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  • 51. Iranmanesh, Sedigheh
    et al.
    Häggström, Terttu
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Swedish nurses' experiences of caring for dying people: a holistic approach2009Inngår i: Holistic Nursing Practice, ISSN 0887-9311, E-ISSN 1550-5138, Vol. 23, nr 4, s. 243-52Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Most people need to be cared for at the end of their lives by professionals. This study aimed to elucidate the meaning of nurses' experiences of caring for dying persons at home and in a special unit in a hospital. Four registered nurses working in private homes and 4 registered nurses working in a specific unit in a hospital setting were interviewed. The study was planned and carried out with a phenomenological hermeneutic approach. A naive reading guided a structural analysis, which resulted in 3 main themes: meeting patients and family members as unique persons, learning in a challenging environment, and gaining personal strength. The interpreted comprehensive understanding conveyed a meaning that caring for families with a member awaiting the end of life created a situation where the presence of an inevitable death demanded nurses to create close relationships with each unique person involved.

  • 52.
    Jacobsson, Catrine
    et al.
    Umeå University, Department of Nursing.
    Axelsson, Karin
    Norberg, Astrid
    Umeå University, Department of Nursing.
    Asplund, Kjell
    University Hospital of Umeå, Department of Medicine.
    Wenngren, Britt-Inger
    Umeå University, Department of Otorhinolaryngology.
    Outcomes of individualized interventions in patients with severe eating difficulties1997Inngår i: Clinical Nursing Research, ISSN 1054-7738, E-ISSN 1552-3799, Vol. 6, nr 1, s. 25-44Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim of this case study is to describe the outcomes of individualized interventions for patients with severe eating difficulties. The participants were 15 patients who had severe eating difficulties following a stroke or brain tumor and were receiving oral feeding or tube feeding. Interventions focused on training functions needed for eating, activities in eating, and discussions with the patient. Improvements were especially noted in eating activities, and some improvements were noted in oral movements and nutritional status. Before the interventions, none of the patients ate regular food; afterward, six did, and in four patients, the feeding tube was removed. The patients said eating was easier, and they could eat in a safe way. Furthermore, they appreciated the attention to their experience during meals. Although the impairments were not always alleviated, the patients found means to cope with their eating difficulties.

  • 53.
    Jacobsson, Catrine
    et al.
    Umeå University, Department of Nursing.
    Axelsson, Karin
    Wenngren, Britt-Inger
    Norberg, Astrid
    Umeå University, Department of Nursing.
    Eating despite severe difficulties: assessment of poststroke eating1996Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 5, nr 1, s. 23-31Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    A programme for the assessment and nursing diagnoses of eating difficulties among stroke patients was tested. The patients' experiences regarding eating were expressed in interviews and dialogues. Eating was observed during both a test meal and regular meals. The assessments included the prerequisites for eating as well as oral, pharyngeal and oesophageal functions. General and specific nursing diagnoses as well as life consequences (handicap) were established, based on assessment of disabilities and impairments, and interviewing the patients and their families, respectively. The general nursing diagnoses were formulated on admission after the test meal and these were reformulated to form specific nursing diagnoses after assessments of the functions. The programme presented proved to be useful in clinical practice. It is emphasized that many assessments must be co-ordinated for each individual

  • 54.
    Jacobsson, Catrine
    et al.
    Umeå University, Department of Nursing.
    Axelsson, Karin
    Österlind, Per Olov
    Umeå University, Department of Geriatric Medicine.
    Norberg, Astrid
    Umeå University, Department of Nursing.
    How people with stroke and healthy older people experience the eating process2000Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 9, nr 2, s. 255-64Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim of this study was to describe the process of eating, experiences of eating and oral functions. Participants consisted of 30 people with first stroke and localization of the damage verified by computer topography (CT), and 15 healthy older people. All were observed during test-meals, interviewed about eating, and oral functions were tested. The results demonstrated that most (21) people with stroke had some difficulties in eating and expressed feelings of fear and shame about eating and changed physical and social appearance, mainly related to difficulties in preparing and transporting food to the mouth as well as swallowing deficits.

  • 55.
    Karlsson, Eva
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Zingmark, Karin
    County Council of Norrbotten, Department of Research and Development.
    Fahlander, Kjell
    County Council of Norrbotten.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    "Carpe Diem": Supporting conversations between individuals with dementia and their family members2014Inngår i: Journal of Gerontological Nursing, ISSN 0098-9134, E-ISSN 1938-243X, Vol. 40, nr 2, s. 38-46Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Remembrance of recent events is a major problem for individuals with dementia. Consequently, this article explores the process of acceptance and integration of a digital photograph diary (DPD) as a tool for remembrance of and conversations about daily life events. A design for multiple case studies was used. Seven couples, in which one individual in the couple had Alzheimer's disease, tested the DPD for 6 months. Data were collected in three sequences with interviews, observations, and screening instruments. In the analysis, all data were integrated to find common patterns of content. Some couples became regular users, while others used the DPD more sporadically. Factors contributing to regular use were how the DPD matched expectations, actual use, support, experienced usefulness, and reactions from family and friends. For those couples who became regular users, the DPD facilitated their conversation about recent daily activities

