. Four registered nurses working in private homes and 4 registered nurses working in a specific unit in a hospital setting were interviewed. The study was planned and carried out with a phenomenological hermeneutic approach. A naive reading guided a structural analysis, which resulted in 3 main themes: meeting patients and family members as unique persons, learning in a challenging environment, and gaining personal strength. The interpreted comprehensive understanding conveyed a meaning that caring for families with a member awaiting the end of life created a situation where the presence of an inevitable death demanded nurses to create close relationships with each unique person involved.

  • 30.
    Iranmanesh, Sedigheh
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Abbaszadeh, Abbas
    Kerman University of Medical Sciences, Faculty of Nursing and Midwifery.
    Student nurses' attitudes towards death and dying in south-east Iran2008Inngår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 14, nr 5, s. 214-219Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    In this study, the attitudes of student nurses from Kerman and Bam in Iran towards death and caring for dying patients were compared. Two types of questionnaire were used: the DAP-R (Death Attitude Profile Revised) and FATCOD (Frommelt Attitude Towards Caring for Dying patients). The Bam student nurses, who had more experience of death due to the Bam earthquake in December 2003, were found to be less afraid of death and also less likely to give care to people at the end of life compared to their counterparts in Kerman. In both groups, those who were educated about death and dying had more positive attitudes towards caring for people who are dying than non-educated participants. The study suggests that adding palliative care education, accompanied by a reflective narrative approach, to the nursing curriculum is necessary to improve quality of care at the end of life.

  • 31.
    Karlsson, Eva
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Zingmark, Karin
    County Council of Norrbotten, Department of Research and Development.
    Fahlander, Kjell
    County Council of Norrbotten.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    "Carpe Diem": Supporting conversations between individuals with dementia and their family members2014Inngår i: Journal of Gerontological Nursing, ISSN 0098-9134, E-ISSN 1938-243X, Vol. 40, nr 2, s. 38-46Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Remembrance of recent events is a major problem for individuals with dementia. Consequently, this article explores the process of acceptance and integration of a digital photograph diary (DPD) as a tool for remembrance of and conversations about daily life events. A design for multiple case studies was used. Seven couples, in which one individual in the couple had Alzheimer's disease, tested the DPD for 6 months. Data were collected in three sequences with interviews, observations, and screening instruments. In the analysis, all data were integrated to find common patterns of content. Some couples became regular users, while others used the DPD more sporadically. Factors contributing to regular use were how the DPD matched expectations, actual use, support, experienced usefulness, and reactions from family and friends. For those couples who became regular users, the DPD facilitated their conversation about recent daily activities

  • 32.
    Karlsson, Eva
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Zingmark, Karin
    County Council of Norrbotten, Department of Research and Development.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    The challenge in meeting needs of persons with dementia with assistive technology2011Inngår i: e-health and nursing: How Can E-Health Promote Patient Safety? : ACENDIO 2011, 8th European Conference of ACENDIO / [ed] Fintan Sheerin, Dublin: Association for Common European Nursing Diagnoses, Interventions and Outcomes , 2011, s. 325-334Konferansepaper (Fagfellevurdert)
  • 33.
    Karlsson, Eva
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Zingmark, Karin
    County Council of Norrbotten, Department of Research and Development.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    The challenge of coming to terms with the use of a new digital assistive device: a case Study of two persons with mild dementia2011Inngår i: Open Nursing Journal, ISSN 1874-4346, E-ISSN 1874-4346, Vol. 5, s. 102-110Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    There is an increased interest in supporting persons with dementia with technical services in daily life. The aim of this case study was to explore the complex issues involved in the process from a user driven development to the acceptance and usage of a new digital assistive device for persons with mild dementia. Even though it was developed in a user driven process and personalized to meet their individual needs they rarely used it. To deepening the understanding of this disparity between actual usage and perceived usefulness, the participants were studied whilst performing daily life activities through participant observations and interviews. Their partners were interviewed two years after the first observations to clarify the change in needs over time. The results show that the participant needs encompassed occupation, safety, social interaction, and memory support together with the receipt of general support. The overriding requirement for both participants was a need to maintain their self-image. When the digital assistive device did not correspond with the participants’ expectations or view of themselves, their interest in using it faded, since the digital assistive device failed to support their self-image. The acceptance of a digital assistive device by a person with dementia is a process that begins with identifying and personalizing the functions of the device according to individual needs, and then supporting the usage and the gradual integration of the device into daily life. During this process, the person’s selfimage must be taken into consideration and supported

