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  • 1.
    Andersson Grenholm, Emelie
    et al.
    Anderstorp Health Care Centre, Västerbotten County Council, Skellefteå.
    Söderström, Pernilla
    Bureå-Skelleftehamn Health Care Centre, Västerbotten County Council, Skelleftehamn.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Providing Breastfeeding Support: Experiences from Child-HealthNurses2016Ingår i: International Journal of Child Health and Nutrition, ISSN 1929-4247, Vol. 5, nr 4, s. 126-134Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Breastfeeding problems are common during the early period but can often be prevented or overcome with adequate support. Child-health nurses meet almost all children during their first weeks of life and play an important role in promoting breastfeeding and in strengthening parents’ confidence and their belief in their own ability. It is, therefore, important to gain more knowledge about child-health nurses’ experiences. Objective: To describe child-health nurses’ experiences of providing breastfeeding support. Methods: This qualitative study is descriptive with an inductive approach. A purposive sample of eight child-health nurses recruited from district health care centers participated. Data were collected through focus group interviews and analyzed with content analysis. Results: Child-health nurses consider it to be important to provide early breastfeeding support and that early hospital discharge following birth can complicate breastfeeding. Furthermore, the introduction of infant formula and tiny tastes given to the baby can be a barrier to breastfeeding. Parents’ confidence had an effect on breastfeeding, and breastfeeding is promoted by confident parents. Trends and cultural differences have an influence on parents’ attitudes toward breastfeeding. Child-health nurses stated the importance of having a consensus breastfeeding policy. Conclusion and Recommendation: A number of factors affect breastfeeding, and breastfeeding support from child-health nurses is important in the early stages after birth. To conclude, the support must be individually tailored with a focus on the parents’ needs. There is a need for greater cooperation between the maternal care and child-health care staff in order to provide adequate and continuous breastfeeding support throughout the care chain.

  • 2.
    Fisher, Duncan
    et al.
    The Family Initiative, Heron House, Chiswick Mall, London, W4 2PR, UK.
    Khashu, Minesh
    Poole Hospital NHS Foundation Trust Poole, Dorset, BH15 2JB, UK; Bournemouth University, Bournemouth, BH1 2LT, UK.
    Adama, Esther A.
    Edith Cowan University School of Nursing and Midwifery in Perth, 270 Joondalup Drive, WA, 6027, Australia.
    Feeley, Nancy
    Centre for Nursing Research & Lady Davis Institute - Jewish General Hospital, McGill University, Montréal, Quebec, Canada.
    Garfield, Craig F.
    Departments of Pediatrics and Medical Social Sciences, Northwestern University Feinberg School of Medicine; Lurie Children's Hospital of Chicago, Chicago, IL, USA.
    Ireland, Jillian
    Poole Hospital NHS Foundation Trust Poole, Dorset, BH15 2JB, UK; Bournemouth University, Bournemouth, BH1 2LT, UK.
    Koliouli, Flora
    Centre d’Études des Rationalités et des Savoirs, Laboratoire Interdisciplinaire Solidarités, Sociétés, Territoires (LISST-CERS), University of Toulouse, 2-Jean Jaurès, 31058, Toulouse, France.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Nørgaard, Betty
    Department of Paediatrics, Lillebaelt Hospital, Sygehusvej 24, 6000, Kolding, Denmark.
    Provenzi, Livio
    0-3 Center for the at Risk Infant, Scientific Institute IRCCS Eugenio Medea, Via Don Luigi Monza 20, 23842, Bosisio Parini, LC, Italy.
    Thomson-Salo, Frances
    Centre for Women's Mental Health, Royal Women's Hospital, 20 Flemington Road, Carlton, 3053, Australia.
    van Teijlingen, Edwin
    Centre for Midwifery, Maternal & Perinatal Health, Faculty of Health & Social Sciences, Bournemouth House, 19 Christchurch Road, Bournemouth University, Bournemouth, BU1 3LH, UK.
    Fathers in neonatal units: Improving infant health by supporting the baby-father bond and mother-father coparenting2018Ingår i: Journal of Neonatal Nursing, ISSN 1355-1841, E-ISSN 1878-089X, Vol. 24, nr 6, s. 306-312Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The Family Initiative's International Neonatal Fathers Working Group, whose members are the authors of this paper, has reviewed the literature on engaging fathers in neonatal units, with the aim of making recommendations for improving experience of fathers as well as health outcomes in neonatal practice. We believe that supporting the father-baby bond and supporting co-parenting between the mother and the father benefits the health of the baby, for example, through improved weight gain and oxygen saturation and enhanced rates of breastfeeding. We find, however, that despite much interest in engaging with parents as full partners in the care of their baby, engaging fathers remains sub-optimal. Fathers typically describe the opportunity to bond with their babies, particularly skin-to-skin care, in glowing terms of gratitude, happiness and love. These sensations are underpinned by hormonal and neurobiological changes that take place in fathers when they care for their babies, as also happens with mothers. Fathers, however, are subject to different social expectations from mothers and this shapes how they respond to the situation and how neonatal staff treats them. Fathers are more likely to be considered responsible for earning, they are often considered to be less competent at caring than mothers and they are expected to be “the strong one”, providing support to mothers but not expecting it in return. Our review ends with 12 practical recommendations for neonatal teams to focus on: (1) assess the needs of mother and father individually, (2) consider individual needs and wants in family care plans, (3) ensure complete flexibility of access to the neonatal unit for fathers, (4) gear parenting education towards co-parenting, (5) actively promote father-baby bonding, (6) be attentive to fathers hiding their stress, (7) inform fathers directly not just via the mother, (8) facilitate peer-to-peer communication for fathers, (9) differentiate and analyse by gender in service evaluations, (10) train staff to work with fathers and to support co-parenting, (11) develop a father-friendly audit tool for neonatal units, and (12) organise an international consultation to update guidelines for neonatal care, including those of UNICEF.