  • 56.
    Karlsson, Eva
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Zingmark, Karin
    County Council of Norrbotten, Department of Research and Development.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    The challenge in meeting needs of persons with dementia with assistive technology2011Inngår i: e-health and nursing: How Can E-Health Promote Patient Safety? : ACENDIO 2011, 8th European Conference of ACENDIO / [ed] Fintan Sheerin, Dublin: Association for Common European Nursing Diagnoses, Interventions and Outcomes , 2011, s. 325-334Konferansepaper (Fagfellevurdert)
  • 57.
    Karlsson, Eva
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Zingmark, Karin
    County Council of Norrbotten, Department of Research and Development.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    The challenge of coming to terms with the use of a new digital assistive device: a case Study of two persons with mild dementia2011Inngår i: Open Nursing Journal, ISSN 1874-4346, E-ISSN 1874-4346, Vol. 5, s. 102-110Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    There is an increased interest in supporting persons with dementia with technical services in daily life. The aim of this case study was to explore the complex issues involved in the process from a user driven development to the acceptance and usage of a new digital assistive device for persons with mild dementia. Even though it was developed in a user driven process and personalized to meet their individual needs they rarely used it. To deepening the understanding of this disparity between actual usage and perceived usefulness, the participants were studied whilst performing daily life activities through participant observations and interviews. Their partners were interviewed two years after the first observations to clarify the change in needs over time. The results show that the participant needs encompassed occupation, safety, social interaction, and memory support together with the receipt of general support. The overriding requirement for both participants was a need to maintain their self-image. When the digital assistive device did not correspond with the participants’ expectations or view of themselves, their interest in using it faded, since the digital assistive device failed to support their self-image. The acceptance of a digital assistive device by a person with dementia is a process that begins with identifying and personalizing the functions of the device according to individual needs, and then supporting the usage and the gradual integration of the device into daily life. During this process, the person’s selfimage must be taken into consideration and supported

  • 58.
    Karlsson, Eva
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Zingmark, Karin
    County Council of Norrbotten, Department of Research and Development.
    Stories about life narrated by people with Alzheimer's disease2014Inngår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 70, nr 12, s. 2791-2799Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    AimTo explore how people with Alzheimer's disease present their life story.BackgroundLife story work is a key concept in a person-centred care. An important aspect in understanding the subjective experience and supporting the identity of people with dementia is to listen to their life stories.DesignA narrative design with interviews was used.MethodNine participants with Alzheimer's disease were encouraged to tell about their lives from childhood, adult life, to present life and about their thoughts on the future. The interviews were conducted between September 2010–March 2011 in the participants' homes, with their spouses present and were analysed with a method for analysis of narratives.FindingsContentment, Connectedness, Self-reliance and Personal growth were identified as core dimensions in the participants' life stories and shown like threads throughout life, from childhood, adult life to present life. All participants expressed an overall contentment with life, and connectedness was related to their relation with significant persons and to be included in the local community. Self-reliance was expressed as a strong confidence in the own ability and an overall curiosity throughout life as a sustained quest for personal growth.ConclusionsIt is important for healthcare professionals, who work with people with dementia, to understand that people with Alzheimer's disease can maintain an overall trusting and hopeful approach to life. It is also important to use life story work to enhance feelings of being connected to the world and thereby support their identity and sense of self.

  • 59.
    Karlsson, Eva
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Zingmark, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Aspects of Self and Identity in Narrations About Recent Events: Communication With Individuals With Alzheimer's Disease Enabled by a Digital Photograph Diary2017Inngår i: Journal of Gerontological Nursing, ISSN 0098-9134, E-ISSN 1938-243X, Vol. 43, nr 6, s. 25-31Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The ability to narrate autobiographical memories is important for maintaining the identity of individuals with Alzheimer's disease (AD). The current study explored how the sense of self is manifested in narrations about recent events, enabled via a digital photograph diary. Use of a digital photograph diary was tested with seven individuals with AD and their household members. Narrative analysis was used to analyze audiorecordings of the pairs' communication about recent events shown in the photographs. The results show how individuals with AD understand events illustrated in recent photographs in relation to their sense of self and associated skills and abilities that are facets of their selfhood. This type of digital photograph diary has the potential to support individuals with AD to maintain their sense of self and participation in everyday life, and strengthen their relationships with household members; it could be an important tool in person-centered care.

  • 60.
    Kumlien, Suzanne
    et al.
    Karolinska institutet, Department of Neuroscience.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Stroke patients in nursing homes: eating, feeding, nutrition and related care2002Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 11, nr 4, s. 498-509Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The purpose of this study was to explore eating, feeding and nutrition among stroke patients in nursing homes as described by their nurses and by assessments. Registered Nurses were interviewed about an individual stroke patient's state of health, care needs and nursing care received and nursing records were reviewed. Information on eating, feeding and nutrition was extracted from the interviews and nursing records. A comprehensive instrument, the Resident Assessment Instrument, was also used to assess these patients' state of health. The domains of eating, feeding and nutrition were focused on in this study. Manifest content analysis was used. The results showed that more than 80% of the stroke patients in nursing homes were assessed as having some sort of dependence in eating. According to the Registered Nurses, 22 out of 40 patients demonstrated different eating disabilities. The number of eating disabilities in individual patients ranged from 1 to 7, which emphasized the complexity of eating disabilities in stroke patients. Dysphagia was reported in almost one-fourth of the patients and 30% were described and/or assessed as having a poor food intake or poor appetite. The Registered Nurses' descriptions of the eating disabilities, nutritional problems and their care were often vague and unspecific. Only six weights were documented in the nursing records and there were no nutritional records. The findings highlight the importance of making careful observations and assessments, and of maintaining documentation about eating and nutrition early after a patient's arrival in the nursing home to enable appropriate care and promotion of health.