  • 34.
    Karlsson, Eva
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Zingmark, Karin
    County Council of Norrbotten, Department of Research and Development.
    Stories about life narrated by people with Alzheimer's disease2014Inngår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 70, nr 12, s. 2791-2799Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    AimTo explore how people with Alzheimer's disease present their life story.BackgroundLife story work is a key concept in a person-centred care. An important aspect in understanding the subjective experience and supporting the identity of people with dementia is to listen to their life stories.DesignA narrative design with interviews was used.MethodNine participants with Alzheimer's disease were encouraged to tell about their lives from childhood, adult life, to present life and about their thoughts on the future. The interviews were conducted between September 2010–March 2011 in the participants' homes, with their spouses present and were analysed with a method for analysis of narratives.FindingsContentment, Connectedness, Self-reliance and Personal growth were identified as core dimensions in the participants' life stories and shown like threads throughout life, from childhood, adult life to present life. All participants expressed an overall contentment with life, and connectedness was related to their relation with significant persons and to be included in the local community. Self-reliance was expressed as a strong confidence in the own ability and an overall curiosity throughout life as a sustained quest for personal growth.ConclusionsIt is important for healthcare professionals, who work with people with dementia, to understand that people with Alzheimer's disease can maintain an overall trusting and hopeful approach to life. It is also important to use life story work to enhance feelings of being connected to the world and thereby support their identity and sense of self.

  • 35.
    Karlsson, Eva
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Zingmark, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Aspects of Self and Identity in Narrations About Recent Events: Communication With Individuals With Alzheimer's Disease Enabled by a Digital Photograph Diary2017Inngår i: Journal of Gerontological Nursing, ISSN 0098-9134, E-ISSN 1938-243X, Vol. 43, nr 6, s. 25-31Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The ability to narrate autobiographical memories is important for maintaining the identity of individuals with Alzheimer's disease (AD). The current study explored how the sense of self is manifested in narrations about recent events, enabled via a digital photograph diary. Use of a digital photograph diary was tested with seven individuals with AD and their household members. Narrative analysis was used to analyze audiorecordings of the pairs' communication about recent events shown in the photographs. The results show how individuals with AD understand events illustrated in recent photographs in relation to their sense of self and associated skills and abilities that are facets of their selfhood. This type of digital photograph diary has the potential to support individuals with AD to maintain their sense of self and participation in everyday life, and strengthen their relationships with household members; it could be an important tool in person-centered care.

  • 36. Karlsson, Maria
    et al.
    Sävenstedt, Stefan
    Betydelsefull menter som komplement till handläggning: en uppföljningsstudie av Naturutbildningen, ett lokalt behandlingsprojekt för yngre män med missbruksproblem i Gällivare2006Rapport (Annet vitenskapelig)
  • 37. Kikhia, Basel
    et al.
    Bengtsson, Johan
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, Datavetenskap.
    Melander, Catharina
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Life logging in the context of dementia care: My life story2015Inngår i: Alzheimer's & Dementia, ISSN 1552-5260, E-ISSN 1552-5279, Vol. 11, nr 7, s. P165-Artikkel i tidsskrift (Fagfellevurdert)
  • 38.
    Kikhia, Basel
    et al.
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, Datavetenskap.
    Hallberg, Josef
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, Signaler och system.
    Bengtsson, Johan
    InterNIT.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Synnes, Kåre
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, Datavetenskap.
    Building digital life stories for memory support2010Inngår i: International Journal of Computers in Healthcare, ISSN 1755-3199, Vol. 1, nr 2, s. 161-176Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The number of persons suffering from dementia is increasing, and there is significant human and economic value to gain by enabling them to keep living independently in their homes. The top priority unmet need is for memory support. This paper introduces context-awareness and life-logging in a system using reminiscence therapy methods, embodied as an ICT memory aid for recording past, current and future activities, which can later be recalled. The tool may help build or maintain episodic memories and self-image, although evidence in this area is lacking. It is designed to also give direct and instrumental support in other priority needs areas. A prototype design is described for a system that is by necessity extremely easy to use, with a touch screen computer in the home and mobile devices for data capture and cognitive support. The main life-log entities associated with the logged activities are places, persons, personal items, and recorded media. Privacy, trust and dignity are key ethical issues.