  • 3.
    Jobe, Ingela
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Nordmark, Sofi
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad. Health Department, Norrbotten Region, Luleå.
    Engström, Åsa
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    The care‐planning conference: Exploring aspects of person-centered interactions2018Ingår i: Nursing Open, E-ISSN 2054-1058, Vol. 5, nr 2, s. 120-130Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aim

    The aim of this study was to describe the care-planning conference from the participants' and researchers' perspectives, focusing on exploring aspects of person-centred interactions.

    Design

    A single-instrumental, qualitative case study design was used describing a care-planning conference taking place in the home of an older woman and her daughter.

    Methods

    Data collection consisted of observation and digital recording of the care-planning conference and individual interviews with all the participants before and after the conference. Data were analysed in several phases: first, a narrative description followed by a general description and, thereafter, qualitative content analysis.

    Results

    The findings revealed that the care-planning conference conducted had no clear purpose and did not fulfil all parts of the planning process. Three themes emerged related to aspects of person-centred interactions. The theme “expectations meet reality” showed different expectations, and participants could not really connect during the conference. The theme “navigate without a map” revealed health professionals' lack of knowledge about the care-planning process. The theme “lose the forest for the trees” described that the conference was conducted only as part of the health professionals' duties. Management and healthcare professionals cannot automatically assume that they are delivering person-centred care. Healthcare professionals need to be sensitive to the context, use the knowledge and tools available and continuously evaluate and reassess the work carried out.

  • 4.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Access to videoconferencing in providing support to parents of preterm infants: Ascertaining parental views2013Ingår i: Journal of Neonatal Nursing, ISSN 1355-1841, E-ISSN 1878-089X, Vol. 19, nr 5, s. 259-265Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Having continued hospital support, even after returning home, in the form of videoconferencing between their home and neonatal intensive care unit (NICU), is of great importance for parents of preterm born infants. It is essential to elicit parents' views before providing videoconferencing access to parents. Therefore, the aim of this study was to ascertain the views of parents of preterm infants toward the use of real-time videoconferencing between their home and the NICU. Twelve parents, who participated in the study, were interviewed. Thematic content analysis of their interview texts was carried out. The analysis revealed three categories: willing to try; addition to the conventional care; might facilitate taking the step to go home. The theme identified from content analysis was ‘grabbing the chance to get extra support’. Parents view videoconferencing facility as a possible chance to get extra support. It appears to be one among several other ways to support families after returning home with their preterm infants.