  • 61.
    Kumlien, Suzanne
    et al.
    Karolinska institutet, Department of Clinical Neuroscience, Occupational Therapy and Elderly Care Research.
    Axelsson, Karin
    The nursing care of stroke patients in nursing homes: Nurses' descriptions and experiences relating to cognition and mood2000Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 9, nr 4, s. 489-97Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Registered nurses working in nursing homes often care for stroke patients with impaired cognition and mood disorders. Understanding the behaviour of these patients often puts great demands on nurses. This study illuminates registered nurses' descriptions and experiences of stroke patients and the nursing care given in nursing homes, with a focus on cognition and mood. Registered nurses responsible for the care of stroke patients in nursing homes were asked to describe the individual patient's state of health and the nursing care given. Patients' cognition and mood have been selected for this article. A qualitative content analysis was used to group the text into categories. Registered nurses' descriptions showed great complexity and variation in patients' disabilities, as well as uncertainty about understanding these patients and the appropriate nursing care. Registered nurses described the need for further education in stroke care, and adequate resources for patient activity training, as well as meeting patients' psychosocial and communicative needs.

  • 62.
    Kumlien, Suzanne
    et al.
    Karolinska institutet, Department of Clinical Neuroscience and Family Medicine.
    Axelsson, Karin
    Ljunggren, Gunnar
    Karolinska institutet, Department of Clinical Neuroscience and Family Medicine.
    Winblad, Bengt
    Karolinska institutet, Department of Clinical Neuroscience and Family Medicine.
    Stroke patients ready for discharge from acute care: a multi-dimensional assessment of functions and further care1999Inngår i: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 21, nr 1, s. 31-8Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    PURPOSE: The aim of this study was to describe actual functions, performance of activities and needs of further care in patients with stroke in acute care wards at the time the physicians decided that the patients were ready for discharge, in relation to placement after discharge and the motives for the decision. METHOD: Thus 114 stroke patients in Stockholm County were assessed with the Resident Assessment Instrument, and the motives for further care were reviewed in the patients' case records. RESULTS: The results showed that the oldest, most severely impaired stroke patients had the shortest mean length of stay before the physician considered the patients ready for discharge to nursing homes, where resources for long-term rehabilitation and stroke care vary. CONCLUSION: It is important to secure continuing adequate care and rehabilitation for elderly severely impaired stroke patients being discharged early from acute care hospitals.

  • 63.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Öhrling, Kerstin
    Adjusting to being a father to an infant born prematurely: experiences from Swedish fathers2008Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 22, nr 1, s. 79-85Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim of this study was to describe the experiences of being a father to a prematurely born infant. Eight fathers of prematurely born children were interviewed using a narrative approach, and a thematic content analysis was used to analyse the interviews. The fathers described that the preterm birth gave them the chance to get to know their infant as they had to spend time at the intensive care unit. They also felt better educated by professionals who helped them take care of their infant. Their feelings and attachment for their infant increased over time and the fathers felt that they had a stronger bond with their child compared with friends who had babies born at term. As time passed, they became more confident as a father. In spite of the strain, the experience made them change as a person and they expressed having different values. The relationship with their partner was strengthened as they handled this situation together as a couple. However, the fathers felt fortunate despite everything and described having managed a prematurely born infant rather well. Although there are similarities between being a father to a child born at term and to one born preterm, it is significant to gain further knowledge about the specific experiences of fathers of prematurely born infants. The results of this study have implications for nurses working with families who have children born prematurely

  • 64.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Öhrling, Kerstin
    Experience with videoconferencing between a neonatal unit and the families' home from the perspective of certified paediatric nurses2009Inngår i: Journal of Telemedicine and Telecare, ISSN 1357-633X, E-ISSN 1758-1109, Vol. 15, nr 6, s. 275-280Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Parents of preterm-born infants need support after returning to their homes with their baby. We studied the experience of certified paediatric nurses (CPNs) with the use of videoconferencing between the neonatal intensive care unit and the families' home. Families were given a home videoconferencing unit, which allowed them to contact staff at the neonatal unit, day and night. Over a period of 12 months, ten families used the videoconferencing equipment. Families made a median of 4 telemedicine calls each (range 2-30). Narrative interviews were performed with 10 CPNs after the study ended. Qualitative thematic content analysis was applied to the interview data and one theme was identified: smoothing the transition of infants from the neonatal unit to the families' home. The CPNs found that videoconferencing helped them to assess the overall situation at home and facilitated the relationship between parents and the infant. The CPNs felt that they were able to provide security to the family. The use of videoconferencing was considered as a generally positive experience and as a tool to improve nursing care at home.

  • 65.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Öhrling, Kerstin
    Taking care of their baby at home but with nursing staff as support: the use of videoconferencing in providing neonatal support to parents of preterm infants2009Inngår i: Journal of Neonatal Nursing, ISSN 1355-1841, E-ISSN 1878-089X, Vol. 15, nr 2, s. 47-55Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim was to describe the experiences of parents of preterm infants on the use of real-time videoconferencing between their home and the Neonatal Intensive Care Unit (NICU). Ten couples participated in the study. After taking their infant home, parents had access, via video and sound in real-time, to the staff at the NICU. Data were collected by notes and interviews with the parent; thereafter a thematic content analysis was used to analyze the texts. The analysis revealed four categories: security provided by access to the staff; face-to-face supportive meetings; need for control over the use of videoconferencing; other possible uses of videoconferencing. The identified theme was 'feeling strengthened by having a link between the home and the NICU'. Parents experienced videoconferencing as positive, which empowered them and gave them confidence in their new situation of being at home with their infant.

  • 66.
    Lindberg, Birgitta
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Öhrling, Kerstin
    The birth of a premature infant: experiences from the fathers' perspective2007Inngår i: Journal of Neonatal Nursing, ISSN 1355-1841, E-ISSN 1878-089X, Vol. 13, nr 4, s. 142-149Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim of this study was to describe the experiences from the birth of premature infants in the fathers' perspective. Eight fathers participated; their infants were born prematurely and thereby needed care in a neonatal intensive care unit. Narrative interviews were conducted and a thematic content analysis was used to analyze the interviews. Fathers described their experiences of having a preterm infant, as getting into the midst of something never previously reflected on. It was important to have information and to know what was going on, but it was difficult to understand what was happening. The fathers were protective over the mother and infant. They wanted to be with both the mother and the infant as much as possible and wished to be seen as a natural part in the care. However, fathers had their own needs and, therefore, needed to be cared for, as well.

