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Ett aktivt vardagsliv för personer med stroke: Införande av en ny internetbaserad intervention i arbetsterapi
Luleå University of Technology, Department of Health, Education and Technology, Health, Medicine and Rehabilitation.ORCID iD: 0000-0001-7016-0809
2025 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [sv]

Hälso- och sjukvården behöver bli mer hållbar, proaktiv och personcentrerad. För att uppnå detta behöver digitalisering nyttjas, nya innovationer utvecklas och personers egna resurser tillvaratas. Det innebär även omställning på flera organisatoriska nivåer och utveckling inom varje profession för att möta olika klientgruppers behov. Forskning och riktlinjer visar på ett behov av att utveckla stöd för self-management i aktiviteter i vardagslivet för personer med stroke. Det övergripande syftet med denna avhandling var att utveckla kunskap om införande av internetbaserad intervention och mer specifikt att utvärdera en ny arbetsterapiintervention ”Strategier för att nå ett aktivt vardagsliv” [SEE] för personer med stroke. 

Avhandlingen består av fyra delstudier. Studie I utforskade hur personer med stroke och deras arbetsterapeuter (AT) upplevde interventionsprocessen i SEE och huruvida SEE hade potential att främja ett aktivt vardagsliv. Studien var en explorativ deskriptiv fallstudie där fyra personer med stroke och två AT deltog i en första prövning av prototypen under utvecklingsfasen av SEE. Data samlades in genom en kombination av metoder från interventionsstart samt löpande till interventionens avslut. Data analyserades med mönstermatchning. Resultatet indikerade att SEE var genomförbar och accepterbar avseende innehåll och leverans. SEE kunde stödja utveckling av självreflektion och strategianvändning, vilket inverkade positivt på engagemang i aktiviteter i vardagslivet och livstillfredsställelse för personer med stroke. Arbetsterapeuterna upplevde en omställning i sin yrkesroll när de började leverera arbetsterapi digitalt och anpassade sig till att stödja klienternas förändring på ett nytt sätt. Utbildningsprogrammet och interventionsguiden för SEE var ett stöd i omställningen. Studien visade på behovet av mindre justeringar av prototypen och gav stöd för fortsatt forskning om genomförbarheten av SEE. 

Studie II utvärderade genomförbarheten av SEE för personer med stroke. Studien var utformad som en genomförbarhetsstudie med en pre-test-post-test-design utan kontrollgrupp inbäddad i en mixad metod ansats. Data samlades in genom en kombination av metoder vid interventionsstart, efter fyra och 12 månader samt löpande under interventionstiden. Data samlades från 15 personer med stroke, fyra AT och tre chefer. Data analyserades med deskriptiv kvantitativ analys och kvalitativ innehållsanalys. Resultatet visade att SEE var genomförbar för personer med stroke och kan stärka deras self-management samt förbättra engagemang, balans och värde i aktiviteter i vardagslivet. Studien visade också att SEE var genomförbar när det gällde dosering och accepterbarhet samt värdet av SEE skattades högt. Brister i följsamhet framkom relaterat till saknade formulär, tidsavvikelser i modulleveranser och utebliven uppföljning. Arbetsterapeuternas erfarenheter visade att det var utmanande att lära sig SEE, men samtidigt att SEE möjliggjorde ett nytt sätt för dem att ge stöd samt främjade klienternas engagemang och ansvarstagande. Chefernas erfarenheter visade att SEE har potential att förbättra och utveckla utbudet av rehabiliteringstjänster. Justeringar behövs i studiedesignen, avseende rekryteringsstrategier, bedömningsinstrument och utvärderingsmetoder av följsamhet. Utbildningsprogrammet för AT bör utvecklas inför framtida forskning för att bättre stödja implementeringen av interventionen.

Studie III utforskade hur AT upplevde användningen av SEE, med fokus på att stödja klientens resurser för att hantera ett aktivt vardagsliv efter stroke. Denna studie hade en fokusgruppsdesign med periodiska upprepade diskussioner. Fyra AT deltog vid fyra tillfällen och data analyserades med fokusgruppsanalys. Resultatet visade att AT upplevde SEE som ett värdefullt komplement till befintlig rehabilitering. Implementeringen av SEE innebar en mångfacetterad transition som involverade kontext, interventionsprocess och leverans, vilket tillsammans förnyade arbetsterapin. SEE erbjöd AT ett nytt sätt att tillhandahålla personcentrerad och aktivitetsfokuserad arbetsterapi. 