  • 5.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Activity: Mother's experiences of having a preterm infant: a review2005Konferensbidrag (Övrig (populärvetenskap, debatt, mm))
  • 6.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Activity: Videoconferencing to support families with prematurely born infants2012Konferensbidrag (Övrig (populärvetenskap, debatt, mm))
  • 7.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Aktivitet: Betydelsen av livsåskådningssamtal: belyst från pappors upplevelse att få ett barn som är fött för tidigt2007Konferensbidrag (Övrig (populärvetenskap, debatt, mm))
  • 8.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Aktivitet: Betydelsen av livsåskådningssamtal: Belyst från pappors upplevelse att få ett barn som är fött för tidigt2006Konferensbidrag (Övrig (populärvetenskap, debatt, mm))
  • 9.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Aktivitet: Mödrars upplevelse av att få ett barn som är för tidigt fött2005Konferensbidrag (Övrig (populärvetenskap, debatt, mm))
  • 10.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Aktivitet: Möten mellan föräldrar som har fått ett barn som är för tidigt fött och vårdpersonal diskuterat ur ett etiskt perspektiv2008Konferensbidrag (Övrig (populärvetenskap, debatt, mm))
  • 11.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    E-health: a tool for providing support to families with prematurely born infants2011Konferensbidrag (Övrigt vetenskapligt)
  • 12.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    E-hälsa: IKT som hjälpmedel i hemmet2013Ingår i: Familjecentrerad neonatalvård, Lund: Studentlitteratur AB, 2013, s. 179-193Kapitel i bok, del av antologi (Övrig (populärvetenskap, debatt, mm))
  • 13.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Fathers' experiences of having an infant born prematurely2007Licentiatavhandling, sammanläggning (Övrigt vetenskapligt)
    Abstract [sv]

    Det övergripande syftet med denna licentiatuppsats var att beskriva pappors upplevelser av att få ett barn som är fött för tidigt. Tidigare forskning har till stor del fokuserat på mödrars erfarenhet av att få barn som är födda för tidigt. Det finns begränsad vetenskaplig kunskap när det gäller mäns upplever att få ett barn som är fött för tidigt. En sådan kunskap är viktig för att kunna möta och stödja dem utifrån deras unika upplevelser och behov. Detta visar på ett behov av forskning som belyser mäns upplevelser i samband med att få ett barn som är fött för tidigt.Licentiatuppsatsen består av två delstudier, delstudie I, där syftet var att beskriva pappors upplevelse av barnets födelse och delstudie II, där syftet var att beskriva upplevelsen att bli pappa till ett barn som är fött för tidigt. I studierna ingår åtta män, som har blivit pappa till ett barn som är fött för tidigt och där barnet har vårdats på en neonatalavdelning. Kriterier för att få delta i studien var följande: att vara pappa till ett barn som är fött för tidigt och som därigenom krävt vård på en neonatalavdelning, dessutom skall barnet vara fött innan graviditetsvecka 36. Kvalitativa forskningsintervjuer har använts som datainsamlingsmetod. Papporna ombads berätta om sina egna upplevelser av att få ett barn som föddes för tidigt. Intervjuerna spelades in och skrevs därefter ut ordagrant. Utifrån syftet valdes kvalitativ tematisk innehållsanalys som metod för att analysera intervjuerna.Resultatet visade att barnets födelse kom helt oväntad och beskrevs av papporna som att plötslig befinna sig i en situation som de aldrig tidigare hade reflekterat över skulle kunna hända. De hade ingen erfarenhet av för tidigt födda barn, vilket var något totalt nytt och helt oväntat. Männen hade svårigheter att förstå vad som hände, eftersom allt gick så snabbt och från början var det svårt för dem att hantera situationen. Bristen på egen kunskap medförde att de hade en mängd frågor. Att få veta vad som skedde och att få information beskrevs som nödvändigt och var en förutsättning för att känna mindre oro. Papporna såg det som viktigt att sätta mor och barn i första hand, de kände sig ansvariga för dem och vaktade för familjens bästa. Fokuseringen på mor och barn gjorde att de satte sina egna känslor åt sidan och glömde bort egna behov. Papporna oroade sig för att barnet inte skulle överleva, eller att barnet hade fått skador, samt hur barnet skulle påverkas i framtiden. Trots allt så upplevdes lycka och det var överväldigande att få bli pappa. Männen ville vara nära och mycket av stressen som upplevdes relaterades till att inte få vara tillsammans med mor och barn. Initialt så fungerade papporna som en länk mellan mor och barn. De ville vara en naturlig del i vården, men beskrev att de inte alltid fick vara involverade i den utsträckning som önskades.Männen utryckte att de hade egna behov och ville ha någon att prata med och någon som lyssnade på dem. Att få prata gjorde att det var lättare att bearbeta det som de hade gått igenom. Det tog tid innan de riktigt kunde känna sig som pappa. Männen såg även det som hade varit positivt med att barnet föddes för tidigt, som exempelvis tillfälle att få längre tid för att lära känna sitt barn och att känslorna för barnet växte hela tiden. Den tidiga födelsen medförde att papporna hade möjlighet att vara med barnet och att vara involverade i vården. De upplevde sig vara utbildade av professionella i att ta hand om sitt barn. Männen blev med tiden mer trygga i sin roll som pappa, men kände trots det behov av stöd under tiden på barnavdelningen. När familjen slutligen kom hem kunde den riktiga känslan av att vara pappa upplevas och livet blev mer normalt. Trots att det var förenat med mycket stress och påfrestningar så kunde papporna uppleva att de hade vunnit erfarenheter av det som de hade gått igenom, de hade vuxit som person och värderade livet på ett annorlunda sätt. Relationen till partnern hade stärkts, samtidigt som medvetenheten fanns om att det hade kunna leda till en kris i förhållandet. Allt eftersom tiden gick så upplevde männen att livet mer och mer återgick till det normala, barnet utvecklades och de tänkte mer sällan på att barnet var fött för tidigt.Trots att det finns likheter mellan att få ett barn som föds i fullgången tid och att få ett barn som föds för tidigt, så är det av stor vikt att ha kunskap och förståelse för de specifika upplevelser som pappor har efter att ha fått ett barns om är fött för tidigt. Det är även betydelsefullt att se till de skillnader som kan finnas mellan mäns och kvinnors olika upplevelser efter att ha blivit föräldrar till ett barn som är fött för tidigt. Resultatet från denna studie är viktig för föräldrar som har fått ett barn som är fött för tidigt, både för föräldrarna som enskilda individer, men också för dem som familj. Resultatet är även betydelsefullt för personal som vårdar barn som är födda för tidigt och deras familj. Det är av stor betydelse att förbättra och skapa möjligheter att ge kvalificerat stöd till föräldrar som har fått ett barn som är fött för tidigt, men även att se dem som individer i behov av olika sorters stöd och hjälp.