  • 67.
    Marchesoni, Maria Andersson
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Fältholm, Ylva
    Luleå tekniska universitet, Institutionen för ekonomi, teknik och samhälle, Arbetsvetenskap.
    Lindberg, Inger
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Going from “paper and pen” to ICT systems: Perspectives on managing the change process2017Inngår i: Informatics for Health and Social Care, ISSN 1753-8157, E-ISSN 1753-8165, Vol. 42, nr 2, s. 109-121Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: Lack of participation from staff when developing information and communication technologies (ICT) has been shown to lead to negative consequences and might be one explanation for failure. Management during development processes has rarely been empirically studied, especially when introducing ICT systems in a municipality context. Objective: To describe and interpret experiences of the management during change processes where ICT was introduced among staff and managers in elderly care. Design: A qualitative interpretive method was chosen for this study and content analysis for analyzing the interviews. Results: “Clear focus–unclear process” demonstrated that focus on ICT solutions was clear but the process of introducing the ICT was not. “First-line managers receiving a system of support” gave a picture of the first-line manager as not playing an active part in the projects. First-line managers and staff described “Low power to influence” when realizing that for some reasons, they had not contributed in the change projects. “Low confirmation” represented the previous and present feelings of staff not being listened to. Lastly, “Reciprocal understanding” pictures how first-line managers and staff, although having some expectations on each other, understood each other’s positions. Conclusions: Empowerment could be useful in creating an organization where critical awareness and reflection over daily practice becomes a routine.

  • 68.
    Marchesoni, Maria Andersson
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Lindberg, Inger
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Digital support for medication administration: a means for reaching the goal of providing good care?2014Inngår i: Journal of Health Organisation & Management, ISSN 1477-7266, E-ISSN 1758-7247, Vol. 28, nr 3, s. 327-343Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Purpose - To describe staffs’ perceptions of digital support for medication administration (DSM) and out of the perceptions interpret underlying values. Design/methodology/approach - Twenty-two persons working in elder-care participated in the study. The study had a qualitative approach and focus-group interviews were used to collect data. To analyze the manifest content a phenomenographic method was used. An interpretation of perceptions was then undertaken aimed at identifying underlying values. Findings - Three descriptive categories, "Utility", "Impact on working environment" and "Economic impact" were the result of the manifest analysis. The values of having a "Good working environment", "Benefits" and "Good economy" were interpreted as guidance for staffs’ acceptance or rejection of the DSM.Originality/value - This study had a twofold approach with the intention of going beyond descriptions. To gain a deeper understanding a normative interpretation was completed. Ethical conflicts are frequently characterized as conflicts between at least two values. In this study staffs expressed fear of losing prerequisites needed to perform their work well. Prerequisites that were identified as values and these values were threatened by the DSM

  • 69.
    Nilsson, Imogene
    et al.
    Umeå University, Department of Nursing, Community Health and Rehabilition.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Gustafson, Yngve
    Umeå University, Department of Community Health and Rehabilitation.
    Lundman, Berit
    Umeå University, Department of Nursing.
    Norberg, Astrid
    Umeå University, Department of Nursing.
    Well-being, sense of coherence, and burnout in stroke victims and spouses during the first few months after stroke2001Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 15, nr 3, s. 203-214Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Ten stroke victims, who had recently suffered their first manifest stroke with lasting neurological symptoms, participated, together with their spouses, in a study aimed at elucidating the well-being, sense of coherence (SOC), and burnout during the first few months after discharge. The stroke victims had no substantial speech disturbances, and showed no evidence of significant cognitive impairment, signifying they were mildly to moderately impaired by their stroke. All subjects were investigated at 1 and 3 months after homecoming. The methods used in this study were open-ended interviews with all research participants, performed at two different appointments, and three self-reporting questionnaires: the well-being measure (WM), the SOC scale, and the burnout measure (BM). The instruments suit each other well, broaden the picture of living with stroke and give an attuned comprehensive understanding. The most striking finding was the substantial differences in the results, both regarding the stroke victims and their spouses, clearly indicating the limited value current generalizations have. The results also pointed to considerable distress both in stroke victims and spouses, although individuals with a weak SOC clearly displayed more difficulties in coping with the situation and risk of burnout, than did those with a strong SOC.