Studie IV utforskade hur personer med stroke upplevde interventionsprocessen i SEE och huruvida deltagandet i SEE hade betydelse för deras upplevelse av vardagslivet. Studien designades som en kvalitativ semistrukturerad intervjustudie med nio personer med stroke. Intervjuerna genomfördes efter en månad respektive fyra till fem månader från interventionsstart för varje deltagare. Data analyserades med konstant komparativ analys. Resultaten visade att relevansen och beredskapen för SEE varierade bland deltagarna. Sju av nio deltagare upplevde att interventionsprocessen gav dem kraft att driva sin egen förändringsprocess i aktiviteter i vardagslivet för att främja hälsa. Två deltagare såg inget behov av att förändra sina aktiviteter och påbörjade därför ingen förändringsprocess. När SEE var relevant och genomfördes som förväntat, beskrev deltagarna det som en ögonöppnare för hur de själva kunde agera för att förbättra sin hälsa genom att omfördela sin tid och sitt engagemang i olika aktiviteter.

Den ökade kunskapen som denna avhandling bidrar med kan användas för att förstå och främja införande av internetbaserad intervention för self-management. Kunskapen kan även användas för att utveckla rehabilitering som tillvaratar internets fördelar för att stödja förändringsprocesser i personers ofta komplexa vardagsliv. Slutligen visar kunskapen hur SEE och dess forskningsdesign behöver utvecklas för fortsatt implementering och utvärdering. 

Place, publisher, year, edition, pages
Luleå: Luleå tekniska universitet, 2025.
Series
Doctoral thesis / Luleå University of Technology 1 jan 1997 → …, ISSN 1402-1544
Keywords [sv]
arbetsterapi, digitala e-hälsolösningar, engagemang i daglig aktivitet, internetbaserad intervention, komplexa interventioner, nära vård, rehabilitering, self-management, stroke, telerehabilitering
National Category
Occupational Therapy
Research subject
Occupational Therapy
Identifiers
URN: urn:nbn:se:ltu:diva-112011ISBN: 978-91-8048-793-1 (print)ISBN: 978-91-8048-794-8 (electronic)OAI: oai:DiVA.org:ltu-112011DiVA, id: diva2:1944659
Public defence
2025-05-16, E632, Luleå University of Technology, Luleå, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2025-03-14 Created: 2025-03-14 Last updated: 2025-04-10Bibliographically approved
List of papers
1. Developing and testing the feasibility of a new internet-based intervention-A case study of people with stroke and occupational therapists
Open this publication in new window or tab >>Developing and testing the feasibility of a new internet-based intervention-A case study of people with stroke and occupational therapists
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2023 (English)In: PLOS ONE, E-ISSN 1932-6203, Vol. 18, no 12, article id e0296364Article in journal (Refereed) Published
Abstract [en]

Introduction: Internet-based interventions are called for within rehabilitation to meet the limited access to support for self-management after stroke. Therefore, a new intervention program, “Strategies for Empowering activities in Everyday life” (SEE) was developed. The aim of this study was to explore and describe how clients with stroke and their occupational therapists experienced the SEE intervention process and whether SEE has the potential to promote an active everyday life.

Methods: A qualitative descriptive case study was designed. Four people with stroke (two of each sex, mean age 66,5 years) and their two occupational therapists (one of each sex) were included. A mix of data collection methods as interviews, assessments, registration forms and fieldnotes was used to uncover the participants’ experiences and potential changes. Data were analysed with pattern matching.

Findings: The analysed data formed three categories: “Not being able to take on the internet-based intervention”, “Being facilitated in the change process of everyday life through the internet-based intervention”, and “Providing a new internet-based intervention is a transition from ordinary practice”. These categories included two to four subcategories that reflected aspects of SEE feasibility and acceptability with a focus on content and delivery.

Conclusion: The first test of the intervention indicates that the content and delivery of SEE can be feasible and acceptable both for clients and occupational therapists. The findings suggest that SEE has the potential to support clients’ self-reflections and their adoption of strategies that influence engagement in daily activities and satisfaction with life in various ways. Further research with large-scale studies is needed.