  • 14.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Pappors upplevelser av för tidigt födda barn2008Ingår i: Barnbladet, ISSN 0349-1994, Vol. 33, nr 1, s. 22-25Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
  • 15.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    When the baby is premature: experiences of parenthood and getting support via videoconferencing2009Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
    Abstract [en]

    The overall aim of this doctoral thesis was to describe parents' experiences of having an infant born prematurely and experiences on the use of real-time videoconferencing in providing support to parents of preterm born infants at home. A descriptive qualitative method was chosen to achieve the overall goal of this thesis. Qualitative research interviews were used for data collection and qualitative content analysis was used for data analysis. All studies included in this thesis were conducted in collaboration with a neonatal intensive care unit (NICU) in the northern part of Sweden.This thesis describes parents' reaction to the preterm birth as unexpected; they were not ready or prepared for it. The initial time after the birth felt surreal and it was hard to feel like a mother or a father. Parenting was experienced with anxiety as well as with a lot of stressors. Parents were unacquainted with and had a great need for knowledge about preterm birth. The lack of knowledge was straining, as parents wanted to understand what was happening. Parents were worried about the infant getting ill, injured, and being affected for life, or not even surviving. Being close to their infant was vital. Fathers also wanted to be with their partner as they were protective over both mother and infant. The preterm birth made it possible for fathers to spend time with their infant and they thought that they had a stronger bond with their baby compared with those who had full-term children.Taking their infant home was experienced with mixed feelings, but this made it possible for the whole family to be together. The experience with most staff was regarded as positive as parents felt they were well treated. The opposite was also described - not being involved in the infant's care and in making decisions to the extent that they wanted. To be able to cope and feel confidence about caring for their infants, parents needed support, both at the NICU and after going home. Parents must be given the opportunity to share their experiences of having an infant born prematurely with others, especially the partner, nursing staff, and parents with children born prematurely.Having access to staff at all hours by videoconferencing was supportive and gave parents confidence in their new situation. However, the need to control the use of videoconferencing was expressed. The videoconference meetings were comparable with the meetings parents and certified pediatric nurses (CPNs) had at the NICU. Videoconferencing enabled CPNs to meet the whole family and to assess the overall situation at home; security could be provided to the family. The use of the equipment made them reflect on continuing and developing the use of videoconferencing, but it takes time to implement changes. Videoconferencing can be a way to offer support to families after bringing their preterm infant home. This implies a change in traditional nursing care in order to avail of perceived benefits using technology. The results in this thesis have implications for nursing staff meeting families with a child born prematurely as well as for parents with prematurely born infants. Understanding the specific needs of parents is of outmost importance for nursing staff to enable them to provide support and facilitate parenting. Meeting parents with openness and listening to their experiences can help them both as individuals and as a whole family.