  • 70.
    Norberg, Astrid
    et al.
    Umeå universitet, Institutionen för Omvårdnad.
    Axelsson, Karin
    Vanvård (försummelse och misshandel) av äldre i hemmet1985Inngår i: Sjuksköterskan, ISSN 0280-3526, Vol. November, s. 23-25Artikkel i tidsskrift (Annet vitenskapelig)
  • 71.
    Norberg, Astrid
    et al.
    Umeå universitet, Institutionen för Omvårdnadsforskning.
    Axelsson, Karin
    Hallberg, Ingalill R.
    Landstingets högskola, Kristianstad.
    Lundman, Berit
    Västernorrlands läns landsting.
    Athlin, Elsy
    Vårdhögskolan, Umeå.
    Ekman, Sirka-Liisa
    Karolinska institutet, Institutionen för geriatrik.
    Engström, Birgitta
    Regionsjukhuset Umeå, Neurologiska kliniken.
    Jonsson, Lilian
    Umeå universitet, Institutionen för Omvårdnadsforskning.
    Kihlgren, Mona
    Centrum för omvårdnadsvetenskap, Örebro.
    Omvårdnadens mosaik: en modell1992Bok (Annet vitenskapelig)
  • 72. Nydevik, Ingegerd
    et al.
    Axelsson, Karin
    Winblad, Bengt
    Granskning av sjukhemsvården på Märsta sjukhem1998Rapport (Annet vitenskapelig)
  • 73. Nyström, Kerstin
    et al.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Mothers' experience of being separated from their newborns2002Inngår i: Journal of Obstetric, Gynecologic and Neonatal Nursing, ISSN 0884-2175, E-ISSN 1552-6909, Vol. 31, nr 3, s. 275-82Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    OBJECTIVE: To elucidate mothers' experiences related to separation from their newborns during their 1st week of life, when the newborns had been transferred to a neonatal intensive-care unit (NICU). DESIGN: A phenomenologic-hermeneutic approach. Tape-recorded narrative interviews were conducted 1 to 2 months postpartum in the participants' homes. The mothers were asked to describe and reflect upon their experiences during the time when they were separated from their children. PARTICIPANTS: Eight women whose full-term newborns had been treated in the NICU for between 2 and 10 days and then declared healthy and sent home. RESULTS: The women's narratives revealed that their experiences had caused them emotional strain and anxiety. From the analysis, three themes emerged: Being an outsider was based on feelings of despair, powerlessness, homelessness, and disappointment. Lack of control included emotional instability, threat, guilt, and insecurity. The theme of caring included trust, love, anxiety, relief, closeness, and explanations. The experiences were related to the staff, the child, the environment, the mother herself, the child's father, and other mothers. CONCLUSIONS: Separating a mother and her newborn during the 1st week of the child's life involves much emotional strain for the mother, even though the newborn is not seriously ill.

  • 74.
    Ottosson, Barbro
    et al.
    Lund University and Kristianstad University College of Health Care.
    Hallberg, Ingalill R.
    Lund University and Kristianstad University College of Health Care.
    Axelsson, Karin
    Lovén, Lars
    University of Umeå, Department of Advanced Nursing.
    Patients' satisfaction with surgical care impaired by cuts in expenditure and after interventions to improve nursing care at a surgical clinic1997Inngår i: International Journal for Quality in Health Care, ISSN 1353-4505, E-ISSN 1464-3677, Vol. 9, nr 1, s. 43-53Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Between 1991 and 1994 the number of beds in the surgical clinic at a central hospital in Southern Sweden was cut back by almost 50%. To develop the nursing care and to control the effects of the budgetary cuts, an intervention, including nursing care development, of an organization that would secure continuity in the nurse-patient relationship, individually planned care and quality assurance for aspects believed to be crucial to the quality of nursing care was implemented. The aim of this study was to analyse patients' satisfaction with surgical nursing care between, under and after the last cut in expenditure and the concluded intervention. A patient satisfaction questionnaire covering such areas as: patient satisfaction with information and decision-making; patient satisfaction with contact and the staff-patient relationship; patient satisfaction with ward facilities and the physical treatment or examination and patient satisfaction with various other aspects of care, was administered (1993 n = 131; 1994 n = 128). Subsample analysis showed lower scores for patient satisfaction if the respondents were women, young, or acutely ill when admitted. While surveys carried out between 1991 and 1993 showed an overall improvement in the quality of care, as measured by patient satisfaction, it remained at the same level in 1994 as in 1993, or decreased, regarding patient contacts with staff and physicians, involvement in decision-making, anxiety before examination/treatment, anxiety regarding professional secrecy, opportunity to influence the solution to their physical problems, chance to get sleep without being disturbed, physical nursing care and preparations before discharge. Thus a deterioration in quality seemed to take place in 1994 indicating that the cuts in expenditure may have been too hard and had been made at the expense of patient satisfaction.

  • 75.
    Sandman, Per-Olof
    et al.
    Umeå universitet, Institutionen för Omvårdnadsforskning.
    Athlin, Elsy
    Regionsjukhuset Umeå, Kirurgiska kliniken.
    Axelsson, Karin
    Engström, Birgitta
    Regionsjukhuset Umeå, Neurologiska kliniken.
    En vårdfilosofi som utgångspunkt för förändringsarbete vid kirurgisk, medicinsk, neurologisk och psykogeriatrisk vård1992Inngår i: Vård i Norden, ISSN 0107-4083, E-ISSN 1890-4238, Vol. 12, nr 3-4, s. 34-9Artikkel i tidsskrift (Fagfellevurdert)
  • 76.
    Sandman, Per-Olof
    et al.
    Umeå universitet, Institutionen för Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Friberg, Kajsa
    Lundh, Ulla
    Linköpings universitet, Institutionen för vård och välfärd.
    Norberg, Astrid
    Umeå universitet, Institutionen för Omvårdnad.
    Persson, Maria
    Kommentarer2004Inngår i: Närståendes behov: omvårdnad som akademiskt ämne III, Stockholm: Svensk sjuksköterskeförening , 2004, s. 44-48Kapittel i bok, del av antologi (Annet vitenskapelig)
  • 77.
    Sandman, Per-Olof
    et al.
    Umeå University, Department of Geriatric and Long-Term Care Medicine.
    Norberg, Astrid
    Umeå University, Department of Nursing.
    Adolfsson, Rolf
    Umeå University, Department of Psychiatry.
    Axelsson, Karin
    Hedly, Vera
    Umeå universitet.
    Morgentoilette bei dementen Alzheimer-Patienten: ein auf direkter Beobachtung beruhendes theoretisches Modell1994Inngår i: Pflege, Die wissenschaftliche Zeitschrift für Pflegeberufe, ISSN 1012-5302, E-ISSN 1664-283X, Vol. 7, nr 4, s. 280-290Artikkel i tidsskrift (Annet vitenskapelig)
    Abstract [en]