Place, publisher, year, edition, pages
Public Library of Science, 2023
National Category
Occupational Therapy
Research subject
Occupational Therapy
Identifiers
urn:nbn:se:ltu:diva-103743 (URN)10.1371/journal.pone.0296364 (DOI)001135922100014 ()38153937 (PubMedID)2-s2.0-85181049415 (Scopus ID)
Funder
The Kamprad Family Foundation
Note

Validerad;2024;Nivå 2;2024-01-29 (signyg);

Full text license: CC BY-4.0

Available from: 2024-01-16 Created: 2024-01-16 Last updated: 2025-04-07Bibliographically approved
2. A feasibility study of the internet-based intervention “Strategies for Empowering activities in Everyday life” (SEE 1.0) applied for people with stroke
Open this publication in new window or tab >>A feasibility study of the internet-based intervention “Strategies for Empowering activities in Everyday life” (SEE 1.0) applied for people with stroke
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2025 (English)In: BMC Health Services Research, E-ISSN 1472-6963, Vol. 25, article id 330Article in journal (Refereed) Published
Abstract [en]

Background To enable people with stroke to achieve an active everyday life under altered conditions, the development of self-management programs is essential to facilitate the process of change that individuals must undergo. To improve access to self-management, internet-based solutions have been proposed. The aim of this study was to evaluate the feasibility of a novel internet-based intervention, “Strategies for Empowering activities in Everyday Life” (SEE, version 1.0), for clients with stroke.

Methods This feasibility study had a preposttest design without a control group and utilized a mixed-method approach. Data were collected through study-specific forms, outcome assessments, interviews, and field notes. Descriptive statistics and content analysis were subsequently applied.

Results The study involved fifteen clients and staff at clinics in a hospital-based open-care rehabilitation setting. The results indicate that SEE is feasible for clients with stroke. When adopted as expected, SEE has the potential to empower self-management and enhance engagement, balance, and values in everyday activities. The study also indicates that SEE is feasible in terms of adherent delivery of dosage, acceptability, and value, as perceived by clients, occupational therapists, and clinic managers. However, adjustments are needed in the study design, in terms of recruitment strategies, the selection of assessor-based outcome assessment, and the evaluation of adherence. Additionally, the educational program for professionals should be enhanced to better support the implementation of SEE.

Conclusion After the study design, intervention, and educational program are refined, SEE can be prepared for a pilot randomized controlled trial.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2025
Keywords
Stroke, Daily activities, Self-management, Lifestyle intervention, Internet-based rehabilitation, Tele-rehabilitation, Digital e-health solutions, Occupational therapy
National Category
Occupational Therapy
Research subject
Occupational Therapy; Physiotherapy and Health Promotion
Identifiers
urn:nbn:se:ltu:diva-112020 (URN)10.1186/s12913-025-12456-8 (DOI)001436215700004 ()40033363 (PubMedID)2-s2.0-86000108854 (Scopus ID)
Funder
The Kamprad Family FoundationThe Swedish Stroke AssociationSwedish Association of Persons with Neurological Disabilities
Note

Validerad;2025;Nivå 2;2025-03-17 (u8);

Funder: Stroke Research in Norrland

Full text license: CC BY

Available from: 2025-03-17 Created: 2025-03-17 Last updated: 2025-04-08Bibliographically approved
3. Occupational therapists’ experiences of using a new internet-based intervention - a focus group study
Open this publication in new window or tab >>Occupational therapists’ experiences of using a new internet-based intervention - a focus group study
2023 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 31, no 1, article id 2247029Article in journal (Refereed) Published
Abstract [en]

Background

Research is limited about how the introduction of new ways of delivering and conducting occupational therapy, in accordance with expected changes in health care, is experienced by occupational therapists (OTs).

Aim

To explore how OTs experienced use of a new internet-based intervention, ‘Strategies for Empowering activities in Everyday life’ (SEE), focusing on supporting client resources to manage an active everyday life after stroke.

Material and methods

A focus group study with periodical repeated discussion was designed. Four sessions during a period of 22 months were conducted with a total of four OTs.

Result

Overall, the results reflected that the OTs experienced that the use of SEE for persons with stroke was a valuable complement to existing rehabilitation. The process of introducing SEE included a multifaceted transition involving context, intervention process and delivery that renewed occupational therapy.

Conclusion

These results indicate how the use of new internet-based interventions such as SEE can influence and support renewal of occupational therapy that extends beyond the particular intervention. Continued research is needed to explore more aspects of SEE feasibility.