  • 16.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Övergången från neonatalavdelningen till att familjen kommer hem2013Ingår i: Familjecentrerad neonatalvård, Lund: Studentlitteratur AB, 2013, s. 169-177Kapitel i bok, del av antologi (Övrig (populärvetenskap, debatt, mm))
  • 17.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Öhrling, Kerstin
    Adjusting to being a father to an infant born prematurely: experiences from Swedish fathers2008Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 22, nr 1, s. 79-85Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim of this study was to describe the experiences of being a father to a prematurely born infant. Eight fathers of prematurely born children were interviewed using a narrative approach, and a thematic content analysis was used to analyse the interviews. The fathers described that the preterm birth gave them the chance to get to know their infant as they had to spend time at the intensive care unit. They also felt better educated by professionals who helped them take care of their infant. Their feelings and attachment for their infant increased over time and the fathers felt that they had a stronger bond with their child compared with friends who had babies born at term. As time passed, they became more confident as a father. In spite of the strain, the experience made them change as a person and they expressed having different values. The relationship with their partner was strengthened as they handled this situation together as a couple. However, the fathers felt fortunate despite everything and described having managed a prematurely born infant rather well. Although there are similarities between being a father to a child born at term and to one born preterm, it is significant to gain further knowledge about the specific experiences of fathers of prematurely born infants. The results of this study have implications for nurses working with families who have children born prematurely

  • 18.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Öhrling, Kerstin
    Experience with videoconferencing between a neonatal unit and the families' home from the perspective of certified paediatric nurses2009Ingår i: Journal of Telemedicine and Telecare, ISSN 1357-633X, E-ISSN 1758-1109, Vol. 15, nr 6, s. 275-280Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Parents of preterm-born infants need support after returning to their homes with their baby. We studied the experience of certified paediatric nurses (CPNs) with the use of videoconferencing between the neonatal intensive care unit and the families' home. Families were given a home videoconferencing unit, which allowed them to contact staff at the neonatal unit, day and night. Over a period of 12 months, ten families used the videoconferencing equipment. Families made a median of 4 telemedicine calls each (range 2-30). Narrative interviews were performed with 10 CPNs after the study ended. Qualitative thematic content analysis was applied to the interview data and one theme was identified: smoothing the transition of infants from the neonatal unit to the families' home. The CPNs found that videoconferencing helped them to assess the overall situation at home and facilitated the relationship between parents and the infant. The CPNs felt that they were able to provide security to the family. The use of videoconferencing was considered as a generally positive experience and as a tool to improve nursing care at home.

  • 19.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Öhrling, Kerstin
    Taking care of their baby at home but with nursing staff as support: the use of videoconferencing in providing neonatal support to parents of preterm infants2009Ingår i: Journal of Neonatal Nursing, ISSN 1355-1841, E-ISSN 1878-089X, Vol. 15, nr 2, s. 47-55Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim was to describe the experiences of parents of preterm infants on the use of real-time videoconferencing between their home and the Neonatal Intensive Care Unit (NICU). Ten couples participated in the study. After taking their infant home, parents had access, via video and sound in real-time, to the staff at the NICU. Data were collected by notes and interviews with the parent; thereafter a thematic content analysis was used to analyze the texts. The analysis revealed four categories: security provided by access to the staff; face-to-face supportive meetings; need for control over the use of videoconferencing; other possible uses of videoconferencing. The identified theme was 'feeling strengthened by having a link between the home and the NICU'. Parents experienced videoconferencing as positive, which empowered them and gave them confidence in their new situation of being at home with their infant.