    Five hospitalized patients in different stages of Alzheimer-type dementia were monitored by unstructured, direct observations during morning care. Orem's model of nursing as a compensation for the patient's lack of self-care capabilities was used as a frame of reference for an analysis of the behaviours of patients and nurses during morning care. A 12-step classification system was developed to be used as a guide to understand and determine abilities essential for performance of morning care for demented patients. The quantitative assessment showed that none of the patients was able to manage morning care independently, but there was a wide variation in their highest level of performance

  • 78.
    Sandman, Per-Olof
    et al.
    Umeå University, Department of Geriatric and Long-Term Care Medicine.
    Norberg, Astrid
    Umeå University, Department of Nursing.
    Adolfsson, Rolf
    Umeå University, Department of Psychiatry.
    Axelsson, Karin
    Hedly, Vera
    Umeå universitet.
    Morning care of patients with Alzheimer-type dementia: A theoretical model based on direct observations1986Inngår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 11, nr 4, s. 369-78Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Five hospitalized patients in different stages of Alzheimer-type dementia were monitored by unstructured, direct observations during morning care. Orem's model of nursing as a compensation for the patient's lack of self-care capabilities was used as a frame of reference for an analysis of the behaviours of patients and nurses during morning care. A 12-step classification system was developed to be used as a guide to understand and determine abilities essential for performance of morning care for demented patients. The quantitative assessment showed that none of the patients was able to manage morning care independently, but there was a wide variation in their highest level of performance

  • 79. Sjömark, Cecilia
    et al.
    Wingstedt, Johnny
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Berg, Jan
    Luleå tekniska universitet, Institutionen för konst, kommunikation och lärande, Medier ljudteknik och upplevelseproduktion och teater.
    Musical parameters for promoting relaxation and stress-reduction in listeners2005Inngår i: Ambience05 Proceedings, Tampere University of Technology, 2005Konferansepaper (Fagfellevurdert)
  • 80.
    Skolin, Inger
    et al.
    University Hospital of Northern Sweden, Umeå, Paediatric Oncology Unit.
    Axelsson, Karin
    Ghannad, P.
    Department of Paedodontics, Umeå.
    Hernell, Olle
    Umeå University, Department of Paediatrics.
    Wahlin, Ylva Britt
    Department of Paedodontics, Umeå.
    Nutrient intake and weight development in children during chemotherapy for malignant disease1997Inngår i: Oral Oncology, ISSN 1368-8375, E-ISSN 1879-0593, Vol. 33, nr 5, s. 364-8Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim of the study was to assess the actual daily oral intake of energy, protein, fat and carbohydrate in relation to current recommendations in children with malignant disease during chemotherapy and to follow their weight development. Dietary information was collected for 21 consecutive days via 7-day recording in 14 children, aged 5-16 years. The number of days with loss of appetite, vomiting, and the number of days on anti-emetic drugs were also recorded. The average daily energy intake decreased from 91% of the recommendation of the Swedish Nutrition Recommendations (SNR), before chemotherapy to 69% after start of chemotherapy. During days spent at home, the energy intake increased to 77% of SNR. Twenty-two per cent of the total energy intake during the hospital days came from sucrose. On average, the children experienced loss of appetite on 50% of the days, vomiting on 12%, and received anti-emetic drugs on 38%. On admission, the average SD score for body weight for the whole group was -0.09. The mean weight reduction after 1 week was 0.19 SD (P = 0.05) compared to the admission weight. The weight reduction 6 weeks (n = 10) and 3 months (n = 13) after the start of chemotherapy was 0.10 SD and 0.37 SD (P = 0.04), respectively

  • 81.
    Sundin, Karin
    et al.
    Umeå University, Department of Nursing.
    Axelsson, Karin
    Jansson, Lilian
    Umeå University, Department of Nursing.
    Norberg, Astrid
    Umeå University, Department of Nursing.
    Suffering from care as expressed in the narratives of former patients in somatic wards2000Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 14, nr 1, s. 16-22Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    To illuminate patients' experiences of suffering from care, ten former patients in somatic wards narrated a desirable care episode (n = 39) and an undesirable care episode (n = 51). The interviews were analysed using a phenomenological hermeneutic method inspired by Ricoeur's philosophy. Four themes were found: having a good rest, suffering through, searching for autonomy and being cared for by attentive and committed staff. The findings were interpreted in light of Eriksson's description of suffering, which describes three kinds of suffering: 'suffering of life', 'suffering of illness' and 'suffering of caring'. Although not mentioned explicitly, it was evident that cases of suffering from care were indicated in the patients' narratives. The themes were related to the patients' states of health, their experience of the care situation and their descriptions of themselves, and could be understood as related to the acts of the 'drama of suffering' described by Eriksson. The study highlights the need for the patient to find a co-actor in the drama of suffering in order to prevent suffering from care, i.e. prevent hindrance to the patient in her/his struggle against the 'suffering of illness' and the 'suffering of life'. The patients must be seen as the directors of their own dramas of suffering.