  • 39.
    Kikhia, Basel
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Stavropoulos, Thanos G.
    Information Technologies Institute, Centre for Research & Technology Hellas.
    Andreadis, Stelios
    Information Technologies Institute, Centre for Research & Technology Hellas.
    Karvonen, Niklas
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, Datavetenskap.
    Kompatsiaris, Ioannis
    Information Technologies Institute, Centre for Research & Technology Hellas.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Pijl, Marten
    Personal Health Solutions, Philips Research.
    Melander, Catharina
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Utilizing a Wristband Sensor to Measure the Stress Level for People with Dementia2016Inngår i: Sensors, ISSN 1424-8220, E-ISSN 1424-8220, Vol. 16, nr 12, artikkel-id 1989Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Stress is a common problem that affects most people with dementia and their caregivers. Stress symptoms for people with dementia are often measured by answering a checklist of questions by the clinical staff who work closely with the person with the dementia. This process requires a lot of effort with continuous observation of the person with dementia over the long term. This article investigates the effectiveness of using a straightforward method, based on a single wristband sensor to classify events of "Stressed" and "Not stressed" for people with dementia. The presented system calculates the stress level as an integer value from zero to five, providing clinical information of behavioral patterns to the clinical staff. Thirty staff members participated in this experiment, together with six residents suffering from dementia, from two nursing homes. The residents were equipped with the wristband sensor during the day, and the staff were writing observation notes during the experiment to serve as ground truth. Experimental evaluation showed relationships between staff observations and sensor analysis, while stress level thresholds adjusted to each individual can serve different scenarios.

  • 40.
    Kikhia, Basel
    et al.
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, Datavetenskap.
    Stavropoulos, Thanos G.
    Information Technologies Institute, Centre for Research & Technology Hellas.
    Meditskos, Georgios
    Information Technologies Institute, Centre for Research & Technology Hellas.
    Kompatsiaris, Ioannis
    Information Technologies Institute, Centre for Research & Technology Hellas.
    Hallberg, Josef
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, Datavetenskap.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Melander, Catharina
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Utilizing ambient and wearable sensors to monitor sleep and stress for people with BPSD in nursing homes2018Inngår i: Journal of Ambient Intelligence and Humanized Computing, ISSN 1868-5137, E-ISSN 1868-5145, Vol. 9, nr 2, s. 261-273Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Clinical assessment of behavioral and psychological symptoms of dementia (BPSD) in nursing homes is often based on staff member’s observations and the use of the Neuropsychiatric Inventory-Nursing Home version (NPI-NH) instrument. This requires continuous observation of the person with BPSD, and a lot of effort and manual input from the nursing home staff. This article presents the DemaWare@NH monitoring framework system, which complements traditional methods in measuring patterns of behavior, namely sleep and stress, for people with BPSD in nursing homes. The framework relies on ambient and wearable sensors for observing the users and analytics to assess their conditions. In our proof-of-concept scenario, four residents from two nursing homes were equipped with sleep and skin sensors, whose data is retrieved, processed and analyzed by the framework, detecting and highlighting behavioral problems, and providing relevant, accurate information to clinicians on sleep and stress patterns. The results indicate that structured information from sensors can ease and improve the understanding of behavioral patterns, and, as a consequence, the efficiency of care interventions, yielding a positive impact on the quality of the clinical assessment process for people with BPSD in nursing homes.