  • 20.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Öhrling, Kerstin
    The birth of a premature infant: experiences from the fathers' perspective2007Ingår i: Journal of Neonatal Nursing, ISSN 1355-1841, E-ISSN 1878-089X, Vol. 13, nr 4, s. 142-149Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim of this study was to describe the experiences from the birth of premature infants in the fathers' perspective. Eight fathers participated; their infants were born prematurely and thereby needed care in a neonatal intensive care unit. Narrative interviews were conducted and a thematic content analysis was used to analyze the interviews. Fathers described their experiences of having a preterm infant, as getting into the midst of something never previously reflected on. It was important to have information and to know what was going on, but it was difficult to understand what was happening. The fathers were protective over the mother and infant. They wanted to be with both the mother and the infant as much as possible and wished to be seen as a natural part in the care. However, fathers had their own needs and, therefore, needed to be cared for, as well.

  • 21.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Nilsson, Carina
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Wahlberg, Daniel Zotterman
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Söderberg, Siv
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Skär, Lisa
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Using information and communication technology in home care for communication between patients, family members, and healthcare professionals: A systematic review2013Ingår i: International Journal of Telemedicine and Applications, ISSN 1687-6415, E-ISSN 1687-6423Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Introduction. Information and communication technology (ICT) are becoming a natural part in healthcare both for delivering and giving accessibility to healthcare for people with chronic illness living at home. Aim. The aim was to review existing studies describing the use of ICT in home care for communication between patients, family members, and healthcare professionals. Methods. A review of studies was conducted that identified 1,276 studies. A selection process and quality appraisal were conducted, which finally resulted in 107 studies. Results. The general results offer an overview of characteristics of studies describing the use of ICT applications in home care and are summarized in areas including study approach, quality appraisal, publications data, terminology used for defining the technology, and disease diagnosis. The specific results describe how communication with ICT was performed in home care and the benefits and drawbacks with the use of ICT. Results were predominated by positive responses in the use of ICT. Conclusion. The use of ICT applications in home care is an expanding research area, with a variety of ICT tools used that could increase accessibility to home care. Using ICT can lead to people living with chronic illnesses gaining control of their illness that promotes self-care.

  • 22.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Söderberg, Siv
    Mid Sweden University, Östersund, Department of Nursing and Health Sciences.
    Standing on their own feet: Experiences of young people living with Type 1 diabetes when entering adulthood — A qualitative study2016Ingår i: International Diabetes Nursing, ISSN 2057-3316, Vol. 12, nr 3, s. 79-85Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Type 1 diabetes can complicate the lives of young people. The aim was to describe the experiences of young people living with Type 1 diabetes when entering adulthood. Nine young people were interviewed. The general principles of interpretative descriptions were used in the analysis. Results showed that young people with Type 1 diabetes lived a life like other young people, but they often had to face a lack of knowledge and understanding. Although they knew how to live, it was not easy to be in control. Even if they took responsibility for their illness, support was critically important. They did not think so much about how their illness might impact their future life. Overall, young people described their life situation positively and dealt with their diabetes naturally. To better support and facilitate the transition to adulthood, health care professionals who are engaged with young people living with Type 1 diabetes need to have better insight into how they experience their life.

  • 23.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Öhrling, Kerstin
    An ethical perspective on meetings between parents of prematurely born infants and nursing staff2009Konferensbidrag (Övrigt vetenskapligt)
  • 24.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Öhrling, Kerstin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    An internet-based intervention program for supporting families with prematurely born infants2012Ingår i: Open Journal of Nursing, ISSN 2162-5336, E-ISSN 2162-5344, Vol. 2, nr 2, s. 72-78Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The purpose of this paper was to describe the deve- lopment, planning and implementing of an internet- based intervention program for providing support to families with prematurely born infants. During the families initial stay at home with their infant; families were given access to use of videoconference system from their home to have contact with staff at the neonatal unit, via direct link, throughout twenty-four hours. This program successfully ended, and video- conferencing is incorporated as a tool to support families after coming home. Probably, a variety of factors has contributed to make this program suc- cessful, as for example user friendliness and the close collaboration between researchers and staff at the neonatal unit. In conclusion, Information and Com- munication Technology (ICT) must be taken into consideration in developing upcoming care, thereby making possible a program to extend accessibility to health care.