  • 82.
    Wälivaara, Britt-Marie
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Andersson, Staffan
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    General practitioners' reasoning about using mobile distance-spanning technology in home care and in nursing home care2011Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 25, nr 1, s. 117-125Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The trend for health care and nursing care turns from hospital to health care and nursing care at home. Studies have shown that health care professionals have no access to patient records in home and nursing home settings. Technological development creates opportunities for a host of mobile technology solutions. The aim of this study was to describe the reasoning among general practitioners (GPs) about the use of mobile distance-spanning technology (MDST) in care at home and in nursing homes. Seventeen GPs were divided in five groups for a group interview. The interviews were tape-recorded and transcribed verbatim. The qualitative content analysis resulted in four areas about the MDST, MDST has an impact on GPs' work, the nurses' profession, and the patient and the family, with nine adherent categories. The findings were interpreted and formulated in the theme: MDST should be used with caution. The results show quite a few expressions about the MDST as useful and valuable in health care at home and in nursing home settings; however, in every category, there were text that we interpreted as caution when using the MDST. The MDST cannot be used in all situations and cannot replace human meetings in health care and nursing care at home and in nursing homes. The MDST should primarily be a tool for the profession, and understanding the professions' reasoning about technology use in health care at home and in nursing home settings must be the base for implementing MDST.

  • 83.
    Wälivaara, Britt-Marie
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Andersson, Staffan
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    The importance of human meetings in health care at home with mobile distance-spanning technology2010Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 19, nr Suppl. 1, s. 91-Artikkel i tidsskrift (Annet vitenskapelig)
    Abstract [en]

    Introduction: New solutions could be a challenge for both the persons in need of health care at home and the health care professions when the person's individual needs in health care at home have to be met. The mobile distances-spanning technology (MDST) could come into use to support the health care at home. Before implementing the MDST the voices of persons in need of health care at home need to be heard about the use of MDST. Methods and Materials: The aim was to describe views and experiences about the use of MDST in health care at home from the perspectives of persons in need of health care at home. The persons were living in ordinary homes and all had experiences of MDST when district nurses were caring for them at home. Persons in need of health care at home (n=9) participated in individual qualitative research interviews for data collection. Qualitative content analysis was used for data analysis. Results: Participants put health care at home in the first place and the MDST was put in the second place. The importance of human meetings was put forwards. The results indicate in different ways opportunities, possibilities and risks with using MDSTs. When the MDST was used, it was important to have established a relationship and trust to the district nurses and the general practitioners, and to know them and to be known by them. The participants expressed that the health care professionals need to see the person behind the technology. Conclusion: Human meetings can never be excluded in health care at home even when a virtual meeting for some issues is relevant. The MDST can never capture or replace the human meetings but human meetings and virtual meetings can be used as complement to each other.

  • 84.
    Wälivaara, Britt-Marie
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Andersson, Staffan
    Axelsson, Karin
    The mobile distance-spanning technology in health care at home2010Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 19, nr Suppl. 1, s. 92-Artikkel i tidsskrift (Annet vitenskapelig)
    Abstract [en]

    Introduction: Health care at home could be a challenge for both the persons in need of health care at home and the health care professions when the person's individual needs in health care at home have to be met. There is a need for different technical solutions in order to create opportunities for persons in need of health care to stay in their own homes and get health care. The mobile distances-spanning technology (MDST) could come into use to support the health care at home for the future. Methods and Materials: The aim of this presentation is to describe the usefulness of MDST in health care at home. During a project MDST have been tested as an addition in health care at home. The district nurses used 11 different mobile equipments in home care. During the home visits they filled out a form (n=154) about which equipment they used when caring for persons in home care. Results: The district nurses did totally 184 home visits and in 154 cases they used the equipments during the test period. The most frequently used equipment was the mobile computer with access to the patient record (73%) and the access to the patient record was reported as useful at home. The district nurses noted importance to use the bladder scanner even if it was not used so often (11%). The digital camera was used (8%) and was reported as complicated but useful when documenting the healing process of wounds. When the electronic stethoscope was used (7%) some reported a disturbing sound that hampered the assessment. Conclusion: There are several equipments that could be useful and it is important to test and identify the equipments that are most suitable for use in home care.

  • 85.
    Wälivaara, Britt-Marie
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Andersson, Staffan
    Luleå tekniska universitet, Institutionen för hälsovetenskap.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Trust and relationship when using mobile distance-spanning technology in healthcare at home2011Inngår i: e-health and nursing: How Can E-Health Promote Patient Safety? : ACENDIO 2011, 8th European Conference of ACENDIO / [ed] Fintan Sheerin, Dublin: Association for Common European Nursing Diagnoses, Interventions and Outcomes , 2011, s. 344-350Konferansepaper (Fagfellevurdert)
  • 86.
    Wälivaara, Britt-Marie
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Andersson, Staffan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Medicinsk vetenskap.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Views on technology among people in need of health care at home2009Inngår i: International Journal of Circumpolar Health, ISSN 1239-9736, E-ISSN 2242-3982, Vol. 68, nr 2, s. 158-169Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objectives. The aim of this study was to describe how people in need of health care at home view technology.Study design. A qualitative approach was used based on qualitative interviews, followed by qualitative content analysis.Methods. District nurses (DNs) from 4 health care centres in Northern Sweden had access to different kinds of distance-spanning technology with mobile devices and who used it in their health care at home. Persons in whose home the technology was being used were asked to participate in an interview. The interviewed persons were selected consecutively. Results. The results fall into 2 categories: (1) The well-known technology at hospital is new at home, (2) the new technology opens up possibilities but it also has limitations, with seven adherent subcategories.Conclusions. The participants viewed the technology at home as something good and as something that could open up possibilities. At the same time, they placed the use of the technology in the hands of the staff which indicates some degree of dissociation from the technology. The importance of personal meetings between patient and caregiver was very clearly stressed even when distance meetings could be performed and accepted. The participants expressed immense trust in the nursing staff and considered them responsible for the new technology at home.