  • 41.
    Meiland, F.J.M.
    et al.
    VU University Medical Center.
    Bouman, A.I.E.
    VU University Medical Center.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Bentvelzen, S.
    VU University Medical Center.
    Davies, R.J.
    University of Ulster.
    Mulvenna, M.D.
    University of Ulster.
    Nugent, C.D.
    University of Ulster.
    Moelaert, F.
    Novay, Enschede.
    Hettinga, M.E.
    Christelijke Hogeschool Windesheim, Zwolle.
    Bengtsson, J.E.
    Cogknow Ltd., Gateway Center, Hamrun.
    Dröes, R-M
    VU University Medical Center.
    Usability of a new electronic assistive device for community-dwelling persons with mild dementia2012Inngår i: Aging & Mental Health, ISSN 1360-7863, E-ISSN 1364-6915, Vol. 16, nr 5, s. 584-591Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objective: To evaluate a newly developed integrated digital prosthetic, the COGKNOW Day Navigator (CDN), to support persons with mild dementia in their daily lives, with memory, social contacts, daily activities and safety. Methods: A user participatory method was applied in the development process, which consisted of three iterative 1-year cycles with field tests in Amsterdam, Belfast and Luleå. In the successive cycles 16, 14 and 12 persons with dementia and their carers participated. Data on usability were collected by means of interviews, observations, questionnaires, logging and diaries. The CDN prototype consists of a touch screen, a mobile device, sensors and actuators. Results: The evaluation showed that persons with dementia and carers valued the CDN overall as user-friendly and useful. Conclusions regarding the effectiveness of the system in daily life were limited due to insufficient duration of the testing period caused by delays in development and some instability of the final prototype. Conclusion: With the suggested adaptations, the CDN is expected to be a useful tool for supporting communitydwelling persons with mild dementia and their carers.

  • 42.
    Melander, Catharina
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Kikhia, Basel
    Olsson, Malin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Välivaara, Britt-Marie
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Assessment and evaluation of interventions in bpsd with the help of a multiple sensor system2015Inngår i: Alzheimer's & Dementia, ISSN 1552-5260, E-ISSN 1552-5279, Vol. 11, nr 7, s. P164-P165Artikkel i tidsskrift (Fagfellevurdert)
  • 43.
    Melander, Catharina
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Kikhia, Basel
    Faculty of Health and Sport Sciences, Centre for EHEALTH, University of Agder, Grimstad, Norway.
    Olsson, Malin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Wälivaara, Britt-Marie
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    The impact of using measurements of electrodermal activity in the assessment of problematic behaviour in dementia2018Inngår i: Dementia and geriatric cognitive disorders extra, E-ISSN 1664-5464, Vol. 8, nr 3, s. 333-347Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: A major and complex challenge when trying to support individuals with dementia is meeting the needs of those who experience changes in behaviour and mood. Aim: To explore how a sensor measuring electrodermal activity (EDA) impacts assistant nurses' structured assessments of problematic behaviours amongst people with dementia and their choices of care interventions. Methods: Fourteen individuals with dementia wore a sensor that measured EDA. The information from the sensor was presented to assistant nurses during structured assessments of problematic behaviours. The evaluation process included scorings with the instrument NPI-NH (Neuropsychiatric Inventory-Nursing Home version), the care interventions suggested by assistant nurses to decrease problematic behaviours, and the assistant nurses' experiences obtained by focus group interviews. Results: The information from the sensor measuring EDA was perceived to make behavioural patterns more visual and clear, which enhanced assistant nurses' understanding of time-related patterns of behaviours. In turn, this enhancement facilitated timely care interventions to prevent the patterns and decrease the levels of problematic behaviour. Conclusion: With the addition of information from the sensor, nursing staff could target causes and triggers in a better way, making care interventions more specific and directed towards certain times throughout the day to prevent patterns of problematic behaviours.

  • 44.
    Melander, Catharina
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Olsson, Malin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Välivaara, Britt-Marie
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Assessing BPSD with the support of the NPI-NH: a discourse analysis of clinical reasoning2018Inngår i: International psychogeriatrics, ISSN 1041-6102, E-ISSN 1741-203X, Vol. 30, nr 4, s. 581-589Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The ability of nursing staff to assess and evaluate behavioral and psychological symptoms of dementia (BPSD) to determine when intervention is needed is essential. In order to assist with the assessment process, the current use of the Neuropsychiatric Inventory Nursing Home version (NPI-NH) is internationally accepted. Even though the NPI-NH is thoroughly validated and has several advantages, there are also various challenges when implementing this system in practice. Thus, the aim of this study was to explore clinical reasoning employed by assistant nurses when utilizing the NPI-NH as a tool to assess frequency and severity of BPSD in individuals with advanced dementia.

    Twenty structured assessment sessions in which assistant nurses used the NPI-NH were audio recorded and analyzed with a discourse analysis focusing on the activities in the communication.