  • 25.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Öhrling, Kerstin
    Experiences of having a prematurely born infant: from the perspective of mothers in northern Sweden2008Ingår i: International Journal of Circumpolar Health, ISSN 1239-9736, E-ISSN 2242-3982, Vol. 67, nr 5, s. 461-471Artikel i tidskrift (Refereegranskat)
  • 26.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Öhrling, Kerstin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Internetbaserat stöd i hemmet: till familjer med barn som är fött för tidigt2012Ingår i: Præmaturitet Fagbladet, Vol. 1, nr 8, s. 15-17Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
    Abstract [no]

    Forældre til for tidigt fødte børn må klare mange vanskelige og stressfyldte situationer of forældrenes usikkerhed i deres forældrerolle, er veldokumenteret i flere undersøgelser. Når de bliver udskrivet fra hospitalet, opstår nye udfordringer og et større forældreansvar. Forældrene har derfor brug for støtte fra mennesker, der har ekspertviden om det præmature barns behov, udvikling og pleje. Det är vanskeligt at tilbyde støttemuligheder i et område med store geografiske afstande, hvilket er tilfældet i Nordsverige. Dette var en af de faktorer, der bidrog til at vi startade projektet med at udvikle og afprøve et internetbaseret interventions program, for at kunne give støtte til familier med for tidligt fødte børn.

  • 27.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Öhrling, Kerstin
    Some research perspectives on the use of information and communication technology between the neonatal unit and the parents of preterm-born infants from a Swedish horizon2008Konferensbidrag (Övrigt vetenskapligt)
  • 28.
    Lindberg, Inger
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Söderberg, Siv
    Department of Nursing Sciences, Mid Sweden University, 83125 Östersund.
    Patients’ and Healthcare Personnel’s Experiences of Health Coaching with Online Self-Management in the Renewing Health Project2017Ingår i: International Journal of Telemedicine and Applications, ISSN 1687-6415, E-ISSN 1687-6423, Vol. 2017, artikel-id 9306192Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background. Telehealth applications have shown positive effects for people with chronic conditions and their awareness of health. Objective. To describe patients’ and healthcare personnel’s experiences of using health coaching with online self-management in primary health care. Method. A pragmatic randomised controlled trial was conducted. Patients in the intervention group measured and reported medical parameters such as blood pressure, blood glucose, prothrombin complex (PK) values, and 2-channel ECG. Data were collected through a questionnaire, individual interviews with patients, and focus group discussions with healthcare personnel. The questionnaire was analysed using statistics; texts from interviews and focus groups were analysed using content analysis. Findings. Patients were satisfied and believed that the intervention had enhanced their care and increased accessibility without causing concerns about privacy. Although being positive, patients commented the lack of support and feedback from healthcare personnel. Healthcare personnel regarded the intervention valuable for the patients’ abilities to perform self-management healthcare tasks but preferred that patients did so without them supporting the patients. Conclusion. Patients expressed satisfaction and acceptance regarding the use of the application. It seems that healthcare personnel are convinced about the benefits for patients and the potential for the intervention but are not convinced about its benefits for healthcare organisations.

  • 29.
    Nilsson, Carina
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Skär, Lisa
    Department of Health, Blekinge Institute of Technology, Karlskrona.
    Söderberg, Siv
    Department of Nursing Sciences,Mid Sweden University,Campus Östersund.
    Meanings of balance for people with long-term illnesses2016Ingår i: British Journal of Community Nursing, ISSN 1462-4753, E-ISSN 2052-2215, Vol. 21, nr 11, s. 563-567Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim of this study was to elucidate meanings of balance in everyday life for people with long-term illnesses living at home. People living with long-term illnesses are in need of help and support to manage their daily lives. Twelve adults with extensive needs for help and support were interviewed. A phenomenological hermeneutic interpretation was used to analyse the interview texts. The findings show that balance in everyday life for people with long-term illnesses means striving for independence through care and support in their surroundings. It was also important to be able to choose how their lives would be and to be with others who listened and understood them for who they are. By building a relationship with patients at an early stage of their illnesses, nursing staff have an opportunity to understand what people who are living at home with long-term illnesses need in order to achieve balance in their everyday lives.