Place, publisher, year, edition, pages
Taylor & Francis, 2023
Keywords
Daily activities, e-Health, internet-based rehabilitation, occupational therapy intervention, rehabilitation, self-management, stroke, tele-rehabilitation
National Category
Occupational Therapy
Research subject
Occupational Therapy
Identifiers
urn:nbn:se:ltu:diva-101369 (URN)10.1080/11038128.2023.2247029 (DOI)001065930400001 ()37708913 (PubMedID)2-s2.0-85170853867 (Scopus ID)
Funder
The Kamprad Family Foundation, 20190070
Note

Validerad;2023;Nivå 2;2023-11-14 (marisr);

Full text license: CC BY-NC-ND 4.0

Available from: 2023-09-18 Created: 2023-09-18 Last updated: 2025-04-07Bibliographically approved
4. The Internet-Based Intervention Strategies for Empowering Activities in Everyday Life: Qualitative Study of Experiences of Clients With Stroke
Open this publication in new window or tab >>The Internet-Based Intervention Strategies for Empowering Activities in Everyday Life: Qualitative Study of Experiences of Clients With Stroke
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2024 (English)In: JMIR Formative Research, E-ISSN 2561-326X, Vol. 8, article id e56189Article in journal (Refereed) Published
Abstract [en]

Background: There is a need to enhance access to and support for self-management of activities in everyday life after a stroke. Internet-based solutions have the potential to contribute to this development. Consequently, an internet-based intervention called Strategies for Empowering Activities in Everyday Life (SEE) was developed. The intervention aims to assist clients in developing management strategies that promote a healthy distribution and balanced engagement in various activities performed in different places and with other people. To further support the development and feasibility of this intervention, more knowledge is needed about clients’ experiences during the intervention process.

Objective: This study aims to explore and describe how clients with stroke experienced the SEE intervention process and whether participation in SEE influenced their experience of everyday life.

Methods: Overall, 9 clients with stroke who received SEE participated in the study—4 (44%) women and 5 (56%) men aged 37 to 73 years. Qualitative interviews about experiences with SEE were conducted twice during the intervention process with each participant. The data were analyzed using the constant comparative method of grounded theory.

Results: The participants’ experiences with the intervention process of SEE formed the core category, conceptualized as The relevance of and readiness for entering a change process in activities of everyday life differ among clients, constituting of two main categories: (1) an eye-opener providing agency for a change process and (2) never beginning a change process in activities in everyday life. The results showed that the relevance of and readiness for SEE differed between the participants. The experiences of 78% (7/9) of the participants reflected that the intervention process provided them with an agency to drive their own change process for activities in everyday life to promote health. Overall, 22% (2/9) of the participants refrained from entering a change process during SEE as they did not recognize any need for changes in their activities. When SEE was relevant and adopted as expected, the participants described it as an eye-opener for how they can alter their health based on how they distribute and spend their time on various activities.

Conclusions:SEE has the potential to support clients’ development of self-management and to take an active role in influencing their engagement in activities in everyday life and health. This study identified necessary improvements in the educational program for professionals to enhance delivery and strengthen the therapeutic mechanisms of SEE for future research. To effectively implement internet-based interventions such as SEE, it is crucial to identify clients who express a need for self-management in activities and are ready to invest the effort required to adopt a change process. Furthermore, it is indicated that participants’ self-analysis of their everyday activities empowers them to adopt new self-management strategies, which can also benefit other interventions.

Place, publisher, year, edition, pages
JMIR Publications, 2024
Keywords
internet-based rehabilitation, occupational therapy intervention, rehabilitation, self-management, stroke, active everyday life, activity-based intervention
National Category
Occupational Therapy
Research subject
Occupational Therapy
Identifiers
urn:nbn:se:ltu:diva-109785 (URN)10.2196/56189 (DOI)39146535 (PubMedID)2-s2.0-85201776983 (Scopus ID)
Funder
The Kamprad Family Foundation, 20190070The Swedish Stroke AssociationSwedish Association of Persons with Neurological Disabilities
Note

Validerad;2024;Nivå 1;2024-11-25 (sarsun);

Full text license: CC BY 4.0;

Available from: 2024-09-10 Created: 2024-09-10 Last updated: 2025-04-07Bibliographically approved

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Available from 2025-04-24 09:00

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34567896 of 15
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