    Four categories were identified to convey assistant nurses' clinical reasoning when assessing and evaluating BPSD using the NPI-NH: considering deteriorations in ability and awareness, incorporating individual and contextual factors, overcoming variations in behaviors and ambiguous formulations in the instrument, and sense-making interactions with colleagues.

    The NPI-NH served as a supportive frame and structure for the clinical reasoning performed during the assessment. The clinical reasoning employed by assistant nurses became a way to reach a consensual and broader understanding of the individual with dementia, with the support of NPI-NH as an important framework.

  • 45.
    Melander, Catharina
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Välivaara, Britt-Marie
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Olsson, Malin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Human capabilities in advanced dementia: Nussbaum's approach2018Inngår i: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 13, nr 2, artikkel-id 12178Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Aims and objectives

    To explore how Martha Nussbaum's approach to human capabilities can apply to dignity in the lives of people with advanced dementia living in nursing homes.

    Background

    Challenges experienced when supporting people with advanced dementia who express problematic behaviours include understanding their needs and ensuring a dignified life for them.

    Design and methods

    Data were gathered using an ethnographic approach based on participatory observation. Nussbaum's capability approach was then used as a framework for the analysis. Four women diagnosed with advanced dementia who also expressed problematic behaviours were recruited from a nursing home in Northern Sweden. The data collection was performed during 2015.

    Findings

    Individuals with advanced dementia had difficulties in participating in the planning of their lives and achieving the human capability of practical reasoning. They were also at risk of being placed outside the social group, thus hindering them from attaining the human capability of affiliation. A dignified life for individuals with advanced dementia requires nursing staff to be present and to provide adapted support to ensure that the individual can actually pursue human capabilities.

    Conclusion

    Creating opportunities for the human capabilities of practical reasoning and affiliation is essential as they permeate all other human capabilities. For these individuals, it was crucial not only to create opportunities for human capabilities but also to attend to their expressions and needs and to guide and steer them towards a dignified life.

    Implications for Practice

    The normative structure of the capability approach described by Nussbaum can ensure that nursing staffs move beyond fulfilling patients’ basic needs to consider other capabilities vital for a dignified life.

  • 46.
    Mulvenna, Maurice
    et al.
    TRAIL Living Lab, University of Ulster.
    Martin, Suzanne
    TRAIL Living Lab, University of Ulster.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Bengtsson, Johan
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, CDT.
    Meiland, Franka
    Department of Psychiatry, Alzheimer centre, VU University Medical Center.
    Dröes, Rose Marie
    Department of Psychiatry, Alzheimer centre, VU University Medical Center.
    Hettinga, Marike
    Novay, Enschede.
    Moelaert, Ferial
    Novay, Enschede.
    Craig, David
    Department of Elderly Care, School of Medicine, Queen's University, Belfast.
    Designing & evaluating a cognitive prosthetic for people with mild dementia2011Inngår i: ECCE 10: Proceedings of the 28th Annual European Conference on Cognitive Ergonomics, New York: ACM Digital Library, 2011, s. 11-18Konferansepaper (Fagfellevurdert)
    Abstract [en]

    Motivation - Develop a portable, mobile information and communication device with specific applications that meet the identified needs of people with mild dementia. Research approach - A qualitative study with a user centred design was applied: Three iterative development cycles of one year each were performed, in which around 15 persons with mild dementia and their carers participated in each cycle of development to attune the functions and form of the cognitive prosthetic to their needs and wishes. A mixed methods approach of qualitative interviews and standardised tools were used for the evaluations that were performed by formulating research questions and assigning appropriate methods for data collection before, during and after the field tests at the end of each development cycle. Findings/Design - The COGKNOW Day Navigator consists of a touch screen, a mobile device, sensors, a home hub and a central server. Several features such as colours and icons, can be adjusted to personal preferences, which was much appreciated by users. The functions to support people in their daily activities were overall appreciated, though there were individual differences in preferences and abilities to use them. Research limitations/Implications - It was recommended to perform an impact study within the target group for a longer period of time when the system is considered stable and to make use of a randomised controlled design in a larger study population. Originality/Value - The research built upon previous evidence of needs of people with mild dementia and the findings are valuable in directing further research and innovation. However, it was found that this technology can be complex to implement in a manner that ensures good quality of service delivery during field tests. Take away message - The work has shown the value of designing an analysis framework for development of assistive technology that gives a strong voice to people with dementia and their carers.