  • 30.
    Nilsson, Åsa
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Söderberg, Siv
    Department of Nursing Sciences, Mid Sweden University, Östersund, Sweden.
    Olsson, Malin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Meanings of participation in hospital care: as narrated by patients2018Ingår i: European Journal for Person Centered Healthcare, ISSN 2052-5648, E-ISSN 2052-5656, Vol. 6, nr 3, s. 431-437Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Objective: Patient participation is said to be an important factor for patients to experience satisfaction and quality with hospital care. Still, little is known about what participation actually means for patients in the specific context of hospital settings. Therefore, the aim of this study was to elucidate meanings of participation as narrated by patients.

    Method: Narrative interviews were conducted during the Autumn of 2013 until the Spring of 2014 and then phenomenological hermeneutically interpreted. In this study, we suggest that the phenomenon of participation in hospital care is experienced by the patient when being a co-creator and seen as an important person in a trustful context.

    Results: The results illustrate that an experience of an open, cooperative and coherent environment invites and contributes to participate despite being in a vulnerable situation. The study highlights the importance of responding to each patient as a person, who sometimes has a need to participate actively and sometimes wants to hand over and assume the role of patient in the hospital care setting.

    Discussion: Meanings of participation among patients in hospital care can be understood as a phenomenon experienced when being an involved co-creator and seen as an important person in a trustful context. In this study, as well as in previous research it is obvious that participation in hospital care concerns more than being involved in decision-making and receiving information.

  • 31.
    Öhrling, Kerstin
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Lindberg, Birgitta
    Videokommunikation mellan neonatal vårdavdelning och föräldrar till för tidigt födda barn: några perspektiv från ett forskningsprojekt mellan LTU och NLL2009Konferensbidrag (Refereegranskat)
  • 32.
    Öhrling, Kerstin
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Hälsa och rehabilitering.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Projekt: Neonatal omvårdnad i hemmet med stöd av IT2010Övrigt (Övrig (populärvetenskap, debatt, mm))
    Abstract [sv]

    Projektets övergripande syfte  Syftet med detta projekt är att beskriva upplevelsen hos föräldrar till barn som är födda för tidigt av första tiden hemma med stöd av informations- och kommunikationsteknik (IKT), samt sjuksköterskors upplevelser och reflektioner i samband med att ge stöd med hjälp av IKT till föräldrar som har fått ett barn som är fött för tidigt.    Kort beskrivning av projektet  Att få ett barn som föds för tidigt har stor påverkan på föräldrar och på relationen mellan föräldrar och barn. Att åka hem från sjukhuset och ta eget ansvar för sitt barn innebär blandade känslor, dels en längtan hem, dels oro inför att vara ensam ansvarig för barnet. Föräldrar kan ha behov av stöd och att få kontakt med specialutbildad personal i en övergångsfas mellan vård på barnavdelningen och vård i hemmet. Sjuksköterskor som vårdar barn som är födda för tidigt och deras familjer har en unik position för att kunna stödja föräldrarna genom den expertkunskap som de har. När barnet har vårdats under en längre tid så åker vanligtvis barn och föräldrar hem på prov under en begränsad tid (permission) innan barnet skrivs ut från barnavdelningen. Genom att använda teknik som möjliggör kontakt med en barnsjuksköterska när som helst under dygnet, med säker och lättanvänd ljud och bildkommunikation, skulle förutsättningar för föräldrar att åka hem med sitt barn och känna sig trygga kunna skapas. Sjuksköterskor kan uppleva det som ett komplement till telefon som nu används för kommunikation mellan hem och vårdavdelning, därmed skapas möjlighet till förbättrad omvårdnad genom att ge stöd och hjälp till föräldrar via IKT. Behov finns att följa införande av teknik i neonatal vård och omvårdnad ur föräldrars och sjuksköterskors perspektiv. Detta för att utveckla kunskap om hur stöd till föräldrar kan förmedlas via ljud och bildkommunikation, samt hur det upplevs av både föräldrar och sjuksköterskor. Målet är att erhålla ökad information och kunskap, som kan utveckla och därmed höja kvaliteten inom neonatal omvårdnad.

  • 33.
    Öhrling, Kerstin
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Lindberg, Inger
    Lindberg, Birgitta
    Research perspectives from a Swedish horizon of studies using new technology for parental support2009Konferensbidrag (Övrigt vetenskapligt)
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