  • 87.
    Wälivaara, Britt-Marie
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Caring relationships in home-based nursing care: registered nurse's experiences2013Inngår i: Open Nursing Journal, ISSN 1874-4346, E-ISSN 1874-4346, Vol. 7, s. 89-95Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The caring relationship between the nurse and the person in need of nursing care has been described as a key concept in nursing and could facilitate health and healing by involving the person's genuine needs. The aim of this study was to explore registered nurses' experiences of their relationships with persons in need of home-based nursing care. Individual interviews with nurses (n=13 registered nurses and 11 district nurses) working in home-based nursing care were performed. A thematic content analysis was used to analyze the transcribed interviews and resulted in the main theme Good nursing care is built on trusting relationship and five sub-themes, Establishing the relationship in home-based nursing care, Conscious efforts maintains the relationship, Reciprocity is a requirement in the relationship, Working in different levels of relationships and Limitations and boundaries in the relationship. A trusting relationship between the nurse and the person in need of healthcare is a prerequisite for good home-based nursing care whether it is based on face-to-face encounters or remote encounters through distance-spanning technology. A trusting relationship could reduce the asymmetry of the caring relationship which could strengthen the person's position. The relationship requires conscious efforts from the nurse and a choice of level of the relationship. The trusting relationship was reciprocal and meant that the nurse had to communicate something about themself as the person needs to know who is entering the home and who is communicating through distance-spanning technology.

  • 88.
    Wälivaara, Britt-Marie
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Sävenstedt, Stefan
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Encounters in home-based nursing care: registered nurses' experiences2013Inngår i: Open Nursing Journal, ISSN 1874-4346, E-ISSN 1874-4346, Vol. 7, nr 1, s. 73-81Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The encounter between registered nurses and persons in need of healthcare has been described as fundamental in nursing care. This encounter can take place face-to-face in physical meetings and through meetings via distance-spanning technology. A strong view expressed in the literature is that the face-to-face encounter is important and cannot entirely be replaced by remote encounters. The encounter has been studied in various healthcare contexts but there is a lack of studies with specific focus on the encounter in home-based nursing care. The aim of this study was to explore the encounter in home-based nursing care based on registered nurses' experiences. Individual interviews were performed with 24 nurses working in home-based nursing care. The transcribed interviews were analyzed using thematic content analysis and six themes were identified: Follows special rules, Needs some doing, Provides unique information and understanding, Facilitates by being known, Brings energy and relieves anxiety, and Can reach a spirit of community. The encounter includes dimensions of being private, being personal and being professional. A good encounter contains dimensions of being personal and being professional and that there is a good balance between these. This is an encounter between two human beings, where the nurse faces the person with herself and the profession steadily and securely in the back. Being personal and professional at the same time could encourage nurses to focus on doing and being during the encounter in home-based nursing care.

  • 89.
    Ödling, Gunvor
    et al.
    Vårdhögskolan i Östersund.
    Axelsson, Karin
    Norberg, Astrid
    Umeå universitet, Institutionen för Omvårdnadsforskning.
    Upplevelser i samband med operation av nyupptäckt bröstcancer1995Inngår i: Vård i Norden, ISSN 0107-4083, E-ISSN 1890-4238, Vol. 15, nr 1, s. 14-18Artikkel i tidsskrift (Fagfellevurdert)
  • 90.
    Öhrling, Kerstin
    et al.
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Hälsa och rehabilitering.
    Lindberg, Birgitta
    Luleå tekniska universitet, Institutionen för hälsovetenskap, Omvårdnad.
    Axelsson, Karin
    Projekt: Neonatal omvårdnad i hemmet med stöd av IT2010Annet (Annet (populærvitenskap, debatt, mm))
    Abstract [sv]

    Projektets övergripande syfte  Syftet med detta projekt är att beskriva upplevelsen hos föräldrar till barn som är födda för tidigt av första tiden hemma med stöd av informations- och kommunikationsteknik (IKT), samt sjuksköterskors upplevelser och reflektioner i samband med att ge stöd med hjälp av IKT till föräldrar som har fått ett barn som är fött för tidigt.    Kort beskrivning av projektet  Att få ett barn som föds för tidigt har stor påverkan på föräldrar och på relationen mellan föräldrar och barn. Att åka hem från sjukhuset och ta eget ansvar för sitt barn innebär blandade känslor, dels en längtan hem, dels oro inför att vara ensam ansvarig för barnet. Föräldrar kan ha behov av stöd och att få kontakt med specialutbildad personal i en övergångsfas mellan vård på barnavdelningen och vård i hemmet. Sjuksköterskor som vårdar barn som är födda för tidigt och deras familjer har en unik position för att kunna stödja föräldrarna genom den expertkunskap som de har. När barnet har vårdats under en längre tid så åker vanligtvis barn och föräldrar hem på prov under en begränsad tid (permission) innan barnet skrivs ut från barnavdelningen. Genom att använda teknik som möjliggör kontakt med en barnsjuksköterska när som helst under dygnet, med säker och lättanvänd ljud och bildkommunikation, skulle förutsättningar för föräldrar att åka hem med sitt barn och känna sig trygga kunna skapas. Sjuksköterskor kan uppleva det som ett komplement till telefon som nu används för kommunikation mellan hem och vårdavdelning, därmed skapas möjlighet till förbättrad omvårdnad genom att ge stöd och hjälp till föräldrar via IKT. Behov finns att följa införande av teknik i neonatal vård och omvårdnad ur föräldrars och sjuksköterskors perspektiv. Detta för att utveckla kunskap om hur stöd till föräldrar kan förmedlas via ljud och bildkommunikation, samt hur det upplevs av både föräldrar och sjuksköterskor. Målet är att erhålla ökad information och kunskap, som kan utveckla och därmed höja kvaliteten inom neonatal omvårdnad.

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