  • 47.
    Nugent, C.D.
    et al.
    University of Ulster. School of Computing and Mathematics.
    Davies, R.J.
    Computer Science Research Institute, University of Ulster.
    Donnelly, M.P.
    Computer Science Research Institute, University of Ulster.
    Hallberg, Josef
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, Signaler och system.
    Hariz, M.
    INT, Paris.
    Craig, D.
    Belfast City Hospital/Queen’s University of Belfast.
    Meiland, F.
    Department of Psychiatry, Alzheimer centre, VU University Medical Center.
    Moelaert, F.
    Telematica Instituut, Enschede.
    Bengtsson, Johan
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, CDT.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Mulvenna, M.
    Computer Science Research Institute, University of Ulster.
    Dröes, R-M
    Department of Psychiatry, Alzheimer centre, VU University Medical Center.
    The development of personalised cognitive prosthetics2008Inngår i: Proceedings of the 30th Annual International Conference of the IEEE Engineering in Medicine and Biology Society: EMBS'08 - "Personalized Healthcare through Technology" / [ed] Guy Dumont, Piscataway, NJ: IEEE Communications Society, 2008, s. 787-790Konferansepaper (Fagfellevurdert)
    Abstract [en]

    Persons suffering from mild dementia can benefit from a form of cognitive prosthetic which can be used to assist them with their day to day activities. Within our current work we are aiming to develop a successful user-validated cognitive prosthetic for persons with mild dementia. We have devised a three phased waterfall methodology to support our developments. Based on the evaluation of the first of these phases which involved the processes of user requirements gathering, prototype development and evaluation of in situ deployment of the technology we have been able to guide the technical development within the second phase of our work. Within this paper we provide an overview of the first phase of our methodology and demonstrate how we have used the results from this to guide the second phase of our work, especially with regards to the notion of personalisation.

  • 48.
    Nugent, Chris
    et al.
    Computer Science Research Institute, University of Ulster.
    Moelaert, Ferial
    Telematica Instituut, Enschede.
    Davies, Richard
    University of Ulster.
    Donnelly, Mark
    University of Ulster.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Meiland, Franka
    VU University Medical Center.
    Droes, Rose-Marie
    VU University Medical Center.
    Hettinga, Marike
    Telematica Instituut, Enschede.
    Craig, David
    Belfast City Hospital/Queen’s University of Belfast.
    Bengtsson, Johan
    Luleå tekniska universitet, Institutionen för system- och rymdteknik, CDT.
    Mulvenna, Maurice
    Computer Science Research Institute, University of Ulster.
    Evaluation of mobile and home based cognitive prosthetics2008Inngår i: Smart Homes and Health Telematics: 6th International Conference, ICOST 2008 Ames, IA, USA, June 28-July 2, 2008 Proceedings / [ed] Sumi Helal, Berlin: Encyclopedia of Global Archaeology/Springer Verlag, 2008, s. 18-25Konferansepaper (Fagfellevurdert)
    Abstract [en]

    Those suffering from mild dementia exhibit impairments of memory, thought and reasoning. It has been recognised that the deployment of technological solutions to address such impairments may have a major positive impact on quality of life. In the current paper we present results from the CogKnow Project following the evaluation of a suite of mobile and home based cognitive prosthetics to assist persons suffering from mild dementia. The results following an evaluation of the technology conducted with 16 people with mild dementia (and their carers) across 3 different trial sites are outlined. The paper concludes with details describing the process by which the outcomes of the evaluation will be used to guide the developments of a second generation of both mobile and home based cognitive prosthetic.

  • 49. Sundberg, Maria
    et al.
    Sävenstedt, Stefan
    Delaktighet i arbetet: en studie av ett socialt arbetskooperativ och ett kommunalt jobbcenter för människor med psykisk ohälsa2005Rapport (Annet vitenskapelig)
  • 50.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Activity: Home care supported by information technology, the impact on health care delivery from patients and providers perspective2001Konferansepaper (Annet (populærvitenskap, debatt, mm))
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